mycophenolate wegener's

My seventeen year old son was just diagnosed with wegener's granulomatosis. He has been seeing strictly a pulminary doctor, should he see additional doctors for other areas affected by disease.

I am being successfully treated for a rare autoimmune condition with 15 mg prednisone and 1 gr mycophenolate daily. Although mycophenolate use involves a risk of opportunistic HSV infections, I was not warned about this. I recently had sex WITH A CONDOM with a partner whose status for HSV infection is unknown. Within about a day, I had developed numerous lesions. These spread rapidly and my doctor said they had an appearance consistent with HSV.

I can sort of answer your first question. Mycophenolate mofetil (MMF) or Cellcept has been extensively researched for its use in myasthenia gravis. Also, it carries a FDA black box warning that it may increase your chances of infection, lymphoma and congenital malformations (for pregnant women). Also, its optimal dose is yet undecided. Pyridostigmine (Mestinon) is the usual first line treatment for MG.

We learn in medical school that when we hear hoofbeats, we think of horses, not zebras - meaning common things happen commonly. Wegener's Granulomatosis is a rare disorder that requires treatment with immunosuppressive therapy and all the side effects of that type of therapy. It is diagnosed with a biopsy of the lung (if the CT scan is abnormal), or the kidney (if the UA has blood), or the sinuses. The diagnosis can be supported with a positive ANCA blood test.

I'm a 29 y/o male. I've been dealing with a lot of sinus infections since Oct '09. I was in a bad work environment which contributed to the infections. Since leaving I've only had 3 infections in the last 6 months. I was suppose to have sinus surgery but our insurance wouldn't cover it and we couldn't afford it out of pocket. I was recently diagnosed with pericarditis after having chest pain and an echo confirmed it.

I'm not sure what it is either. I googled it and it seems to come down to vasculitis of some sort or Wegener's granulomatosis (I have no idea what this is either) Maybe when more results come back I'll get a better idea! :) Thanks again for your input!

Hi! If you have Wegener's granulomatosis, then your disease is not under control as you have new infiltrates and nodules. While the respiratory tract is the main area of attack, if the disease is not controlled suitably with medications, it can spread to liver and kidney and become fatal. This is why you need a change in medications. Other than Wegener's granulomatosis, the picture can be due to inflammation, tuberculosis (military type), asbestosis, silicosis, auto-immune diseases etc.

Hi, Was this diagnosis of a kidney inflammation given by a physician? What urinary symptoms did she present? Did she present with blood in her urine? How is your friend's blood pressure? Was this monitored? Was her kidney function determined? The presence of a kidney inflammation when associated with hemoptysis ( medical term for coughing blood ) may be due to a Pulmonary Renal Syndrome( PRS). Pulmonary Renal Syndrome is usually caused by several conditions.

Am suffering 3rd ralapse of Wegener's, but his time with only kidney involvement(previously lung, skin, sinuses) I was experiencing no physical symptoms prior to urinalysis and consequent biopsy. My blood creatinine was 4.8, er visit showed it at 3.6, and next test was 4. All at different labs because of circumstances. I am currently on 125 cytoxan and 40 preds My blood pressure is out of control and different meds not helping.

I have Wegener's and need to be on low pot. diet I need to know what I can eat everything I find is what is high in pot. But nothing on what I can eat.

i do not think that the loose bowel movements are directly related to the transplant itself. they could be from the medications such as mycophenolate or ursodiol. sometimes certain infections can also contribute. If the liver tests are OK, then the loose bowel movements are not from the liver.

additional agents such as mycophenolate (cellcept) may be necessary or in cases of severe rejection a medication such as thymoglobulin may be needed.

My doc is trying to reduce the dose. Since I was on tacrolimus only(as Mycophenolate causes TLC to go down in two occasion), sirolimus 1mg is started along with reduced tacrolimus(2mg BD, Tac level ~4.5). But the creatinine is still high(1.8). It seems some side effect of Sirolimus is also coming as the TLC is 3400 and platelet is 80,000. What do you suggest to bring creatinine under control? What is the way to determine the exact required dose of tacrolimus?

The standard therapy options include intravenous immunoglobulin and plasmapharesis, corticosteroids, azathioprine, cyclophosphamide, etanercept, mycophenolate mofetil, interferon alpha 2a and tacrolimus. Current ones are interferon beta 1a, rituximab, and high dose cyclophosphamide. Your neurologist needs to apprise you of the long-term side effects since prolonged therapy are required. Botox shots are not known to be used in therapy.

Hello, My father who is 77 was recently diagnosed with Micro Poly Angiitis, which is a sister to Wegeners Granulomatosis I know a little bit. We have been through the wringer with my father. He is home now, but on a lot of meds including Cytoxan a Chemo drug. The official confirmation came from a kidney biopsy, but they knew that he had Vasculitis before the biopsy, by the time we did the biopsy is was basically to confirm Wegeners or MPA.

I've had symptoms very similar to yours, also since December of 07. I've been told that increased blood pressure that is episodic can sometimes be attributed to kidney problems and/or hormonal issues. Also, maybe rule out a pheochromocytoma (benign adrenal tumor that can cause BP to skyrocket periodically). Do you remember feeling sick in December or did this come on gradually. Has anyone looked in wegener's granulomatosis or some type of viral condition?

My seventeen year old son had almost identical symptoms to your husband. He was on antibiotics for 5 weeks with what the doctors thought was sinus infections. He still continued to have a fever though. Final took him into ER, they thought he had a fungal infection, Histoplasmosis. Finally diagnosed him with Wegener's granulomatosis. Doctors thought for years he had asthma and allergies, now we're not so sure. This disease is rare, but it my be worth asking your doctor about.

yes, it might be helpful for other users and certainly for me it is. Thank you very much, i really appreciate your help. This site is amazing!!

Hi all My wife has SLE which about 8 months ago began to come undercontrol with mycophenolate.

Please any advice. I have been to 3 different ENTs, the 1st one tested me for staph - came back moderate staph (not MRSA) and took Keflex for 10 days-no improvement. Five days later cultured again and it came back negative. Said I should use Bacitracin for a year as Bactroban burned and dismissed me.(I am allergic to all antibiotics but two and most other drugs-happens over time) 2nd ENT said Bacitracin irritates and easy to get allergic to it. Already allergic to Neosporin.

t respond to prednisone or azathioprine, your doctor may prescribe stronger immunosuppressants, such as mycophenolate (CellCept), cyclosporine (Neoral, Sandimmune, others) or tacrolimus (Prograf). --------------------------------------------------------------------------------------------------- When medication fails to stop the progression of cirrhosis eventually a liver transplant must be considered. This is another reason to also seek treatment with a transplant facility.

Mycophenolate wegener's

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