Mycophenolate mofetil wegener's
Common Questions and Answers about Mycophenolate mofetil wegener's
cellcept
The standard therapy options include intravenous immunoglobulin and plasmapharesis, corticosteroids, azathioprine, cyclophosphamide, etanercept, mycophenolate mofetil, interferon alpha 2a and tacrolimus. Current ones are interferon beta 1a, rituximab, and high dose cyclophosphamide. Your neurologist needs to apprise you of the long-term side effects since prolonged therapy are required. Botox shots are not known to be used in therapy.
I am not on Cellcept which is Mycophenolate Mofetil 1g morning and 1g night. This is a fantastic immunposuppressant. Basically what I am telling you is that at any time your body cannot any longer tolerate one drug, there is always another waiting. The one I am on now is more 'pure' in other words there are less chemicals in in to effect the liver.
It might be worth a mention if you are uncertain but many people are able to tolerate your medication for many years.
Also, I have IgA nephropathy and have been on low dose immunosuppressant (mycophenolate mofetil 250 mg twice daily) for the past 1.5 years.
4 days ago, I noticed a little bump in on my labia minora. and I thought maybe it was a boil and tried to break it. It is now pus filled and looks like a zit. its just the one. I have no tingling or itching tho there is some pain now after i messed abt with it which is kinda like the pain i feel with zits anywhere.
I am on 750 urso three times a day now.. I am 52. I am now on Cellcept (mycophenolate Mofetil) 1g twice daily. This is because the other meds like Azathioprine and Mercaptopurine disagreed with me intensely and I turned a beautiful shade of butterscotch and was oh so ill. This new drug has less chemicals in and suits me very well, in fact I walked 6 miles in Jordan as opposed to not even being able to get out of bed.
My seventeen year old son was just diagnosed with wegener's granulomatosis. He has been seeing strictly a pulminary doctor, should he see additional doctors for other areas affected by disease.
I am being successfully treated for a rare autoimmune condition with 15 mg prednisone and 1 gr mycophenolate daily. Although mycophenolate use involves a risk of opportunistic HSV infections, I was not warned about this.
I recently had sex WITH A CONDOM with a partner whose status for HSV infection is unknown. Within about a day, I had developed numerous lesions. These spread rapidly and my doctor said they had an appearance consistent with HSV.
Hi, glad you have been diagnosed, this can often get misses as indeed mine was for some time. I have PBC aswell which was what I was diagnosed with first.
I agree that you should always check on other suppliments. I only take cod liver oil tablets as a supplement with my meds.
Just a thought though, if you ever feel unwell on your meds, please do not be afraid to challenge your doc. I took mine as instructed and became so ill.
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We learn in medical school that when we hear hoofbeats, we think of horses, not zebras - meaning common things happen commonly. Wegener's Granulomatosis is a rare disorder that requires treatment with immunosuppressive therapy and all the side effects of that type of therapy. It is diagnosed with a biopsy of the lung (if the CT scan is abnormal), or the kidney (if the UA has blood), or the sinuses. The diagnosis can be supported with a positive ANCA blood test.
I'm a 29 y/o male. I've been dealing with a lot of sinus infections since Oct '09. I was in a bad work environment which contributed to the infections. Since leaving I've only had 3 infections in the last 6 months. I was suppose to have sinus surgery but our insurance wouldn't cover it and we couldn't afford it out of pocket. I was recently diagnosed with pericarditis after having chest pain and an echo confirmed it.
My pt. age 56 yrs. S/P liver transplantation last 6 mos. He on tracolimus 2 mg/d. mofetil 500 mg./d. Now, his LFT AST47 ALT51 Alk.phos.382 GGT67 ANA neg. anti smooth m. neg.. I want to know causes of hepatitis in him, if is not graft rejection?
I'm not sure what it is either. I googled it and it seems to come down to vasculitis of some sort or Wegener's granulomatosis (I have no idea what this is either) Maybe when more results come back I'll get a better idea! :)
Thanks again for your input!
Hi!
If you have Wegener's granulomatosis, then your disease is not under control as you have new infiltrates and nodules. While the respiratory tract is the main area of attack, if the disease is not controlled suitably with medications, it can spread to liver and kidney and become fatal. This is why you need a change in medications. Other than Wegener's granulomatosis, the picture can be due to inflammation, tuberculosis (military type), asbestosis, silicosis, auto-immune diseases etc.
Hi,
Was this diagnosis of a kidney inflammation given by a physician?
What urinary symptoms did she present? Did she present with blood in her urine?
How is your friend's blood pressure?
Was this monitored?
Was her kidney function determined?
The presence of a kidney inflammation when associated with hemoptysis ( medical term for coughing blood ) may be due to a Pulmonary Renal Syndrome( PRS). Pulmonary Renal Syndrome is usually caused by several conditions.
Am suffering 3rd ralapse of Wegener's, but his time with only kidney involvement(previously lung, skin, sinuses) I was experiencing no physical symptoms prior to urinalysis and consequent biopsy. My blood creatinine was 4.8, er visit showed it at 3.6, and next test was 4. All at different labs because of circumstances. I am currently on 125 cytoxan and 40 preds My blood pressure is out of control and different meds not helping.
I have Wegener's and need to be on low pot. diet I need to know what I can eat everything I find is what is high in pot. But nothing on what I can eat.
additional agents such as mycophenolate (cellcept) may be necessary or in cases of severe rejection a medication such as thymoglobulin may be needed.
My doc is trying to reduce the dose. Since I was on tacrolimus only(as Mycophenolate causes TLC to go down in two occasion), sirolimus 1mg is started along with reduced tacrolimus(2mg BD, Tac level ~4.5). But the creatinine is still high(1.8). It seems some side effect of Sirolimus is also coming as the TLC is 3400 and platelet is 80,000.
What do you suggest to bring creatinine under control?
What is the way to determine the exact required dose of tacrolimus?
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