Mycophenolate lupus
Common Questions and Answers about Mycophenolate lupus
cellcept
recently diagnosed of sle with lupus nephritis type v and is currently on omnacortil(prednisolone) 40mg/day and chloroquine at 24 yrs of age now ive started to notice my moon like face after 2 weeks and its getting wierd and wierd.is there any way to be out of my new face ...
I am being successfully treated for a rare autoimmune condition with 15 mg prednisone and 1 gr mycophenolate daily. Although mycophenolate use involves a risk of opportunistic HSV infections, I was not warned about this.
I recently had sex WITH A CONDOM with a partner whose status for HSV infection is unknown. Within about a day, I had developed numerous lesions. These spread rapidly and my doctor said they had an appearance consistent with HSV.
additional agents such as mycophenolate (cellcept) may be necessary or in cases of severe rejection a medication such as thymoglobulin may be needed.
My doc is trying to reduce the dose. Since I was on tacrolimus only(as Mycophenolate causes TLC to go down in two occasion), sirolimus 1mg is started along with reduced tacrolimus(2mg BD, Tac level ~4.5). But the creatinine is still high(1.8). It seems some side effect of Sirolimus is also coming as the TLC is 3400 and platelet is 80,000.
What do you suggest to bring creatinine under control?
What is the way to determine the exact required dose of tacrolimus?
The standard therapy options include intravenous immunoglobulin and plasmapharesis, corticosteroids, azathioprine, cyclophosphamide, etanercept, mycophenolate mofetil, interferon alpha 2a and tacrolimus. Current ones are interferon beta 1a, rituximab, and high dose cyclophosphamide. Your neurologist needs to apprise you of the long-term side effects since prolonged therapy are required. Botox shots are not known to be used in therapy.
Hi all
My wife has SLE which about 8 months ago began to come undercontrol with mycophenolate.
t respond to prednisone or azathioprine, your doctor may prescribe stronger immunosuppressants, such as mycophenolate (CellCept), cyclosporine (Neoral, Sandimmune, others) or tacrolimus (Prograf).
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When medication fails to stop the progression of cirrhosis eventually a liver transplant must be considered. This is another reason to also seek treatment with a transplant facility.
And immune suppresant mycophenolate for 6 months. I am grateful for your thoughts. Apologies in delay replying I have been unwell.
I am not on Cellcept which is Mycophenolate Mofetil 1g morning and 1g night. This is a fantastic immunposuppressant. Basically what I am telling you is that at any time your body cannot any longer tolerate one drug, there is always another waiting. The one I am on now is more 'pure' in other words there are less chemicals in in to effect the liver.
It might be worth a mention if you are uncertain but many people are able to tolerate your medication for many years.
however, there is no documented increased cancer risk specifically with the use of long-term mycophenolate use. the less immunosuppression one takes over time, the better however.
Hi. Can anyone tell me,what " no lupus anticoagulant found" means? Thank you.
Well i just got a call from my doc saying my blood work shows signs of lupus and she wants me to get more blood work done and reffered me to a specialist who will call me to schedule an appointment. I have been having a lot of joint pain the past two or three years and now im 22 weeks pregnant and its only gotten worse. My obgyn had me in physical therapy but stopped it bc id wake up not being able to move. And i read that it is worse if you have kidney problems.
Ok, so a little over a year ago I broke out into hives that lasted for four months, I was diagnosed with Lupus because I also had extreme fatigue and excruciating pain in my hands. After 2 months I was told that it wasn't lupus but that it was probably Fybromyalgia even though my ANA came back positive. Since then I was told to stop taking the prednisone and plaquenil that they had originally prescribed me.
Presence of protein in urine and positive ANA is usually seen in the presence of lupus. If you are suspected to be suffering from lupus you may need more specific antibody testing. It is best to clarify your doubts with your doctor and start treatment based on the diagnosis. Do write to me again with more queries.
Take care and regards!
Hey all,
I have been trying to figure out what is going on with me for the past 6 months. Here is the symptom presentation: 2 years ago, I had my first rash outbreak from (presumably) being in the sun. The rash was round in shape, with a small indention in the middle. Soon thereafter, my ears began to occasionally itch, become swollen, and very red. They were also scaly and flaky.
1. malar rash (butterfly rash)
2. discoid rash - red raised patches
3. photosensitivity - reaction to sunlight, resulting in skin rash
4. oral and or nose ulcers
5. arthritis
6. serositis - inflamation of the lining of the lungs or heart
7. renal disorder - excessive protein in urine and or cellular cast
8. neurologic disorder - seizures or psychosis
9. anemia or low WBC or lymphopenia or low platlet count
10. positive ANA
11.
I am 24 years old and my mother has Lupus. Recently I had been experiencing symptoms much like my mother has. My RA factor was tested. I was told the normal result is less than 20 and mine was 1,615. What does this mean for me? I have yet to be successful in contacting the rheumatologist my doctor recommended.
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