Mycophenolate and lupus

Common Questions and Answers about Mycophenolate and lupus

cellcept

Avatar f tn recently diagnosed of sle with lupus nephritis type v and is currently on omnacortil(prednisolone) 40mg/day and chloroquine at 24 yrs of age now ive started to notice my moon like face after 2 weeks and its getting wierd and wierd.is there any way to be out of my new face ...
Avatar m tn I am now on valacyclovir for prophylaxis and supression, because I must continue mycophenolate use. Of course, there is no point in doing this if I do not have a latent HSV-1 or HSV-2 infection. On the other hand, I am reluctant to allow a recurrent opportunistic infection. Moreover, I have a regular but intermittent partner who I have informed about these developments.
778275 tn?1326913623 Mycophenolate mofetil should be used with caution in individuals who fail on azathioprine (Mycophenolate mofetil substitute) and corticosteroids. Plasma exchange (PE) and Human immune globulin are tried if there is respiratory problems and gysphagia. Some even benefit with thymectomy or removal of thymus. Tacrolimus is another drug which can be tried. Please discuss your treatment with your treating doctor. Take care!
568603 tn?1240404035 Thanks for the feedback. I do have lupus nephritis, and have had this disease for 3 years now. Do you think it's the lupus that's triggering this numbness in my right side. And also the doctor told me that it couldn't be my lupus. I'm just concern and need to know the next steps that i should take when i go see my doctor and also i will get a second opinion.
Avatar f tn This is a complex case and most doctors, including specialists will only treat the resulting consequences and symptoms. This is usually a short-term fix, while the overall situation worsens. Please post more information about yourself, age, country, short medical history, medicines, typical diet, any test results including lab ranges, etc.
Avatar m tn If so, then the treatment is optimizing doses and levels of cellcept and prograf and trying to minimize the use of parenteral corticosteroids.
Avatar m tn Dear Sir, I after almost 8months of itching finally a blockage in the anterior duct is detected along with the posterior one. 3months back ERCP was done and liver engymes are perfectly normal. But due to high dose of tacrolimus the creatinine is gratually on rise(it is now around 1.9). My doc is trying to reduce the dose. Since I was on tacrolimus only(as Mycophenolate causes TLC to go down in two occasion), sirolimus 1mg is started along with reduced tacrolimus(2mg BD, Tac level ~4.5).
Avatar m tn The standard therapy options include intravenous immunoglobulin and plasmapharesis, corticosteroids, azathioprine, cyclophosphamide, etanercept, mycophenolate mofetil, interferon alpha 2a and tacrolimus. Current ones are interferon beta 1a, rituximab, and high dose cyclophosphamide. Your neurologist needs to apprise you of the long-term side effects since prolonged therapy are required. Botox shots are not known to be used in therapy.
Avatar f tn In any case, I am sure I do have lupus, as the signs and symptoms are so classic -and I have been officially Dxd by TWO docs. I jsut think, as you said, that if this was CNS lupus, I would be MUCH sicker - that condition is really really serious. But, Im just going to continue with my lupus treatment, and in the meantime, make an appt with a neuro to get a new MRI - it couldnt hurt, you know?
Avatar n tn s and pernicious anemia. My son is type I diabetic and my daughter has lupus and is watched very closely for other autoimmunes, but I do know that some of the same tests are used to dx more than one disease. For instance, I've read that TPOab is used to dx both Hashi's and lupus. It would be good if you could post your thyroid labs. Sometimes the results can be in the "normal" category but just not be right for YOU....
Avatar f tn Hello. For RSD to occur, you should have had a surgery or an injury. It is a response to injury. The symptoms of Lupus are much more extensive than those of RSD. You can come to a conclusion after tests for Lupus.
758493 tn?1271611163 I know a little about Lupus, but I think you are looking for personal testimonials and the Lupus community is where you will find that.
Avatar m tn Now she has many issues going on and looking back at the last 12 months it looks like she may have Lupus. My question is-Could she have had vaginal lesions from Lupus in December instead of Herpes? Does Lupus ever give a false positive for Herpes? Has anyone ever dealt with this issue?
Avatar f tn Hi all My wife has SLE which about 8 months ago began to come undercontrol with mycophenolate.
Avatar f tn The mood swings you are experiencing could also be caused by the lupus itself, as well as certain medications, such as prednisone, for treating lupus can cause your behavioral changes, Another factor could be the stress of going to nursing school, and being newly diagnosed with lupus. All could be cocurrent factors. It does not necessarily mean you have bipolar illness.
338416 tn?1420045702 When I visited with the MS specialist, I mentioned my odd angioedema - whenever I got an injury to the face (usually either the dog bumping me in the lip, or biting my tongue) and the phlebitis in my leg. I also talked about the blood clot I had just recovered from. She went ahead and got a test for lupus anticoagulant, which was positive. Now, those people who test positive for the lupus anticoagulant don't necessarily have lupus.
Avatar f tn Hi, i'm 31 and have been diagnosed several years ago to have a mild case of lupus, took medications at that time and stopped it 4 years ago, and its under control till now according to the recent blood tests i had couple of months ago.Now i'm married 3 years ago, and trying for a baby since 1 and half years, had a low progesterone level treated with clomid for 6 months, then a hysterosalpingography showed a mild adhesion in the left tube.
Avatar m tn Hello, I was searching for terms related to Ehlers Danlos Type IV concurrent with mouth sores and lupus like rashes (which I've also had for years- since my 20s, and my daughter, 19, as well), and came upon your post. After my 4th genitourinary hematoma surgery this summer, we were sent to a Rheumatologist, who has just diagnosed me with VEDS.
Avatar f tn I HAVE HAD LUPUS SINCE THE AGE OF 15 AND I AM NOW 25- MY LUPUS HAS BEEN IN REMISSION FOR ALMOST 4 YEARS NOW, BUT I HAVE BEEN EXPERIENCING PERSISTENT VOMITING AND DIARRHEA FOR THE PAST 2 MNTHS. i HAVE BROUGHT IT UP TO MY DR AND HE STATES THAT MANY PEOPLE WITH LUPUS CAN DEVELOP STOMACH ULCERS, ESPECIALLY IN MY CASE, SINCE I HAVE TAKEN PREDNISONE FOR 10 YEARS+.
Avatar m tn I have a few symtoms of Lupus but my first blood test was negative. My niece has Lupus and had a very bad flare up this last February she has lost her hair do to Lupus and is in a wheelchair. I also know that the blood test are not concrete. My Pars Planitis is still the same do to the fact that I cannot have the steriod injections anymore. Could this be a sign of Lupus?
Avatar f tn He mentioned something about possible Lupus or Sarcoidosis. He spoke briefly about a combination of MS and Lupus??? My ACE test came back elevated a couple of years ago and I have been tested for Lupus and Sarcoidosis in the past and was told I don't have either. My question is if anyone who has been diagnosed with MS has also had elevated ANA or ACE blood tests.
Avatar n tn In the past HLA B27 was not correlated to autoimmunity but now obviously it is. I am positive for HLA B27 and have Lupus. My sister has autoimmune thyroid disorder and psoriatic arthritis. A brother has ulcerative colitis and years ago had Schizophrenia. I suspect a genetic HLA B27 connection to Lupus but as yet no one seems to have any knowledge.
Avatar n tn s now moved from Austin to California and is COMPLETELY symptom free) and while she had Lupus in Austin she had 3 kids who are all brushed with autism. All are doing great as adults - we are all "approximations of the mean". I don't know if their symptoms have anything to do at all with lupus.
Avatar f tn I have been taking predisone and mycophenolate for the past 9 yrs and until the biopsy I thought everything was status quo. Again thank you for all the information.
Avatar f tn Thats how I found out also, pain in the muscles and sore joints to the point I could not work. No lupus symptoms. The RA symptoms are common with the hep, your not alone.
Avatar f tn I am not on Cellcept which is Mycophenolate Mofetil 1g morning and 1g night. This is a fantastic immunposuppressant. Basically what I am telling you is that at any time your body cannot any longer tolerate one drug, there is always another waiting. The one I am on now is more 'pure' in other words there are less chemicals in in to effect the liver. It might be worth a mention if you are uncertain but many people are able to tolerate your medication for many years.
211043 tn?1337050701 Anyone here have both endometriosis and lupus? I currently have PCOS, and just had a lap done in December which confirmed endo and I had the adhesions removed. I have been battling all sorts of illnesses for years now and never felt right. I keep begging doctors to check me for whatever they can, and they just blow me off. Today, for instance, my glands are huge, my throat is sore and I'm really achy and feel like ****. This, to some degree, happens several times a week for me.