ms symptoms mayo clinic

Depends on what's wrong. When it comes to MS, we on the MS forum have a slogan, 'Hold the Mayo!' They have bizarre standards for MS diagnosis, but probably more important to you, they have a reputation for being, shall we say, snotty, to patients. Of course there are likely to be many exceptions. But then there are also many other good hospitals for neurology. Hopkins is considered the best, at least by US News & World Report.

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.

I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.

What are the standards for certain symptoms in MS diagnose. If Mayo says it needs to be 4+ what is other clinics standards? Anyone know?

Here's my doc: http://www.william-cheshire.com/MD/Welcome.html He specializes in trigeminal neuralgia, dysautonomia, Neuro ethics, and diagnostics. He said he will oversee my case but in addition send me to a mayo ms specialist later after testing is complete. There's a Centers fir MS campus in Jacksonville co-ran by the MS specialist at Mayo. It's a 6 hour drive one way for us and the process is costly in travel.

If anyone has been to the may clinic to get a diagnosis of MS, would you mind sharing your experience with me? I have heard some good things and then some bad things and I would really appreciate any stories that could be shared as I am really nervous about going. Thank You!

He suggested that I go to the Mayo Clinic or Cleveland Clinic and get a third opinion. He said if I did have MS, he would be glad to treat me. I told him I thought I needed something for depression and he suggested Cymbalta. I told him that I reacted badly to that and he didn't offer any other alternatives. He told me to continue my medications until I saw someone else(early on he suggested I needed none of them) since they seemed to be working for me...Did I miss something here????

I will be going to the Mayo Clinic if FL to their MS specialist to confirm or deny MS in Feb. I am very excited about , hopefully, getting some answers. Has anyone here been to the Mayo Clinic? I was wondering what to expect and if anyone knew anything about Dr. Sheuster (sp?). I will be seeing her. Thanks!

m getting depressed and irritated over all of these symptoms with no answers and Mayo Clinic basically told me in the ER yesterday there was nothing else they could do at this point since all the tests are negative. I am on my second Neurologist. MS is apparently now ruled more out then in, and I'm ok with that, but does anyone have any suggestions on where I go from here? Any there any differentials I should be looking into.

Have been preparing for my trip to the Mayo Clinic in Arizona, as well as dealing with the holidays and 2 1/2 feet of snow, wind, rain & flooding ( I live near Seattle).... Anyway - I am in Arizona at the Mayo clinic. We arrived on Wednesday & I met my Neuro yesterday. A very nice man and very focused. I know that some members here have had not so good experiences here, but so far every person that I have come into contact with has been extremely nice, empathetic and kind.

OH and one thing she said that confused me is that she said MS symptoms usually do not present in the way mine are, in other words, they do not come on, last for s period of time, go away and come back. Everything I have read says that they do. Any one have any ideas on this one and what I might want to ask her about it?

I am interested to find out why and how the Mayo Clinic uses the 3 band criteria that it uses when others do not use this? I talked to a man today who told me that the Mayo clinic did not dx him and it took 10 years to finally get his dx.

My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.

Oh my, if he is concerned about adhering to the McDonald criteria he would know that after documenting "2 distinct" episodes with lots of MRI evidence, NO FURTHER DOCUMENTATION OR SUPPORT IS NEEDED". So his problem is lack of confidence, maybe. or maybe he is super conservative. As for the shortage of symptoms; that means that the majority of your lesions fall into the "Unknown Zone" in your brain where we don't know it's purpose.

My new neuro wants to refer me to Mayo Clinic. She thinks this is definitely an autoimmune disease but doesn't think that it is MS due to the intermittent low grade fevers for no apparent reason. I haven't discounted the fact that more than one thing may be going on. Anyway, saw that JH has the big autoimmune disorder research center and wondered, if this is what we're looking at, if it might be the better place to go. Any comments??? Thanks!

Hi Amanda- I agree with Alex. From what I've read, the Mayo Clinic seems overly difficult when diagnosing MS. It seems there assumption is "It's not MS." and they work to support that conclusion. Gastroparesis seems like it could be caused by nerve damage. MS causes nerve damage. Blaming other neurologic symptoms on gastroparesis seems a bit back asswards to me. Can you see doctors outside of the Mayo Clinic?

Hi everyone, I will make this as short and concise as possible, so not to lose any of you. :) To start, all of my symptoms first began seven years ago with three "episodes" occurring to date. I have been under the care of very highly regarded neurology clinic in Minneapolis - I trust them, though something just doesn't feel right so I am in the process of getting a second opinion at the Mayo Clinic.

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

In rare situations, symptoms are highly suggestive of MS, but tests may be normal. This makes it difficult to commit her to treatment, however, we discussed disease modifying therapy Copaxone. It is essential to provide close monitoring and follow up of MRI at 1 year and 2 year. If there are no objective findings on the MRI or physical examination then I would not subject her to the risk of disease modifying drugs. So what exactly is she suggesting? None of this makes sense to me.

Welcome to the forum! Sorry to hear of your SIL's medical problems. Some of her symptoms do sound neurological but no one here is able to diagnose your SIL. Now as far as educated guesses go...the neurologist may be thinking MS or some other neuro-muscular disease. It is possible to have all the tests you mentioned be normal and still be MS . If it's MS the neuro is thinking of , the Mayo as gotten mixed reviews here on the forum.

There is a special test for MS, so they have to test specifically for it. You can take the test at Mayo. My friend has MS and they tested her for everything first and then sent her home. The clinic called her and said that there was one more test and she was sent to Mayo. They tested her for MS and that was it. She is a nurse and did not even recognize the symptoms. Her hands and feet felt numb and like pins and needles and uneasy, she was tired a lot, and just did not feel well.

I went to the Mayo, and they named my symptoms, but I already knew that! I was supposed to see a specialist in MS there, but he was sick, so I didn't get to. My neuro thinks this could be MS, but of course he can't say for sure! He says I fall into the probable category but I could be there for a while. He wants to send me to the Cleveland Clinic. But, I didn't get anything out of going to the Mayo and I don't want that to happen again, so i'm stuck on what to do!

Hi fugue - Like golf, tennis, needle point or bread baking, The more you do something the better you're going to get at it. This holds true for diagnosing MS. The more a neurologist sees MS, the better they will be at diagnosing it. At an MS clinic it's all they see so they will be better able to look and think outside the box when trying to diagnose it. A non-MS neurologist may see 5 cases a year, while an MS specialist will see 5 cases before lunch :-) I was lucky.

Ms symptoms mayo clinic

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