Ms symptoms hair loss

Common Questions and Answers about Ms symptoms hair loss

multiple-sclerosis

I have been having an autoimmune hair loss issue for several years. The hair on my head, arms, legs and chest will fall out, then grow back several months or even years later. It falls out in diffuse patches. The doctors all tell me its male pattern baldness but I know this is not the case because it grows back. I have hepatitis C and I know this is part of the problem but I don't know what to do. Any suggestions?
My sister who is dx with MS started losing her hair and she thought it was due to the meds she was taking but went to the doctor and got tested and they found she had to much testastarone in her system so they gave her some meds to level it out with the estrogen and she is doing well with no more hair loss. And she regrew the hair she lost. I hope you find out what is causing the hair loss.
I am sorry to hear that you are experiencing unexplained hair loss. Unfortunately your question can’t be answered in this forum. It may help to talk with your doctor about the symptoms that you are experiencing.
I am not sure how to fit the alopecia (hair loss) into the diagnosis/symptoms of MS. Alopecia can be related to a multiple reasons but usually caused from medications, infections, metabolic, autoimmune such as lupus and thyroid to name a few. I would look into these correctable conditions as well if not already done so. I agree with following up with neurology. Thank you for this opportunity to answer your questions, I hope you find the information I have provided useful, good luck.
I have read there are several other drugs for nerve pain that can cause hair loss but so for I have no findings about Lyrica doing so. I know hair loss can increase with stress. Which we all know the stress that is related to being undx. Not sure if that is the case or not, but sure would like to come to the bottom of it with hair left on my head.lol Hope all are having a great day!
One member was dx'd with MS only to find out she had hughes syndrome (sometimes called sticky blood, or APS), which is a huge mimic. Her daughter ironically developed the same MS symptoms as her and thankfully she was tested and determined to have the same syndrome. In the end, a good doctor determined the cause and she was treated in good order.
Had a kidney removed in April started a chemo pill that does not cause hair loss three weeks later. I was told the end of june that my TSH was a 100. They started me on Synthroid 50mcg. The 10 th day I was on it I started shedding real bad. It took me several days before i figured it out. By the week end I had lost 50% of my hair. one week later i could feel follicles all over my head. The new hair was coming in. But by the following week I lost another 20% of my hair.
I am a 29 year old nursing student who is having many of the same symptoms as you and struggling to get a diagnosis. I do know that MS is not as clear cut a disease to diagnose as some neuro's might make you think. I have had two MRI's in the past four years and am now seeing my third neuro. The neuro I am seeing now is an MS specialist. I have enough of the classic symptoms of MS for her to want to repeat my MRI a third time and do an EEG.
I have a few symptoms that don't go along with MS--hair loss and Raynaud's. I have even had problems, several years ago, with skin rashes, joint pain, and mouth sores. I haven't even a hint of these problems in years. It's like my body was confused on which autoimmune problem it had.
Welcome to the forum. I wouldn't say that hair loss is a symptoms of MS. It may be caused by medications you are taking or another metabolic disorder. You may want to discuss this with your doctor. I noticed when I took the MS drug Avonex that I had alot of thinning in my hair. I am just guessing that it was caused by the Avonex. I've never been sure. Have you talked to your doctor about your concerns? Again Daisy, I am glad that you joined us.
i have never posted on here before, but my husband had all the same symptoms and we all thought it was ms until he started losing his hair, and then i realized that was not anything to do with ms. things got severe.
I have quiet a few of your symptoms and at times wondered if it was MS as my mother has it. Could it be fibromyalgia as that is what I have. Google it. Ask your doctors to consider it if you think it may be this. Sorry I cant be more help. Wishing you good luck.
crushing fatigue (i used to run half marathons) muscle twitching, pin ***** sensation, muscle jerking and severe leg weakness( no strenght loss just very heavy and weak) If all your tests come back negative then I would strngly recommend getting tested for lyme at a proper lab. Good Luck...here is my email...fell free to email me with any questions.
Perhaps you can educate me and tell me if you ever found lesions, and, if so, this would be interesting. If a person has oligoconal bands and no Lesions and the symptoms and pathology of MS and Lyme disease, et al, was ruled out: I might say, "Possible MS" but according to the standards for a perm. diagnosis you need to have 2 lesions, in 2 different areas of the CNS, disseminated in space and time. That is black and white. Have you ever seen another neurologist?
I have joint pain, numbness, tingling, coldness in hands, feet, toes, fingers, and I tremor/shake like someone with parkinsons in my hands, fingers, legs, feet, also twitching in eyes and face.
I haven't been diagnosed with MS, but it fits my symptoms well. I'm still going through tests. Whatever it is, I have also noticed odd changes in my behavior as the symptoms have changed. Sometimes I get angry or sad or giddy when the emotion is not warranted or appropriate. I have trouble talking about it with friends and family too because no one seems to want to listen. And it seems like those who do listen feel obligated to do so, but they don't really care.
As far as the MRI it is a very good sign that nothing showed on your MRI as far as being dx with MS. To have the symptoms you have, which I have had for two years, would indicate a later stage of MS and would certainly show on an MRI. This information was given to me by one of the best MS specialists known worldwide. Infact with me he said I sounded very much like lyme disease. I would certainly go ahead and have the testing they offer you as a way to rule out everything.
There are two kinds of hair loss. There is hair loss with visible scalp disease and there is hair loss without scalp disease. In your case, the hair loss may be associated with both the fungal infection and another underlying condition of seborrheic dermatitis. At this point, there is really no effective medical therapy for hair loss. If your hair loss is associated with tinea and seborrheic dermatitis then the underlying disorders need to be addressed first.
Migraines, dizzy spells, numbness of hands (fingers, toes, forehead as well), loss of muscle control in my hands (I drop things all the time), memory loss, hair loss, vision problems, etc... I've had these symptoms and more for several months. Blood work is within normal limits, Brain MRI is unremarkable. My sypmtoms are getting worse but it doesnt seem the doctors are doing anything. When I researched my symptoms online I have about 98% of MS symptoms.
I am taking Synthroid for 1 year now, I have excessive hair loss. My blood results showed that my TSH level is now 3.59. I thought hair would stop falling, but it has not. What could be the reason and what can I do?
Well the newest symptoms include, short-term memory loss, hair loss, and shooting pains from the arch of my foot up my legs. I have not slept a full night's sleep in .... a looong time. The dr. seems to think that alot of my symptoms/issues originate from that. He put me on an anti-depressant that I take before bed to try to help me sleep. I have been on it for a couple of weeks now, and have not noticed much of a change. I have no problem falling asleep, staying asleep is the problem.
In August 1998 I was diagnosed with relapsing progressive MS based on 2 lesions in brain MRI (periventricular region?) and symptoms. 2 new small lesions this year. 2 spinals were negative for oligoclonal bands. Began Betaseron in August 2000. During October 2000 "exacerbation" while on Betaseron, Solumedrol drip, and ambien, I passed out twice.
DEFINITIONS OF SYMPTOMS PERTAINING TO LYME DISEASE (General Symptoms) Check clear circle Translated into Lay English by *** o Nose Tingling o Neck Stiffness o Neck Pain o Jaw Pain o Jaw Stiffness o Jaw Cramping o Lock Jaw (Momentary) o Sore throat o Clearing throat o Phlegm (Chronic) o Hoarseness o Runny nose o Decreased Hearing o Plugged Ears o Buzzing in Ears o Pain in Ears o Sound Oversensitivity o Ringing in Ears o Popping in Ears o Eye Floaters o Eye Pain (In) o Eye Pain (Around) o
I have a neurologist who is at least willing to take all the symtoms and normal test results from other doctors' effort to diagnose, and surmise that it may be MS because all the symptoms are MS symptoms. But he is stuck with a system that requires him to have the concrete evidence before he can diagnose MS. Do I have to pray for a lesion to show up on an MRI? I would have more success establishing a disability claim if someone could call it MS.
Loss of hearing and aberrations of hearing (like hyperacusis) are well-described presentations and symptoms of MS. It's not super common, but not rare either. Young at heart wears hearing aids, and her hearing loss has been attributed to her MS. Hearing and vestibular function are governed by the 8th cranial nerve called the Vestibulocochlear Nerve or an older name is the Auditory nerve. MS can certainly involve any of the Cranial nerves, but especially II through VIII.
Do you know if white patches of loss of pigment on arms and also hair loss on that area could be related to this? I went to a dermatologist who said that it was sun damage, but who kept feeling the spots, especially the one that is about the size of a quarter. I ask what he was feeling for and he said to see if the skin was hard like in Scarcoidosis. He told me just to watch it and if it became hard feeling to let the come back in.
So, within 5 months (I fell in July and was diagnosed in December), I was told I have MS. My symptoms really didn't present themselves until after my fall, which the doctor wondered, did I already have MS and it caused my fall? A different doctor, who I saw at the Trauma Unit of the hospital, thought it would be extremely bad luck to take a fall, have a "closed head injury" (i.e. concussion), and find out I have MS, all at the same time.
I am wondering if I somehow have damage to my neck I don't even know about and it's causing all of these weird symptoms I don't even know about? Or is this MS symptoms? Ah, I don't play this waiting game well....lol...wish I knew the answers ASAP. Thanks for your replies and information. I am going to wait until my appointment on May 7th and see what my nuero says about everything then, including my bloodwork and TSH levels.
I'm a 41 year old female with possible MS. I have several symptoms (loss of balance, vertigo, headaches, muscle twitches and spasms, tremors, etc.). The worse new symptom starting around 3 or 4 months ago was going from stress incontenince (sp?) to total loss of control. My mother died 6 months ago so I have been under a lot of stress lately. My family doctor sent me to a neuro doc. I have had a VER (normal), a ton of blood work (sed rate elevated, Vit.
That was 4 years ago, and haven't had an alarming loss since. So my question is... Is hair loss continual? Does it come and go? Does anyone hAve lupus and NOT have hair loss? Also, after chasing this fibromyalgia rollercoaster, which lead me here, found out I had a positive ANA. It's not high at the moment. 6 mos or maybe a year ago it was neg. Now it's speckled, 1:160. After seeing some CRAZY numbers on here... That sounds pretty low to me.
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