Lyrica vulvodynia

Common Questions and Answers about Lyrica vulvodynia

lyrica

Avatar n tn I understand their are thousands of us who have vulvodynia. What can we do to relieve the pain?
401370 tn?1233324682 has there been any new cures or treatments available for women suffering from vulvodynia? i would love to hear from anyone.
401370 tn?1233324682 Hi,I have had vulvodynia for 8yrs.I have know idea what started it,and you are very right about the doctors i dont know why they wont do more studies on this disease!I have been to many doctors that had know clue what it is.It is very hard to treat,I have tryed so many things with know help! I have some good days and some very bad ones! Good thing my husband is a very understanding man.I get on the internet hoping to find something new about it,but its always more of the same!
Avatar f tn My urologist has tried various inserts into the vaginal area and followed up with a Interstim procedure test. Nothing helps. She now has me on Lyrica but that isn't working. I'm considering seeing a neurologist. I can't sit for more than 1 minute at a time. Doesn't hurt when I stand or lay down. Has anybody heard of this condition?
Avatar f tn I JUST DETOXED OFF THE FENTANYL PATCH 150MCG. I WILL BE A MONTH TOMMOROW THANK GOD. WELL I'VE BEEN ON LYRICA 75MG 3 X A DAY AND I TOLD MY PSYCHIATRST YESTERDAY THAT I WANT OFF B/C OF THE SIDE EFFECTS I'VE HAD...ALREADY HAVE A METABOLIC DISORDER...PCOS WITH INSULIN RESISTANCE AND IT MAKES ME VERY DIZZY AND WEAK,ETC. MY PAIN DISORDER IS CHRONIC INTERSTITIAL CYSTIS AND VULVODYNIA BASICLY PELVIC PAIN SYNDROME. THE DOCS DON'T SEEM TO KNOW MUCH ABOUT LYRICA W/D.
Avatar f tn I need to find either a vulvular specialist or neurologist who treats pudendal neuralgia in the Miami, FL area. I have seen 13 doctors for extreme vulvodynia (specifically clitoridynia) which is getting worse by the day and have had no relief from every medication imaginable (Elavil, Neurontin,Lyrica, opiods, compounded meds, lidocaine). I need a non-medication approach like nerve block, but every neurologist I've contacted does not treat this disorder. HELP!!
Avatar n tn I suffered from undiagnosed vaginal pain for almost a year before I was diagnosed with vulvodynia. My doctor thinks it was caused by an e.coli and/or herpes infection(I never had an outbreak). The virus damaged the nerves. Well, I have been taking Lyrica for about 9 months, and it has been a life saver. I have almost no pain. I feel 99% better! Good Luck and hang in there!
Avatar f tn I have Chronic Interstitial Cystis and Chronic Vulvodynia and I.B.S., basicly Pelvin pain Syndrrome , etc. Well the pain is excruciating! I already feel like **** from detoxing! I am so exusted, and can only lay in bed with the heating pad for my bladder,but,etc,I walk around and try to do somethings and then feel like Im gonna collaspe. I am sooo sleep deprived....Ive tried trazadone,sereoqol, melatonin, valerian, kava kava, sonata,abmbian and the cr one, lunesta, rozarom.
Avatar f tn t take it long b/c I noticed nothing. I just started taking Lyrica 75mg 3x a day started about almost 2 weeks ago. I am confused b/c I know that Lyrica can cause some really big side effects and I can't tell if I am having w/d from detoxing off of fentanyl or is it Lyrica. I know it causes major weight gain and I don't need that. I know a girl who has been on it for a year and has my same med. problems.
Avatar f tn There is little point in self-diagnosing that there is a link to vulvodynia, it sounds like (if you have or had vulvodynia) you have something unrelated to it now.
Avatar n tn I had a supracervical hyterectomy 5 years ago, and cannot take estrogen replacement of any kind, due to the extreme constipation it causes me. 5 years later, I am now having pain in my vaginal and cervical area, which seems now to only get worse when I try to apply any kind of feminine lubricant. The pain is so bad at times that it throbs. I have been to the emergency room 3 times for this over the past 5 years. I have been reading about "vulvodynia" and wonder if I have this.
Avatar f tn I was recently diagnosed with vulvodynia by my gynecologist, after other diagnoses for vaginal pain. Then, I had a screening by a chiropractor that said my L1 disc was not right and that this could be affecting various organs including my vagina. Does anyone know of any research connecting these two thing? Has anyone been through a similar situation and can offer advice? Thanks!
Avatar n tn I have had vulvodynia for about 8 years now and it is one of the hardest things to treat.I have had very little luck with getting some relief.creams seem to make the problem worse,and they say not to do surgery because the problem just comes back.I really dont have any answers, for this really bad illness! It can destroy relationships,and marriages.Thank goodness I have a real understanding husband and even we have had our problems because of this.
401370 tn?1233324682 I as well have vulvodynia and have found no help! I have good days but for the most part i suffer on a daily basis.If anyone out there has found anything that would help hollar back at me.I will try anything that might help. suffering for 8 yrs now!
849259 tn?1244637661 Does anyone else suffer from vulvodynia. I am begining to think that I have it. Every test comes back negative, every examination looks normal, but I am in pain. I cannot have sex. Entry of any object in my vagina is complete and utter pain. I am looking for support groups does anyone know of any?
Avatar n tn Have you researched Vuestibulitus, or Vulvodynia? You should go to NVA.org and read up on this condition. I have this condition and dealt with pain, burning, stinging, itching for years after many doctors i was diagnosed with Vulvodynia. First I ruled out STDS, then followed all directions. Refrained from sex, started wearing only full white cotton underwear, wiping with baby wipes after peeing, wearing loose clothing and researching everything about the disorder.
Avatar f tn we continued the process 3 more times and every time he ejaculated it burned so i went on the internet to ask ?s i was tld that it cld be vulvodynia. im very scared can u please help? well my ?s are does vulvodynia prevent your chances of conception? also does having a current cyse to rupture decrease your chances if conception? could it be vulvodynia?
Avatar f tn Can vulvodynia cause bowel issues and what can help? i keep hearing a rumbling that seems to come from my anal area and gurgling in my pelvic area and side. Its been going on for 2 months. I am not constipated, my bowels are normal, and no pain when i have bowels. sometimes my vulvodynia makes me have pain in my anal area around my period..
Avatar f tn Can vulvodynia cause bowel issues and what can help? i keep hearing a rumbling that seems to come from my anal area and gurgling in my pelvic area and side. Its been going on for 2 months. I am not constipated, my bowels are normal, and no pain when i have bowels. sometimes my vulvodynia makes me have pain in my anal area around my period..
Avatar f tn Hello everyone. I was diagnosed with vulvodynia a couple months ago. I am struggling with this diagnosis... I'm have a hard time believing it's true. Fall of last year I switched from the birth control pill to the Depo shot in hopes of eliminating side effects. Initially I had no issues with the shot, but in November I became very ill, caught the flu, and my health plummeted. I was sick until February.
Avatar f tn If it doesn't go away, definitely check in with your doctor. I don't think that would be related to the vulvodynia but your doctor can better guide you.
Avatar f tn It seems that there is less awareness of vulvodynia even among medical profession. The word is vulvodynia. you may research on this word. Google the word vulvodynia.
9177436 tn?1402160034 I cannot use birthcontrol pills because I have also vulvodynia. When I don´t use birthcontrol pills I don´t have vulvodynia symptoms but when with birthcontrol pills I don´t have pms-symptoms. I would be very grateful for any suggestions / help!
Avatar f tn t mean a real picture. ha ha, just want to clarify that. But one thing to look into is something called vulvodynia. https://www.mayoclinic.org/diseases-conditions/vulvodynia/symptoms-causes/syc-20353423 Could that be going on? Muscle spasm and hormones can cause it.