Lyrica and occipital neuralgia

Common Questions and Answers about Lyrica and occipital neuralgia

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I've been diagnosed with Occipital Neuralgia and Trigeminal Neuralgia with Cervicogenic Headaches. I've had the steroid and botox injections, at the base of my skull. I'm on Lyrica, pain med. and zanaflex. I'm scheduled to have a facet nerve root injection in the vertebrae area c3, c4 under gen. anestesia by a pain mgt, Dr., I had a EBG- test today to see if there were any other compressed nerves by three of my bulging discs in my neck. If you live near Houston, tx. My Neurologist, Dr.
I was diagnosed with Occipital Neuralgia and was given a nerve block and a prescription for Amitriptyline. Does anyone have any experience with this drug? Thanks!
I have had CT, MRI and x-rays, they showed severe whiplash and bulging discs at c5 c6. I am under the care of GP and Neurologist and have been diagnosed with Occipital Neurolgia and Cervical Dystonia. We have tried many treatments (PT, many combos of meds, trigger shots), and have had no relief. They are now wanting to do Botox injections (insurance approved procedure), but I would like to know if this is a safe procedure? Side effects? Effectiveness?
I have been diagnosed with Occipital Neuralgia and vertigo for the last 3 years.I am writing to you for advice on which medication could be best for my symptoms.My General Practioner has prescribed me with Carbamazapine(800mg daily)for the Neuralgia and prochlorperazine maleate(3mg tablets to take as and when needed)for the Vertigo.
I think it's TN and occipital neuralgia. I've also had what I think was a very mild case of ON and the pain was really different--right behind my eye and it hurt with movement. What you're describing really does sound like TN and Occipital N to me. The only things that have helped were IV steroids followed by titrating up on neurontin (I've since switched to Lyrica, but they both work well).
I read your post the other day and then researched occipital neuralgia and was stunned to see there was a condition that fits what I have been complaining to my doctor about since January. She was thinking migraine, which I also have but I told her this was different the pain comes from my neck up and then behind my eyes with light sensitivity and has been there on and off for the last 3 months. I also get the stabbing pains in back of the head, top of the head and right eye.
I began taking Lyrica for neuralgia a couple of months ago and it worked so well that it even relieved my severe back pain that I didn't realize was caused by nerve pain! BUT, the 50 mg dose made me so sleepy that I couldn't think straight...for example, awhile back I left my office, saw a black SUV in the parking lot (I have a black Expedition), got in, and tried to start it before realizing that it was a co-workers! We doubled my dose (that was scary), and I felt better.
tried to diagnose it initially as Occipital Neuralgia but it surpasses the occipital region. They know that it is nerve related but have no idea what is causing it. It happens from the time I wake up until the time I go to sleep (I've learned to cope as best as possible) but it effects my daily life as I'm sure you can imagine. When it gets really bad I want to rip my hair out and just lay in a dark room and try to sleep since that is the only thing that fully takes away the pain/sensations.
I have been under much stress since my husbands heart attack and open heart surgery. He has Congestive Heart Failure and Cardiomyopathy. As a result my Trigeminal Neuralgia pain has broken through my medication. I have been taking neurontin, baclofin and dilatin which contained the pain. My question - what are some new medicines (beside Lyrica-I can't take it) which would work with or without neurontin? I would like to go to my doctor with some ideas. Thank you.
I had nauseating pain after the radiofrequency which left me with burning pain in the occipital region. I am now on Lyrica and M.S. Contin for pain which is really helping. I have not felt this well in a very long time. The Lyrica has caused weight gain, though I am not very worried about it, considering it helps so much for pain. Has anyone else had serious pain from needles (causing serious spasms)??? Anyone with my problem?
Was prescribed Lyrica, Oxycodone and Topamax. Headaches completely go away for 4-7 days after occipital lock. Meds keep headaches tolerable but I cannot get over the side effects of the Lyrica. Can you suggest alternative meds that I can discuss taking with my doctor. I blacked out three times and loss the use of my legs and vision for a short time. I also have frontal periventricular lesions and have a history of severe weakness and fatigue with visual changes. Double vision and blurriness.
I was diagnosed with O.N. 6 months ago. I tried gabapentin and Lyrica. This did nothing to help my pain, so I had a steroid injection to the Occ nerve. This relieved most of the pain but only lasted 6 days. I then had 2 rhyzotomies, and the benefits were also very short lived. I had 2 test blocks for cervineuralgia. Both provided no reduction in pain. Lastly I had pulsed radiofrequency, and only a 50% inprovement, and still requiring strong pain killers every 4 hours.
It is obvious that you have a very ATYPICAL case of trigmeninal neuralgia -- one that started in childhood and was apparently exacerbated during sinus surgery. From your description, much of the surgery that has already been performed appears to be the work of an ENT (Ear-Nose-Throat) surgeon. To be frank, as a neurologist I am not familiar with these techniques to clear the sinuses so I cannot go into much detail about the cause of the trauma to your nerves.
I was in similar condition due to occipital neuralgia, but my pain finally responded well to some newer meds. In the process, I discovered that long term use of narcotics actually worsened the pain for which they were originally prescribed. Please ask your doctors to try Lyrica and Keppra. These meds work in entirely different ways, so they can be combined to increase their efficacy.
I was referred to a neurologist, who dx's tension headaches, and rx'd Mobic, Skelaxin and PT and time off work (8 weeks). No help. I switched to Flexeril at the suggestion of my GP and that helps me to sleep. My neruo ref'd me to an anethesiologist for trigger point injections this week. He dx'd occipital neuralgia as a result of the positions I was probably in during surgery and said to lay off PT.
I suffer from constant pain - pain specialists here have tried injections - burning the nerve, botox and every possible drug - Lyrica, indomethacin, neurontin, dilantin, elavil - opiates make it worse (trileptal was the only one that helped but lowered my sodium to 118 within 48 hours at just 300 mgs a day) 3 neurologists have suggested just living life out on klonopin but i refuse (high gaba covers the pain - ironic - depakote and tomomax make it worse.
I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but much less common. The pain comes from irritation of the 9th and 10th cranial nerves) My pain has become nearly constant and spikes whenever I am talking, eating, riding in a car. Neurotin, Tegratal, and Lyrica do not help. I have seen four neurosurgeons. The concensus seems to be that I need skull base surgery to cut the 9th nerve and a couple strands of the 10th.
I've experienced Trigeminal Neuralgia on and off for years, the atypical sort mostly, with some real zaps and zings and extended pains that made me whimper. Now that the headaches are gone, I can write and ask about them. A couple weeks ago, I started having some truly horrible headaches, nothing like the few migraines I've had in the past. I had no more than my usual stuffiness caused by allergies and side effects from Avonex, so it didn't seem to be a sinus headache.
I have suffered through the years with Fibromyalgia/CFS, Hypothyroidism,Headaches,and now Burning Nerve Pain. The nerve pain and headaches have continue to worsen.T he med.s I take are Lyrica,Cymbalta, Ultram, and a Zanaflex, Topamax, Synthyroid. I live in a Hemispere of PAIN!! I did find a wonderful Neurologist, who helped diagnose Cervicogenic Headaches and a Debilitating Nerve Pain kown as (Occipital Neuralgia) that radiates from the base of my skull on th R.
tried to diagnose it initially as Occipital Neuralgia but it surpasses the occipital region. They know that it is nerve related but have no idea what is causing it. It happens from the time I wake up until the time I go to sleep (I've learned to cope as best as possible) but it effects my daily life as I'm sure you can imagine. When it gets really bad I want to rip my hair out and just lay in a dark room and try to sleep since that is the only thing that fully takes away the pain/sensations.
I have atypical facial tn and occipital neuralgia. Suffered from migraines since 9th grade. I started botox therapy in march of 2012. It is painful 22 shots in trigger points. Takes a few months to help. Three month intervals. But it does help. Not a fix but a free zone sometimes short but better. Can lower pain meds. I went off all anti seizure meds three years ago, tried them all, lyrica too,nothing helped. Nerve blocks, rhizotomies, acupuncture, etc. the botox does help. Some.
side of my face tingles, mynose lip and teeth go numb,too. In addition, I have Cervicogenic Headaches and Occipital neuralgia, Debilitating Pain that radiates from the base of my skull, to my forehead and behind my R. eye. I need a surgery called Occipital Nerve Decompression, featured on "Good Morning America", but not covered by my Insurance. I'm trying to spread awareness to help others and hopefully fund more research/clinical trials.
I'm still struggling with much worse TN and occipital neuralgia pain, and a new nerve pain going down the inside of my left arm. Plus my jaw muscles (also controlled by CN V) on the left side are very tight and I can hardly open my mouth. My neuro has me taking 300 mg of lyrica + 900 mg of gabapentin a day and it's not controlling the pain. I'm really worried about taking too much of these.
Thanks for using the forum. I am happy to address your questions, and my answer will be based on the information you provided here. Please make sure you recognize that this forum is for educational purposes only, and it does not substitute for a formal office visit with your doctor. Without the ability to examine you and obtain a history, I can not tell you what the cause of your pain is nor recommend specific treatments. However I will try to provide you with some general information.
tried to diagnose it initially as Occipital Neuralgia but it surpasses the occipital region. They know that it is nerve related but have no idea what is causing it. It happens from the time I wake up until the time I go to sleep (I've learned to cope as best as possible) but it effects my daily life as I'm sure you can imagine. When it gets really bad I want to rip my hair out and just lay in a dark room and try to sleep since that is the only thing that fully takes away the pain/sensations.
Have you ever experienced severe trauma to the head or neck, such as whiplash or a serious fall? What you describe is typical for occipital neuralgia or occipital neuritis. The occipital nerve branch (one on each side of the head) exits from the spinal column, and travels through a portion of the trapezious muscles (shoulder/neck) and progresses to the top of the head.
Thanks for using the forum. I am happy to address your questions, and my answer will be based on the information you provided here. Please make sure you recognize that this forum is for educational purposes only, and it does not substitute for a formal office visit with a doctor. Without the ability to examine and obtain a history, I can not tell you what the exact cause of the symptoms is. However I will try to provide you with some useful information.
Yes, I get severe headaches at the base of my skull. It often feels like I'm being hit in tha back of the head with a baseball bat--comes with an electrical shock sensation. I'm pretty sure it's "occipital neuralgia," mine came on at the same time as my trigeminal neuralgia. Neurontin (gabapentin) was effective when I got the dose high enough (titrate up slowly!) and now I'm on Lyrica because I can take fewer pills a day, though it's much more expensive.
Hello, jrwight. I came across your post and it reminded me of what I'm wondering now. I've not had any responses to similar posts in other places. I was wondering if you would read my post and if you have any input. My Post: Since I had a mere 2-3 days of success in my Facet Joint injections, my doctor decided that Ablation was the next step.
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