Common Questions and Answers about Levothyroxine gluten free
I started on the glutenfree and wheat, oat, rice etc. free diet before the thyroid crushed me and I started into hypo hell and I haven't started back since. I have been symptom free for 6 days PTL and my eyes are better also without the restasis just dry eye drops 4 times a day. How did you learn to eat properly. I cook for 6 everyday(assisted living in my home) and to go to a nutritionalist is very expensive.
Ok i have been so sick for 3 weeks chronic diarrhea with alot of stomach acid bile burning my butt ,had a gastroscope done dx with severe gastritis no h pyloric hiatle hernia and one hyperplastic polyp, removed 2 yrs agao i had 5 polyps remove so my body is growing them so i am on metamucil capsules absorbing the acid , food is staying in longer , so my IBS is almost gone, so food allergies is key now i am buying bob's redmills on line and seem to be losing wt no diarrhea no stomach bloating
You NEED to get the FREE T4 and FREE T3 tests. If you have only TSH there is almost a 0 percent chance that you would ever be medicated or treated properly to feel well!
Without the Free T3 and Free T4 tests we could only speculate what may be the problem.
many people need to have their FREE T4 in the MIDDLE of the range AND, that means in addition to, they need their FREE T3 in the UPPER 1/3 of the range. If you are at the low end of the range there is little hope that you will feel good.
I have been diagnosed with severe gastritis and I am presently eating glutenfree. I have been on the Tirosint since Monday and so far everything is ok. I did have a little pain but not like the synthroid. I also started on 2 weeks of prilosec to give me a break from the constant pain.
Correcting my iron deficiency and adding a B-complex were also hugely helpful. Going gluten-free fixed my brain, and all the above steps help with my energy and sleep. When D is taken in the morning or during the day, it helps you sleep better at night. Magnesium is also extremely important. If you can possibly find a functional medicine doctor in your area, they will know how to help you.
Here's a good article on D.
I have been on my Levothyroxine for 3 weeks.
The first week, I felt a bit crazy, jittery when I tried to lay down to sleep and so on.
Now I am very tired, I wasn't even tired before I knew I had a thyroid issue and was put on the stuff. I just don't understand why I feel worse taking something rather than feel better than what I thought of as I was feeling just fine before.
And I have a strange lingering after taste in my mouth all day?
This pure formulation consists only of T4, glycerin, gelatin, and water. Unlike some tablet formulations, Tirosint is free of dyes, gluten, lactose, sugar, and alcohol."
You can read more on the home page for Tirosint.
I have recently been put on Levothyroxine at 50mcg, however my doctor now wants me to increase my dose at 100mcg. My symptoms have shown no sign of improving and I have begun to lose weight.
My weight 3 weeks ago was 8 stone or 112 pounds. Now it is 7 stone 6 pounds or 106 pounds. This to me seems like quite a drop and my doctors are now keeping an eye on me about my weight as they do not want me to lose any more.
Is there anything I am doing wrong?
I, myself, had dermatitis herpetiformis, which is the skin manifestation, but it is completely controlled with a glutenfree diet. One of the main complications from continuing to consume gluten is lymphoma. I guess Hashimoto's might have a similar relationship. As with other autoimmune disorders, there is a higher rate of also having another autoimmune problem.
What are your Free T3 and Free T4 levels? Diarrhea is a symptom of over medication, but it can also be a reaction to fillers/binders or the dye in the pills.
If you'll post your Free T3 and Free T4 levels with reference ranges, that will help us see where your levels are, so we'll be able to tell if you're over medicated.
You're correct that Tirosint is a gelcap, with no fillers/binders or dyes. I was on it for 5 years and did well. The biggest drawback I saw from it was the cost.
I have been taking levothyroxine ever since. What would happen to me if I just quit taking the medicine all together? I hate taking a pill everyday and sometimes to get refills for up to a week. Just curious......
some say take iodine others say that can be dangerous. im pretty lost. tired going glutenfree, it was super hard and didn't seem to make much of a difference. I quit smoking in October, than a couple months later I go diagnosed and my goiter flared up. looking back I think I had a small one for at least a year but nothing like this till I quite smoking. symptoms are getting better overall. I also just got a cold. don't know if that could be putting my antibodies in overdrive.
I am going to start a new diet tomorrow. No more pop or bread and I will start making some glutenfree meals to try. I will also start taking vitamin d3.
Is it best to take the vitamin d3 at night or first thing in the morning?
I probably won't start treatment until after surgery to see if I lose the ovary or not.
I thought of something crazy at the dr... I have Hashimoto's, Hypothyroidism, and Hydrosalpinx (fallopian tube issue) All start with "H" Weird!
Tirosint capsules contain no dyes, gluten, alcohol, lactose, or sugar.
I was also wondering if your T4 med was adequate to raise your Free T3 and Free T4 levels high enough to relieve hypo symptoms. Would you mind sharing your thyroid related test results and their reference ranges shown on the lab report?
I take Levothyroxine, Olanzapine and have b12 injections all for 4+ years.
Again it doesn't matter what I eat, I tried glutenfree, FODMAP diet, dairy free.
Basically, every time I eat mucus appears and I'm sick.
Any help appreciated!
Ask for Free T3, Free T4 and Reverse T3 tests and please insist you get them. It is of utmost importance to truly know your thyroid function. Let me know your results if you decide for these, when you get them back.
Another interesting point regarding gluten, wheat and grains:
Most Hashimotos/ Hypothyroid sufferers have gluten intolerance and don't even know it!
Apparently my doctor says these are normal, yet when I am taking the Levothyroxine my Free T3 drops and my hypothyroid symptoms return. Am I missing something or am I the only one in the world with this problem? I presume the latter.
I am currently dairy and gluten free and my fatigue and constipation have cleared up since on the diet, however I retook my Levothyroxine and within 2 hours I was constipated.
The gluten molecules-mainly from gmo grains- resemble the TPO(Thyroid Peroxidase - an enzyme necessary for the signalling Thyroid hormone production) molecules and thus the immune system in its response against gluten, attacks the TPO in the Thyroid also!
You must go gluten-free as a trial ASAP!
Gluten is in everything!
I know there are people there who have had good results going glutenfree and equally there are people who have tried it and found it didn't work for them. It can be a bit of a controversial topic, some people have very strong opinions.
I personally haven't tried it but my doctor did suggest it might be worth a try.
That seems to have stopped but now I can't lose anything no matter what I do. I even went glutenfree...nothing. My hair was falling out and constipation is my closest friend. Occasionally I have tingling in my hands and sometimes my tongue gets numb. Dr seems to feel all is related to my weight. I have been to sleep studies, am not diabetic, blood pressure and cholesterol are good, any suggestions? My tsh is .001.
Free T4 - 14.9 (12-22)
Free T3 - 4.3 (3.9-6.7)
(Levothyroxine increased to 75mcg from 50mcg. The new doctor also thought my iron levels could do with being boosted so the iron was again added to my list of prescriptions)
The endo thinks all my symptoms are hypothyroid and will all resolve once I am on the dose of Levothyroxine that's right for me. It sounds too good to be true considering I have so many varied symptoms. I'm hoping she's right. Is it possible that she could be?
I totally agree with your endo about the hype over gluten free; there's no scientific evidence to support the need to go glutenfree and you can actually cause yourself to be gluten sensitive by going off it... You might do yourself a better favor by going off white flour products rather than going gluten free - I've done that and have lost weight and find myself with less neuropathic pain. Brain fog can be caused by a lot of things, not necessarily thyroid related.
Adequate D is very important to a hypo patient.
Unfortunately it seems that going glutenfree is being excessively promoted as the answer to many of our health problems. In my opinion I would not worry about going gluten free unless there is medical test evidence that you are being adversely affected by it.
It has been checked 3 times, and twice it was off. My doctor proscribed some medicine(Levothyroxine, lowest dose possible for now- .25 or 25) for 2 months. In 6 weeks we'll do blood work again and see if I still have the inner cold feeling.
Actually i think there is a pretty well documented link between autoimmune thyroid disease and celiac/gluten, and more thyroid experts are now recommending glutenfree diet for autoimmune thyroid patients, including Hashimoto's. here is some info i found:
Celiac Disease and Thyroid Disease
A significant number of patients with autoimmune thyroid disease also have celiac disease. The link between celiac disease and autoimmune thyroid disease is well established.
So About 6 weeks ago I found out I have hashimotos disease. Along with a possible gluten intolerance. I was started on synthroid 25mg but only took it for 10 days because I actually felt worse on it. I know it shouldn't even effect me for 4 weeks. I have another appointment next week, however right now I started taking zoloft for the anxiety.
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