My friend's "neurofibroma", as her doctor's call this disease, has this since birth. At first it was similar to a birthmark, and she lives and uses her hand as normal as she can. But as she grows older the mark grows bigger and looks awful. It was located at her right hand, affecting her thumb & INDEX FINGER
. Ten years ago she underwent surgical operation "debulking" and it bacame a little smaller. Now, it grows back even bigger, the size of a child's head.