Hysterectomy for pelvic congestion

Common Questions and Answers about Hysterectomy for pelvic congestion

hysterectomy

I have pelvic congestion syndrome, and i just meet with a vein specialist today. he told me he could do surgery, but only if i was done having children. i currently only have one child now, but told him i was looking to have another. he told me if i were to get pregnant that my pain would only increase, and could even make things worse. my question is. has anyone who has PCS, been pregnant with it? and if so how much pain were you in?
I was recently diagnosed with Pelvic Congestion Syndrome! Does anyone else have this or know of some good resources of information on this. Since I have had several children, and have also have interstitial cysitits, along with Meduallary Sponge kidney disease, with multiple stones and infection, I spend a lot of time in research to find answers. I am also an IC support group leader and work with other Pelvic Pain organizations, yet find little to nothing about this condition even there.
Hi Lisa, I was diagnosed with Pelvic Congestion Syndrome in April 2009, and had the embolization done in July 2009. I was also told that it does not always take care of the problem. Two months later I am having symptoms again, not as bad as the first time, but if I have to have this done again, I will see a vascular surgeon. What you said in your letter to Abby made alot of sense, because I think the blood just finds another way and dilates other veins.
I do not know of anyone that has been as young as you with this problem, but I too have pelvis congestion syndrome. Pelvic Congestion Syndrome can usually be treated by a procedure called “transcatheter pelvic vein embolization.” I am booked to have this surgery in 2 weeks. Embolization involves blocking the blood flow in the problematic vein(s), allowing shrinkage and relief of symptoms.
I am 50 years old, had a hysterectomy (ovaries/uterus/cervix removed) I have pelvic congestion syndrome pain for a year. I had this dibilitating pain before and after my hysterectomy. Has become much severe that I have to stay laying down all day, I cannot work any longer.
Hello Everyone... Had a sub-total hysterectomy 4 weeks ago. They left my ovaries and 1/3 of my cervix. had my "last" Period on 8 june 2006 (4 days before my op 12th June 2006). So my next bleed would have been due on the 6th of July. Had no problems with the op itself, but low and behold, about 4th of July , I started having whatI can only describe as period pains and started to bleed on the 6th of July for 4 days straight. Went to my GP and was told that i was a medical mystery.
Has anyone else dealt with pelvic congestion syndrome with the following symtoms and do they match up?: -pain...lower abdominal left side and center, constant dull pain, stabbing sharp severe pain with activity, sex and standing or sitting, basically relieved only when laying flat...
Hi, It would be best if a hysterectomy can be avoided as you are young. Pelvic congestion, pelvic infection and endometriosis can be the few reasons for such symptoms. The option of birth control or hormonal pills may give relief and you can give it a try. Hope this helps and good luck.
After the MRI test, it showed I have Pelvic Congestion Syndrome. Now I believe all this nausea is caused by my GYN problems!! As a young woman I had cyst removed but remember them also telling me I had endometriosis. I am scheduled for a Hysterectomy next month hoping it will cure my nausea! But Im scared of losing another body part just because I dont need it!
Hysterectomy for benign, non cancerous, indications is one of the commonest surgical procedures in women, but the association between the procedure and the increase risk of cardiovascular disease (CVD), heart attack and stroke is not fully understood. Hysterectomy has traditionally been considered the method of choice for treating a variety of benign, non-cancerous, gynecological disorders due to the low surgical complication rate and definite cure of these diseases.
It is hard to find info on PCS, but if you go to our IC Support website MOARK IC there is a menu item on there for Pelvic Congestion syndrome with some links and articles etc. The other ways it is treated is chemically using strong birth control meds, to stop your cycles, I forget the name but they can also basically stent the veins themselves that are an issues, and at times they do a complete hysterectomy.
I had the hysterectomy b/c of very heavy bleeding that would last for about 2 weeks, off a week, and then back on for another 2. I also had really bad cramps. They found out I had pelvic congestion. So they took out my uterus and cervix. Well bleeding is gone but I'm still getting bad cramps. I've had another ct scan a couple of weeks ago and my doc couldn't find anything so he knocked me out and shoved a tube down my throat (not sure of the name but that's what they did).
I'm 20 years old, and have no insurance yet. I am hoping someone else out there knows what this is. Thank you all for your time in reading this, I look forward to hearing back from you.
BP always normal, (110/70 – 120/80) even throughout entire pregnancy. Chronic pelvic pain of 8 years prompted surgery for endometriosis in March 2000. November 2001, gave birth to a healthy girl, no known complications although very difficult labor. Very run down after delivery with chronic congestion, fatigue and pain. After 8 months of continued congestion, fatigue and pain went to doctor. Had positive ANA but negative for arthritis and Lyme.
My doctor said it's a cyst, did a ca125 ( result ok) and said no further intervention unless I want a hysterectomy to control my endometrial pain. I don't thank you very much MR doctor. I am in pain for 3 out of 4 weeks. Heavy congestion pelvic area, cramping. Becoming increasingly incontinent. Bloated and severe lower back pain. I know my doctor thinks I am a hypercondriac or seeking strong pain killers, which I am!!!
They finally listened to my pleas of pain in my pelvic and did a pelvic MRI on me only to discover I had Pelvic Congestion. I was dumbfounded. Everything I had read stated that only woman who have had multiple pregnancies develop this syndrome. After a failed IVF, and a couple attempts at chlomid, and folistm, I was still childless. My doctor then proceeded to give me the Pelvic Congestion Diagnosis and sent me away telling me to keep trying.
After you had total abdominal hysterectomy preserving both ovaries the most probable explanation for your white vaginal discharge may be most commonly due to Pelvic inflammatory disease or pelvic congestion syndrome or adenocarcinoma of ovary or epidermoid cyst. These diseases cannot be diagnosed with PAP smears or other infective tests.So have a PET scan test or at least a CT-MRI done to rule out all other causes.
had a partial hysterectomy July 30th 2011 due to very painful pelvic congestion. In October I started to have back pain and it has gotten worse since. I have pain near my remaining(right) ovary, pain in my right hip joint and lower back pain. I have recently discovered that the pain starts and is horrible when my ovary starts its cycle. It is hard to walk because I have a stabbing/pinching in my hip and I am very bloated and sore in my lower back and abdomen.
the Dr also thinks I might have the type of endo that is inside the uterus. I was also diagnosed with Chronic Pelvic Congestion (like varicose veins around uterus).. The dr thinks if the shots help then I will do well with a hysterectomy. I guess my question is this: Has anyone suffered with any of this? And taken Aygestin? Thanks!
in my last surgery it took about 4 hours to remove the scar tissue. My ovary hd been missing in actin for months - it had attached itself to my pelvic wall. (more than one time). I see my doctor next week - I think I finally can have some amunition as I ask for additional blood work and CT scan.... I think I'm going to check into the frequent laparoscopy plan.... What tests are your doctors performing? What other symptoms are you experiencing?
my gall bladder removed, Functional Dyspepsia, IBS, and Pelvic Congestion Syndrome. Finally my GI doc told me to see my GYN for the PCS. He recommended Hysterectomy under suspicion of Endometriosis, WHICH CAN CAUSE NAUSEA!! Needless to say after they removed everthing and found Adenenmyosis, I no longer have any nausea!! Also my uterus was double the size which was compressing on my intestines and colon, the reason for the IBS diagnosis.
I also just bought a new book called Heal Pelvic Pain, by Amy Stein, it is more for pelvic floor dysfunction but does help to rebuild the pelvic floor safely... I think the book is a good companion, to use a long with getting a pelvic pain PT! Hope that helps you!
Okay so I have been told that is called PCS (Pelvic Congestion Syndrome) I was also told that they should have fixed it during surgery I hope they did.
-) Further, an enlarged uterus can cause what is called 'pelvic congestion', which in a nutshell, is enlarged veins in your pelvis. With the weight of the uterus pushing where it shouldn't, blood flow is slowed and the veins enlarge, adding that much more discomfort. None of these things are serious, but they can sure make you miserable. Right now, I'd be wanting to get to the bottom of why your uterus is enlarged and take it from there.
He is suggesting a total hysterectomy. I am late 30's. I am wondering how rare this condition is and if this will pose more risks for sugery with my condition. Any suggestions?
Clinically we see patients who have IC symptoms immediately after a hysterectomy or pelvic trama. In your case the symptoms started a full 4 weeks post partum and there was no history of bladder trama. The question is-- are your symptoms related to the recent birth or a separate new problem that happened to occur 4 weeks post partum? There seems to be no association of the symptoms to the post partum bleeding or the D&C.
i had a hysterectomy 5 1/2 yrs ago for pcs (pelvic congestion syndrome/vericose veins on the inside like all over the pelvis) anyways they did it laproscopically and i am miserable. i look in in the mirror and stare in disbelief b/c that is not my stomach. its like i have metomorphisized right before my eyes. i don't remember ever having been so bloated. i am very tired and can't be up on my feet or sitting up for too long at a time.
I was diagnosied with Pelvic Congestion Syndrome. This rarely shows up on test because it can only really be seen when you are standing!! When you lay down the blood flow goes back. They wanted to do a hysterectomy but I found a pelvic pain pT who taught me to move the blood flow around. I would encourage you to check into this condition and just see if the symptoms fit what you are experiencing!
For sinusitis, golden rule for chronic sinus congestion is steam inhalation. Inhaling steam from a bowl of hot (but not boiling water) may help to soften, and loosen, the build up of mucus in your nose. This will lessen the dizziness and nausea. So do it 2-3 times a day. It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor.
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