Hysterectomy for interstitial cystitis
Common Questions and Answers about Hysterectomy for interstitial cystitis
hysterectomy
Bowel problems can easily be mistaken as gyn problems. So can bladder problems such as interstitial cystitis. There are studies about women undergoing hysterectomies because their interstitial cystitis (IC) went undiagnosed and then they're left with the (IC) pain and problems along with those caused by hysterectomy.
Hysterectomy is one of the most overused surgeries. Not only that, it is associated with a number of problems in the short and long-term.
I was diagnosed with HPV 7 years ago- i had every procedure and medication known to man until in 2006 I had a full hysterectomy due to HPV-cervical cancer at the age of 21. Totaling I have had 25 surgeries and since the hysterectomy I had the most painful bladder pain. I was later diagnosed with IC, and prescriber 100 mg of amitripteline. It only works for a very short time and then the pain is back full force.I have had the bladder distention and many trips to the urologist.
Quick history: tubal, hysterectomy, recent colonoscopy, current interstitial cystitis. The surgeries were 2002, 2004 and the colonoscopy was in December 2012. They couldn't get me asleep so I was moving a lot. Now for a week I have been passing gas through my vagina when I pass normal gas. Any ideas? So far it's only gas passing through. Thanks in advance.
Hi - I was recently diagnosed with interstitial cystitis. I also have Sjogren's, fibromyalgia, and a variant on the MEFV gene. My doctor prescribed Elmiron which I just started. Is there a connection between interstitial cystitis and Sjogren's, fibromyalgia, or the inflammatory response from the genetic variant? I'm wondering if there are other treatment options besides the medication that will also address the other issues.
It is possible that you have something called Interstitial Cystitis.. Of course
your doctor will want to rule other possibilities out first, but if they do not
find a cause for you pain ask them about the possiblity of having IC.
The Elmiron website has a questionnaire that aids in diagnosis and lets you know
how likely it is that you have IC. If you would like some links to info on
it feel free to pm me!
My doctor has told me that I probably have Interstitial Cystitis, but is not sure. But some of my symptoms don't make sense with this diagnosis. For instance, the pain I have been feeling is in one specific spot on the left side of the pelvic/abdominal region and is not in my bladder. I'm not exactly sure where it is anatomically, but I'm wondering if it could be around a female organ.
in one week after my hysterectomy I started experiencing all the signs of interstitial cystitis after being tested over and over again and told that I had no kind of infection or STD and no reason for the pain that I was having I stop by a local doctors office and beg him to help me he is a urologist on spot he took me straight back and diagnose me immediately with interstitial cystitis I have seen to specialist since then for this disease they can find no signs of it but both agree with a first
He believes it may turn out to be interstitial cystitis, based on my symptoms and severe lower abdominal pain that has not been explained by gynocological or gastrointestinal testing. The only catching point is....I'm nauseated. The more my bladder hurts, the more nauseated I get. He wasn't sure if that played into it or not. Has anyone else with IC ever experienced this kind of nausea? Could it just be my body's reaction to pain?
He dismissed my gps request for a full hysterectomy saying I was too young, but despite my age I have no quality of life! now my gp is sending me for a second opinion. I am so fed up with all this pain and no relief. I can not go on like this but I am also worried about having a full hysterectomy. I am 33 and have no children althought I do not want any. Any advice please.
I seem to have chronic bladder problems, like frequent urination, bladder spasms, my urine samples usually come back negative. Could this be Interstitial cystitis?
//www.medhelp.org/forums/Interstitial-Cystitis-IC--Pelvic-Pain-Support-Forum/show/412
The expert forum where you can actually ask the doctor here on Medhelp is here also:
http://www.medhelp.org/forums/Interstitial-Cystitis-/show/264
Hope this helps!
I was tested and have Interstitial cystitis which is just another gift that Fibromyalgia gives us. I don't have the pain when urinating but do have the frequency urges especially at night; as soon as I lay down the pressure is there and is still there immediately after I go to the bathroom. Does anyone know of something I can do to stop the pressure? I would love to get some sleep.
There are many things that can cause this pain-burning it could be chronic cystitis or interstitial cystitis. The symptoms are the same and a good urologist can help diagnosis the problems. Either way you pain, burning and bladder pain. The self help things etc. can help you while you see a diagnosis!
We have an IC support forum here on this site actually two, listed below. There is actually an article on the physical relationship on the first forum.
Radiation damage to the bladder during treatment for pelvic cancers can cause radiation cystitis. Certain chemotherapy drugs can cause a chemical cystitis. Interstitial cystitis is in the category of nonbacterial cystitis caused by an inflammation in the bladder wall. Cure for abacterial cystitis required long time therapy and the response to treatment is usually poor.
I am currently in the process of being diagnosed with interstitial cystitis, so I am aware that vuvlodynia and interstitial cystitis sometimes go hand in hand. My question is: What are the chances that this could be herpes with absolutely NO visible symptoms for ten days? Ive never been diagnosed with herpes....and Ive had two children...but not sure if I was tested or not back then, but have never had problems in the past. The pain started 10-12 days ago. Thankyou!!!
Hi,
Well, same basic history here. However, I was diagnosed with Interstitial Cystitis, strange, this is the third post today where I have mentioned this, any way, it is also known as painful bladder syndrom. Unlike an UTI you do not have to present with the classic UTI symptoms such as burning, urgency, inability to empty the bladder etc. See a urologist. Also this site maybe of some help:
http://kidney.niddk.nih.
Hi, Overactive bladder and Interstitial Cystitis (IC) are two common disorders in the family of hypersensitivity disorders of the bladder. Both can cause urinary urgency and frequency. Overactive bladder is not asssociated with bladder pain, however IC is usually associated with pain, pressure or discomfort in the bladder, usually worse with a full bladder. Your symptoms of "pressure and irritation" make IC more likely.
//www.medhelp.org/forums/Interstitial-Cystitis-IC--Pelvic-Pain-Support-Forum/show/412
The expert forum where you can actually ask the doctor here on Medhelp is here also:
http://www.medhelp.org/forums/Interstitial-Cystitis-/show/264
Hope this helps!
I believe it's interstitial cystitis. The elmiro is used for this treatment, although i'm not sure how the hydroxyzine would play a role.
Interstitial cystitis is a possibility. I'd see a urologist and talk to them about it.
I have IC and it started out as just being severe pain every time i went to the bathroom. Not a burning feeling, just sharp horrible pain. They kept testing for bladder infections but it was always negative. Ask a urologist about the possibility of interstitial cystitis. They took two years but finally diagnosed me.
The only real way to find out if you have it or not is a tiny surgery.
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