Hysterectomy endometriosis side effects
Common Questions and Answers about Hysterectomy endometriosis side effects
hysterectomy
What I can do it retweet your question and see what my Endosisters have to say who have had a hysterectomy. I can find out what they used to help them with the side effects.
But the risks and side effects of hysterectomy involve a much longer list than prolapse. I had a hysterectomy 9 years ago and speak from experience as well as the knowledge I have gained since undergoing this damaging surgery.
The bladder and bowel descend without the uterus to separate them and hold them in place. Even absent prolapse, this often alters their functions. I experience intense pain when both my bladder and bowel are full. And they sometimes do not empty completely.
m wondering if any of you who have had a hysterectomy due to endometriosis, who are around my age (and were not already in menopause prior to your hysterectomy) might be able to share your experience including if you have are experiencing any life-long repercussions from this surgery and if you have any suggestions of what I might think about or ask about prior to having to have this surgery.
Thank you so much Ladies!
There are plenty of birth control/hormone drugs that can be tried to reduce symptoms (but be sure you research them before taking because some, like Lupron, have permanent severe side effects that stay even when stopping the drug). And usually excision surgery would be performed before the removal of organs.
Hello. I was wondering if anyone has had a good experience with lupron to treat the pain for severe endometriosis?
My pain is so bad that I spend 90% of my time in bed or lying on the couch. I know that lupron can have horrible side effects, but I don't think the quality of my life could be much worse.
Please, I'd love to hear anything positive or negitive about experiences with this drug. I really hope to hear that it's helped somebody.
Thanks!
I want to recommend, crwstar, if you have any endometriosis, ask them to excise, not laser burn. I did this for my hysterectomy, but was burned when I didn't know it with the first laporotomy. I later learned that it is better to cut than to burn, because the body treats the burns like foreign bodies and more scarring can happen. Adhesions are no fun.
( no I was hoping the hysterectomy would solve my endometriosis pain. I thought they could scrape out the scar tissue during the hysterectomy? Why do you wish you hadn't had the hysterectomy? I'm in so much pain today. Usually it's bearable. Dr just prescribed bed rest and Vicodin and if not better by Thursday she will do another ultrasound. This is so discouraging. She also ordered blood work that would show cancer risk. Now something else to worry about.
Also, hysterectomy (with or without ovary removal) has its own set of long-term after effects since our organs have LIFELONG functions.
I hope you can find the information you need to get the best possible care for your condition. Best of luck!
If someone has recommended a hysterectomy for endometriosis, look for another doctor. A small fibroid is not a reason to get a hysterectomy, either. Endometriosis can be treated by laparoscopic surgery, but it is to remove the endometriosis, not the uterus. Are you sure your doctor wanted you to have a hysterectomy?
Here is a link that describes endometriosis. www.ncbi.nlm.nih.
The last two ultrasounds showed the Endometrial stripe being normal in thickness but small areas of echogenicity in the endometrial stripe are seen. I have tried the Lupron shot with side effects that I could not continue with. Altthough the Lupron shot did cease my pevlice pain, once off for a month the pain returned and is constant. My Dr. is recommending a total hysterectomy and I am not sure what to do or if there are any other options.
I have tried several different hormonal therapies and am unwilling to try anymore due to the side effects. My doctors are now talking hysterectomy. I can't have surgery until at least Sept due to insurance reasons. Any recommendations??
after a year the pain kept getting worse and in 2009 I did have surgery and did another 6 months of lupron and the side effects were the same, the only difference is that this time, I actually had NO pain at all with my first AF after treatmeant, this was like a mircale for me, I guess the sugery/lupron combo was a good one for me.
If I had to this again, I probably would, the main reason - I have no children and a hysterectomy is not an option for me.
Hi, I am currently 38 years old & am a mother of 2 boys. I had a hysterectomy with the removal of one ovary & my Fallopian tubes going on 3 years ago. I had severe endometriosis. I’ve recently started having some stomach pain on one side. It just so happens to be on the side of the remaining ovary. I thought I had an ovarian cyst, so I mentioned it at my yearly OBGYN check up a couple of weeks ago.
The pains associated with the endometriosis became more intense and unbearable over the years and I opted to do the hysterectomy last year, hoping that I would get some relief.......it was not to be. My doc removed one ovary, as he did not want me to go into menopause so soon. I really wish that he removed both. The pain is unbearable especially in the rectum. He prescribed Lupron with I refused to take because of the side effects...
Because it releases hormones only locally to the uterus, women who use them have very few side effects. I have not had any patients who experienced the horrors that you have read about! It sounds to me like some of the people who are writing may be confusing the Mirena with Depo Provera--those are definitely side effects of the Depo shot.
In fact, the copper IUD has been a bigger cause of problems than the Mirena in my clientelle.
I had a total hysterectomy in January of 2008 because I had endometriosis everywhere. Since that time I still feel as though I have the same pain from the endometriosis as prior to the surgery. Also I have some bleeding after sex. Is the bleeding something I should be concerned about? Can endometriosis spread to other organs in your body? I guess I'm not as educated on this as I should be.
If anyone knows please contact me.
Thanks for your help.
Oh & I had a large "chocolate cyst" hemriding and leaking blood and bad toxins into my body poisoning me. The cyst was covering my ovary and really large that's why they had to do partial hysterectomy. & endometriosis cuz it was an endometriosis type cyst. But he didn't no it was so bad until he got in there, so now I have to do a lot of treatment to stop the growing and from it getting so bad before I have to have a complete hysterectomy.
I have DIE (deeply infiltrated) endometriosis even after my complete hysterectomy because a hysterectomy is not a cure...the endometriosis lesions/implants must be cut out by a specialist and their are very few. so I would suggest you come on over to the endometriosis board so maybe we can help you find a specialist...they actually cut the disease out...they don't burn it...they don't take organs unless absolutely necessary and most will look at your medical records for free...
I had endometriosis for 11 years until I finally had a hysterectomy in 2000. Mine started right after my son was born in 1989 and the doctors around here didn't know anywhere near as much as they do today. I had to go through the "hysterical female" treatment until I found the right doctor and as someone else said a laparoscopy. Mine was severe and was on both the inside wall and behind the uterus wall effecting my bowels. The pain felt like it was ripping my insides apart.
Mine was on the outside, but I also had a large fibroid pressing on my bladder and later, at the time of my hysterectomy, the dome of my bladder was found folded and stuck to my uterus with the sticky endometriosis. I was having to go it seemed (and sometimes literally) about every five minutes.
The fact you have a strong tie on with your period makes endometriosis seem a likely culprit. Gold standard to verify you have it is surgery. I didn't know I had it until my first laporotomy.
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