Humira and fatigue

Common Questions and Answers about Humira and fatigue

humira

Thanks for the response. How is your son responding to it? What was he taking before? My wife started Humira about two months ago. She was taking asacol for ever it seems but it just wasn't doing anything for her. So far, she really hasn't seen any response to the Humira. Is there a time period when she'll start feeling the effects of the new meds? Thanks. I hope your son is responding well. Take care.
he thinks that i will get some help from humira and i am to start that this week. i have done searches but only find info on humira induced lupus, nothing about treating lupus with humira. is anyone on here taking humira for lupus? any advise would be greatly appreciated. thanks!!
Thank you so very much. You have made me sane knowing that my pulsating over the left eye and left side of my face pain approximately two days after the Humira injection. Lat night, my head felt horrible, somehow I was able to sleep after taking a Zyrtec and 3 (500)mg of Tylenol. I have been on Humira for 18 months and it works according to my recent colonoscopy. As one Nurse said, it's as good as long as you can tolerate the side effects. The headaches are getting worse.
Debilitating fatigue (Remicade but not Humira) Mood swings and constant cranky, withdrawn feeling -- abnormal for me even when sick (Remicade but not Humira) Deep muscle pain and tightnes (Both) Terrible pelvic pain, testicular swelling and urinary issues (Both) Pudendal nerve problems (Both) Decreased testosterone and libido (Both) Pulsating headache along ear, jaw and trigeminal nerve (Humira more than Remicade) Jaw tightness (Remicade more than Humira) High blood pressure and fast heart rate
She was relieved that I asked to be off of one of them because, well, for so long I prefered to be drugged up and numb rather than actually feel anything. Three weeks went by and I started feeling really gross. I have nausea, body pain, headaches, fatigue, and I slept for about 3 days straight.
Other co-existing possibilities are LupusCeliac, or ulcerative colitis, ankylosing spondylitis, malabsorption syndromes like sprue, fibromyalgia and chronic fatigue syndrome. Do discuss this with your doctor and get yourself examined. Take care!
My BD has been maintained by Humira 40Mg weekly and Imuran 200Mg daily for over a year. Prior to that Humira was bi-weekly for about 8 months and Enbrel was used for about 8 months prior to it. All in combination with Imuran 150Mg or 200Mg. During this time I have had uveitis (lasted for about 4 months) followed by gastritis (8 months), followed by strep throat leading to chronic tonsilitis and re-occuring bronchitis flares for 6 months that triggered asthma and now back to uveitis...
Now got severe osteoarthritis in both hips, feet and hands and registered disabled. Many flares and bouts of severe rectal bleeding requiring inpatient care on IV prednisolone and nutrition. Dx breast cancer Jan 2003, 2 cm tumour stage and grade 2, 3/18 lymph nodes affected. WLE and total axillary clearance. FEC x 6 chemo and 45 gys rx. Colonoscopy in Florida 1996 showed pan crohn's colitis with crypt abscesses and ulcers.
I still have the rash (mildly) and the fatigue (feel like I haven't had a good night sleep. Thought it was from the Humira. My GI said he doubt's it is from the humira, but did all the lupus tests all which came back negative, except for the a-SMA. It is weekly positive at 1:40. My liver functions are completely normal and have always been completely normal. I have a history of being on Immuran for about 7 years, which was not ideal in controlling my Crohn's, hense starting Humira.
I have had ankylosing spondylitis for 6+ years. I take methotrexate and Enbrel (alternative to Humira and Remicade). I live a virtually pain free life except for an occasional flare. These 2 drugs gave me back my quality of life and hope. Hang in there. I believe quality of life is important and there are drugs out there to give that to us. Don't be afraid to try the medication. Be aware that you need to be more careful about getting sick.
I've been battling some nasty side effects of the arthritis med and I stopped it. The med makes me so sick and tired and I honestly don't think it was helping. I am willing to take a disease modifier and be this sick but not willing to be sick on dilobid, if that makes sense? I still haven't heard back if I have been accepted for the prescription program for Humira, I am assuming it takes awhile.
I'm 71 weeks in to my second rund of hep treatment (I relapsed first time) and i'm also taking shots of Humira and pills of methotrexate and althought I never have a pain free day, I'm doing pretty well.
BTW my crohn's WAS in remission until recently and I'm on Humira hoping that it goes back into remission. I highly doubt that ANY doctor would do a bariactric surgery on a patient that has their Crohn's disease that is fairly active. I had a heart attack last year and actually lost about 40 lbs. Yes it is hard but you can do it!!!! Again Good Luck!!!!!!!
You were giving updated reports on your viral load and alt ast numbers. Its been awhile and just curious as to where you stand now.
I do not feel any fatigue (just for the first day or two after increasing dosage) and actually have more energy. Everyone will have a different reaction but it is important to give it a bit of time to see if the side effects go away once you are used to it.
sulindac, injectable humira and methotrexate. With the sulindac, espectially, the twitching diminishes to low intensity, and spasms become occasional. But then I have flare ups, like now, with viciously jumping calf muscles and spasms in the legs and feet, so today I'm also starting a Medrol Dose Pak. I also got relief if I took a big dose of flexeril right before bed, but that left me feeling like a zombie the following day.
after a rough year of being treated with multiple anti-rheumatic meds with overall poor response, chronic pain, and chronic fatigue, I have FINALLY found some relief on the current mix of meds I'm taking, which are a bit extensive but "doing the trick" in helping to control the pain, stiffness, and swelling - prednisone (currently 5 mg per day but we are tapering to get me off it completely hopefully by mid-Dec), plaquenil, imuran, humira, Celebrex, and elavil (low dose for insomnia &a
All of my blood tests for ESR, c reactive, inflammation were supposedly normal, but I consistently have elevated liver enzymes. I am unable to work b/c of the pain and fatigue and percocet barely takes the edge off of this recent pain whereas NSAIDS have worked with my arthritis pain in the past. I am concerned that this is lymphoma which I have a family Hx of this disease and there are documented cases associated with humira use.
you can get that rash and the fatigue and joint aches from ANY UV rays, whither it's from the sun, lights in your home or office, and cloudy days, or tanning beds. All UV rays will cause all that pain and other symptoms. The Lupus foundation has a magazine called Lupus Now that has been an immense help to me. More so than the Sjogrens site. I truly think you have Lupus. You may not get a positive diagnosis from the doc, but you really don't need it.
I also have RA and I'm on my 2nd round of tx. I take Humira, Methotrexate and Celebrex. I was also told that if I have a major flare that they would have to pull me off treatment. Since they won't let me take Prednisone while on tx for the flares, they started me on a maintenance dose of Celebrex at the time I started tx. This was a recommendation made by Shands at the University Florida.
Currently In the middle of a 5-week bout of gross blood in stool, along with joint pain, ulcers in nose, and extreme fatigue and feeling unwell. Colonoscopy and upper endoscopy were normal so source of bleeding is evasive. This has happened before, had CT scans and barium studies in prior years that really didnt show much. Blood work normal, sed rate normal, crp. Normal, not anemic. Do not have diarrhea, never really have.
I do have psoriasis and psoriatic arthritis but seems to be under control and not experiencing a flareup. I take 2 mg folic acid daily and vitamin D as well as Humira and MTX injections. I also take Nexium, Celebrex, Zyrtec, and Cymbalta. Occasionally take Percocet for pain. Rheumatologist does not see this as a symptom of psoriatic arthritis but incresed folic acid and added vitamin D. Tired of being tired!
I've had to quit work due to the fatigue, and I sleep constantly to deal with the pain. When I did work I had to take Immodium daily just to be able to work and not be in the bathroom constantly. Then when I did have a stool it felt like my stomach was going to drop out of my rectum. I have no medical insurance, and will have to find a job with insurance just so I can get this checked out.
MTX last Fall 2010, so my rheumy had already switched me over to Imuran ( at the max dose) when he decided to add the Humira after we discovered that the prednisone/Imuran combo wasnt doing the trick (swelling was down but I was still having a lot of pain in my fingers, hands, and wrists plus stiffness)...we added the Humira in mid April and after it appeared to be working (about 2 months later), I started tapering down the prednisone from then 20 mg per day already down to 5 mg per day now...
I have had Rheumatoid arthritis for over 10 years. Now taking Humira and started on Adderall 2 months ago in hopes of helping with major fatigue. It seems to help but still have days where I need ice packs and cannot move. I know this probably does not help but I am going to continue on both meds. Hoping and still searching for perfect health!
I was hospitalized for 5 days last August with pneumonia, similiar story as you as well as really bad back pain had persistant cough and fatigue. I suggest pursue a medical answer as I have recently been diagnosed with myocarditis and pericarditis by cardiologist and am on medication.Am feeling a lot better although I know my limits.
My Rheumatolgist did some blood and urine work and found high protein levels in my blood. She rechecked it immediately and those results were normal. She waited 3 months to check them again, and they were abnormal again. Now I am headed to a blood specialist, and have no idea what is going on! If anyone has some clue, I would appreciate it.
The last comment I can say is that I still workout any muscles I can depending on what is hurting, mostly abs and select cable/swissball exercises. Also I have taken methotrexate and Humira on time for the past year.
My medications are Humira q14 days, started 1 year ago. 5 months ago, I had 1 week of night sweats fatigue and a butterfly rash. I still have the rash (mildly) and the fatigue (feel like I haven't had a good night sleep. Thought it was from the Humira.My GI said he doubt's it is from the humira, but did all the lupus tests all which came back negative, except for the a-SMA. It is weakly positive at 1:40. My liver functions are completely normaland have always been completely normal.
I never tried the injections but the Doc skipped them because there was no visible reduction in the swelling of my hands with the oral application. I Have taken Humira, Enebril, and Orencia. Humira made all the hair on my legs fall out and didn't help. Enebril just didn't help. The Orencia has worked wonderfully so far but I still have some pretty incredible flair ups. The injector that comes with Orencia is the bomb. Hair thin needle. You barely feel it. Easy to use injector too.
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