humira and crohn's disease

On doctor suspects that because I have not taken Humira injection for about a month that it might have played a role in this mystery, Has anyone had anything similar to this or have insight on success and failures from Humira and Remicade, I really appreciate any and all responses and insight

I am 31 and was diagnosed with crohn's disease about two and a half years ago, but had symptoms for years before. I used to have problems with making it to the bathroom in time which was a horrible feeling, but I havn't had much pain. Since being diagnosed with crohn's I have tried a few different medicine's. The first was Prednisone, then ASA, then another, and finnally Methotrexate and prednisone together which seemed to help tremedously.

The TNF Blockers work really well for the reactive arthritis related to my Crohn's Disease [Crohn's Colitis]. However, I have found that to varying degrees Remicade and Humira give me the following side effects. I am trying to find out if these are normal side effects and if anyone has found a way to manage them. Physical therapy is not giving me enough relief at this point.

ive had crohn's disease since 1994 and i have been on all meds myh last resort has been remicade treatments , and it has been working the only draw back for me is my body aches after treatment....and also i have to get put to sleep because of the side effects...such as tightning of the chest , nausea, vomiting, hives and ect. i get it all...

I have been a type 1 diabetic since age 10--53 years now. Approximately 30 yrs. ago I started having a lot of bloody diarrhea, etc. It took 2 yrs.+ to clear it up and I went for approximately 20 yrs. without any symptoms. When it started up again I was diagnosed with Crohn's and have been on various treatments since then. I have been taking Asacol for years. I have also used enemas--sometimes daily and sometimes twice a day.

Hi, welcome to the Crohn's Community Forum. I have had Crohn's for 40 yrs, dx when I was 24 yrs old. Cortisone IS used to treat Crohn's, but now only for short periods, say 3-4 months, because of the side effects of long term use. If the Crohn's is in the terminal ileum area and/or first part of the colon, a newer steroid, Entocort can be used, which does not have the debilitating, and embarrassing, side effects that prednisolone and prednisone do.

My Crohn's disease was in remition until recently. I noticed that when I have a flare-up my face, scalp, back, trunk, ect breaks out and the sores are EXTREMELY painful. Is there anything I can do for this? HELP!!!!!!! My GI doc is going to have me go on Humira. Thank you!!!!

Well, I personally would never want to do the surgery unless it was an absolute last resort. (I too have Crohn's and have been diagnosed for two and a half years. I am also on Humira and it took a few months for it to work, but it works REALLY well for me now.) Having any surgery on your bowels is a very very difficult surgery. It will take a lot of time for your abdominal muscles to heal and for your intestines to heal.

I was recently diagnosed with Crohn's Disease and was prescribed Entocort. I have been on the drug for a week and a half and I am still having symptoms. Has anyone else tried this drug? How do you control the diarrhea? I keep taking Immodium but I still keep having issues and I still keep losing weight. I am having a hard time staying about 100 ibs and I'm 35 yrs old! All foods in the grocery stores are designed to help people lose weight.

I have very severe pain on a relatively frequent basis, about 2 episodes a month. I am on humira and it seems to be helping all the other symptoms but the pain. My gi doc only ever offers antispasmodic meds. The pain I am feel IS NOT cramping...believe me I know what cramping is. Not sure what to do. Any advice would be appreciated. Before you ask I know it's not an obsruction...

I have had Crohn's for 40 yrs; 30 yrs on steroids, 10 on methotrexate. Originally oral, 25 mg a week, but last 4 yrs weekly injections of 25 mg. I had a hemi-colectomy in March 09, with 15 cm of my small and large intestines removed. Unfortunately, I then had a big flare in late September requiring 2 weeks again in hospital. I was put on remicade: gastro said I would have only 3 infusions: 0, 2 weeks, 6 weeks, but still had faecal incontinence and failure to put on weight.

Well, narcotics work wonderfully for the pain, however you can't live life being on narcotics all the time. How would you work/drive/care for your children if your head is clouded by narcotics? I was like you - I had awful pain, started Humira and within a few months felt completely better. I am still on Humira and haven't had any flare ups (fingers crossed so that I don't jinx it) for two years.

Was wondering about Ulcerative Colitis. I've since read the Humira isn't even approved yet for U.C. even though Dr has been talking to us about it for months. He thinks a lot of it. But without approval, insurance won't help pay for it. SO for now it's a mute point I guess. Dr upped prednisone again. Dr doesn't like Remicade at all. How has your experience been with Humira? How long have you been using it, etc? THANK YOU.

I was diagnosed with Crohn's disease december 2007 and hadnt responded well to anything, however, monday of this week I was started on humira and my stomach hasnt felt this good in a long time. I am having little to no diarrhea. However humira is causing me to have a headache, feel nauseated, and some other things.

I am a 46 year old desperate to save my j- pouch!16 years age I was diagonsed with ulcerative colitis. My entire colon was removed . I had a temporary iliostomy then 3 months later experienced a successful reversal. Today I am recovering from a ruptured bowel, I once again have an iliostomy, and have been diagonsed with Crohn's disease. The first line of treatment was 4 weeks on Pentasa and Rowasa.

He came back and told me i had Crohns disease and IBS. Ive been on imuran and recently started humira but am having problems with my lower abdomen. my abdomen is distended and hard like a rock, it hurts to eat, use the bathroom, pretty much hurts doing anything. I landed up in the ER and had a CT done which showed my intestine was inflamed (not in my ileum). My stomach is in so much pain!!! I just want it removed cause i don't see these medications working. what do i do?

I have been on humira, remicade, multi stem cells transplant/infusion, and tofacinitib and my doctors have told me that any pregnancy will be a risk for the child as I am consider toxic even if I have been off these medications for 20 years.

Sounds like your Crohn's came on strong and fast. If it is any consolation, many Crohn's patients have their appendix removed at some point in the process. Your GI doc can explain the "benefit" in future diagnosis of flares and/or perforations. I wish you much success with the Humira. The shots can be painful, but Humira does help manage the pain associated with Crohn's. You'll probably discover a "new you" in the process of your journey with Crohn's.

I'm sure your pregnancy will go fine. That's good that you've been able to be off your meds for 2 years, and that you have faith in your Drs. That's so important. Katie has pretty much taken the regular drugs for Crohn's, but when they quit working, her Dr. put her on Humira. She seems to be doing well on it. Her sister and brother also have Crohn's, and her sister just went on Humira, too, and it seems to be working well for her, too.

Most of what he gave me made me feel better but never really helped the disease. Crohns if pretty serious and not treating it makes it worse. I am still learning this lesson the hard way. It *****, I hate chemicals, I hate that the side effects, and I hate that nobody even knows what really causes it. I am very sorry for your aunt, I hope she can find something that works for her.

Hi I've had Active Crohn's disease now for 11 years. I never expereinced bleeding until just recently. I've had a colon resecection about 4 years ago was symptom free for about two years after surgery then it became active again. Recently it has spread and symtpoms have increased like joint pain and vomiting has become more frequent as well as the other commoner symptoms. i've tried steriods and remicade as well as humira nothing seems to work.

I was on steroids (prednisone) for 30 yrs, but the side effects on my bones have given me osteoporosis in my hips, hands and feet, so that is a no no. This is such an insidious disease and I think only our nearest and dearest fully understand how isolating it is. Some friends are still embarrassed when you talk about Crohn's - you would think we had the bubonic plague and it was infectious! I do hope you find a medication that suits you and keeps the disease in remission.

I have Crohn's Disease. Why do I get sick when I am on antibiotics, and is there a newer alternative?

I have very severe pain on a relatively frequent basis, about 2 episodes a month. I am on humira and it seems to be helping all the other symptoms but the pain. My gi doc only ever offers antispasmodic meds. The pain I am feel IS NOT cramping...believe me I know what cramping is. Not sure what to do. Any advice would be appreciated. Before you ask I know it's not an obsruction...

For the first month and I half I was moody and tired all the time. I felt so hungry and I ended up gaining about 60lbs, apparently most of it was water from the prednisone. Everything has precautions, but I think if you're doctor is willing to try it, it's worth it. I think it's a lot better then prednisone since the weight and insecurities don't play a factor as much. You also have to remember that Humira may not be the cure all medication.

Humira and crohn's disease

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