How tysabri works

Common Questions and Answers about How tysabri works

tysabri

Avatar f tn I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting. Good luck to you too!
Avatar m tn t usually give it although some docs will try. Perhaps he said RRMS ? Tysabri works well there. There are some of us that are JC+ and still take Tysabri........perhaps he thought it over after you left? They are expanding Tysabri for types other than RRMS but as Tysabri tells me, its all up to the doc.
382218 tn?1341181487 Which disease modifying drug therapy are you currently taking? With the recent addition of several new treatments, and as I ponder making a change, I'm curious as to how many here are on the various DMDs available. Also interested in those taking something not on the list (eg Novantrone), and whether you have been on more than one DMD and if so, why?
984138 tn?1359813073 Call Tysabri, and talk with them they will talk to you even tho you are not a pt yet.
572651 tn?1530999357 I have been wondering how you did on your first infusion this week. Thanks for posting and sharing the experience. I am thrilled you are trying something new and hope it will have a good experience with it. I hear very good things from others on it. Do they always do IVSM with tysabri? I haven't heard anyone mention that before. Good luck and keep us updated on how you are doing with it.
Avatar m tn I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.
559187 tn?1330782856 I have heard that if our MS neuro were to document that our MD is in the progressive stage that insurance companies will see that as a way for getting out of covering our DMDSs. Has anyone experienced that or know how I can find out? I may be facing this issue and obviously don't want ti ask my insurance company, possibly raising a red flag on my case. I are irate your thoughts and advice.
Avatar f tn What confuses me is that all the research I have done seems to insinuate that tysabri is a good choice when nothing else works. I am in great shape and live with little to no daily symptoms. My main Symptom is my left leg dragging after about 20 min of walking for exercise and I haven't been able to run for ten yrs now. Please give me your insight as to why you think I should or should not switch to Tysabri. Thank you!
Avatar n tn @ Bob...I wondered what Pulse Therapy was. My doc had mentioned it...but I never gave it a second thought. It is true, you do learn something new every day. And yes...the old lesions have been doing what they do on and off for over a year. Stress brings them all back in a hurry! I'm just hopeful this ACTH works, the IVSM handed me my butt on a platter! I'm still recouping from them and they ended a week ago. @ Sumana, I really do hope the Tysabri works for you!
Avatar f tn to make things look good etc) My neuro and I also did not consider novantrone. I will definitely keep you updated on how tysabri works for me and I am interested to know what your final decision on medication is.
Avatar m tn of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?
Avatar f tn I sure hope that works for you. Are you JC positive and want to move off of tysabri because of the increased risk? Just because you are at 24 months, doesn't mean you have to stop. I wonder if there is a washout period from tysabri to rituximab? I know the relapse numbers jump when leaving tysabri for something else. I'm sure the neurologist has a plan for you. You can still visit your infusion nurses - just bring them cookies.
1115136 tn?1258778476 ) That was over a year ago, and my disability has progressed much since May 2007. My right leg hardly works at all anymore- and my right arm went, too. I still walk- barely- with those magical AFOs on both of my legs- although it seems that I need to get a TAFO for my right leg soon (TAFOs go up to the thigh, rather that stopping below the knee like an AFO).
1088527 tn?1425313375 Took my first dose of gilenya today heart rate drop to 50 so had to stay an extra hour but home now. Hoping this works since I failed rebif, tysabri, tecfidera we shall see what happens.