How does tysabri work

Common Questions and Answers about How does tysabri work

tysabri

Avatar f tn Sensory involvment first 2 times. Came home from work last monday and my speech was slurred and by tuesday I lost the power in my legs. Had IV steriods for 3 days and a repeat MRI to see if we should switch to tysabri (currently on copaxone). On MRI; high signal lesions in all the same places as before (in many) but a new increased signal of intensity in medulla oblongota (is this considered a new lesion?) and NO enhancing lesions..... So I qualify for tysabri without an enhancing lesion?
233622 tn?1279334905 It lists how many cases, what country the person is from, and how many doses of Tysabri they have had whenever he is able to get the information. I check the site frequently - he always has updates as soon as they are available. http://chefarztfrau.de/?page_id=716 This article gives the latest calculations of the risk factor for PML, based on how long the person has taken Tysabri. I go for #27 on Monday, so I am definitely in the higher risk zone now. http://www.nasdaq.
Avatar f tn Hi Brianna- I too HATE needles, blood, etc. I was just sick to my stomach when I found out all MS treatments were shots. I was put on Copaxone by my Neuro about 3 years ago. The good thing about Copaxone is the autoject device that does all the "tricky" work for you. You never see the needle , no pinching skin and jabbing it in etc. It is atleast something I "CAN DO"despite being squimish! Hope that helps a bit!
Avatar f tn My first DMD drug was Tysabri and I have been on it almost 2 yrs, and was JC+ from the start. Tysabri is very good at lowering relapses, but of course, does not correct anything already there. You may continue to have relapses or attacks, it is not 100%, but does a good job. It is not usually a first drug, as you have been told, but your doctor had a good reason or he would not have put you on it As Kyle said, let your doctor know…….
572651 tn?1530999357 Jorge from Costa Rica was curious as to our drug costs and we were looking at an old thread on the topic. This is a good time to ask again - What does your MS disease modifying treatment (DMT or DMD) cost? I am on Tysabri and I looked at the numbers - My insurance company, Blue Cross/Blue Shield, was charged $5,829.48 for my monthly infusion in December 2013. At the beginning of 2013, that cost was 'only' $3,901.90 . That is a crazy price increase in just 12 months.
Avatar f tn So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!
Avatar f tn I was recently diagnosed with MS 2013 four months after my wedding, I completely went blind in my right eye, put on steroids, than a drug called Copaxone 5 days a week, than 3 days a week, just a few months ago was changed again to tysabri after finding legions on my spine. How long did you start with this illness? This is a beginning start for me compared to never being serious ill before. Does your feelings and emotions get the best of you?
Avatar f tn Thanks for posting about Tysabri. I know little about it but may need to learn a lot more real soon, at the rate I am going. I was dx'ed with MS 8 months ago, and have had 2 relapses with a 6 month period (Sept 07 and Mar 08). My symptoms are sensory, fatigue, and double vision. My neuro is considering switching me from Rebif to either Tysabri or Novantrone.
216354 tn?1262871346 Hello everyone! My mom has battled MS for over 20 years now and is now wheelchair bound. She has been on every medication available with little results, and has now been on tysabri for almost two years. Last week when she went to the doctor, she was informed that patients who has been on the tysabri infustion for over two years have a greater chance of developing the brain infection PML. I believe she was told the odds went up to 1 in 800.
Avatar n tn I am 65 been on Tysabri for one year, tell me in my age group how long does most people stay on the drug?
572651 tn?1530999357 I have been wondering how you did on your first infusion this week. Thanks for posting and sharing the experience. I am thrilled you are trying something new and hope it will have a good experience with it. I hear very good things from others on it. Do they always do IVSM with tysabri? I haven't heard anyone mention that before. Good luck and keep us updated on how you are doing with it.
1827617 tn?1317703371 I remember how difficult the decision to start Tysabri was, and I am happy to help in any way I can. One thing I do recommend is that you read as much as you can about Tysabri before making your decision. That way you will feel more comfortable with the potential benefits as well as the risks.
Avatar m tn I have been on Tysabri since 2008, but have never experienced a rash like that. I am MUCH more sensitive to the sun in general since I started Tysabri, and will usually get a rash on exposed skin after a very short time, even with strong sunscreen - but the rash I get is very small red bumps and very itchy. Have you ever had anything like this before? Are you having any other signs of an allergic reaction? When was your last infusion?
Avatar n tn I wish you all the best luck on Tysabri, and I hope it does as well for you as it has for me. 5 years without a relapse...it was an amazing time!
294425 tn?1288528395 OK guys I need info..... anybody here on Tysabri? Anybody been on it previously? Any first hand input is helpful, as well as any info in general. My neuro tossed it out at the appt today - COMPLETELY blew me out of the water. Never saw it coming. The Rebif makes me sick and he's concerned that things keep advancing and I've never really had the elusive remission... :) He explained alot about Tysabri - truth vs hype.
Avatar f tn Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?
1760800 tn?1406753451 Not at the Tysabri stage (yet), but I've read almost no negatives about it. While having a couple of steroid infusions I got talking with a few Tysabri regulars who see each other every month. One woman told me she had been an MS mess before Ty, and after starting the drug she had had absolutely no more MS problems. Lots of people here would say the same. The only issue is whether you are JC negative, which I presume you are. You go, girl!
Avatar f tn One patient in particular was in a wheel chair and improved enough after 18 months to go back to work as a carpenter. It gave me hope because not only does it have a high percentage rate for stopping relapses, but maybe it helps with the inflammation and improves mobility. Only time will tell. I am very encouraged.