Graves disease remission cause
Common Questions and Answers about Graves disease remission cause
graves-disease
I just went to a new doctor. I saw 2 doctors(endos) they said continue taking these meds and test in 6 weeks. They also agreed that my tests really don't fit Graves disease anymore. WHAT IS WRONG WITH ME? I had my cortisol tested in August and it was normal 17 after a fast. Maybe it's piuitary related. All I know is I don't feel well at all.
Thanks.
I am currently taking PTU to help with my Graves' Disease but was wondering if anyone had any suggestions I could do to help? Changes in lifestyle, dietry changes, vitamin supplements etc? My aunt is a GP and a trained herbologist, she recommended chrysanthemum tea as a way of correcting my metabolism. Maybe we could compile some kind of list of things that help either Hyper or Hypothyroidism?
Thanks so much.
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
the author Elaine Moore, who wrote books on Graves says that normal people have no tsi or 2 percent, I think. Mine was 109 at diagnosis, even though the normal goes up to 125, that's bull! Some just don't feel symptoms till they reach that. I had an uptake scan too, which was normal but on the high side. I have heard the TRab test or the TBII is supposed to show remission. My doc argues this, he says it's just for diagnosing Graves. What was your TSI? What are your labs?
So unless your Graves' has gone into remission, stopping the Methimazole would eventually only put you back to square one: hyperthyroid. Seems like a reduction to 5 mg would be the better idea.
I have read that nearly half of patients who take antithyroid medications for their Graves' disease go into remission.
All of your labs are over the reference ranges (except TSH) and indicate that you have hyperthyroidism, of which Graves Disease is the main cause and since your TSI is definitely positive, that would be your diagnosis.
Some people do have, both, Hashimoto's and Graves Disease at the same time, with one or the other dominant...
Hello,
I have a seemingly incurable thyroid problem, short of ablating my gland. Over the last 5 years, my TSH has fluctuated between 4 and 22 with no meds.
I am very overweight, yet am always hot and shakey feeling. I am also tired alot. I've been to 4 endocrinologists and 2 said I am hypo with hashi's and two said I have Graves' Disease. 3 years ago I tested positive for TSI 3 times with a score of 175, 165 and 180 with a range of 0 to 125.
I have read that Graves hyper can (maybe) be put into remission with 1 year or more of anti-thyroid drugs. However, a stressful live event can cause it to flare up again.
Since you might be without insurance soon, check to see if your lab has a cash price.
The price of my labs for TSH, FT4&FT3 is $216 billed to insurance. The cash price is $54. Big difference!
I ended up with two thyroid storms from graves/hyper, NOT fun at all. I did the RAI, but the graves/hyper was to far advanced for it to help me. I ended up having to have surgery anyway after the RAI.
My heart rate was 140 sitting down, my eyes bulged out, I was down to 88lbs despite eating non-stop. Trust me get it treated before it gets worse. Thyroid storms are not any fun...
But you can always get a second opinion from an endo if it puts your mind at ease.
They have removed me off of my medicine one time to see if my Graves disease had went into remission and within two months it came back with TSH levels of 0.003...basically non-existant TSH levels. They put me back on my 10mg Methmazole and within 3 weeks my levels were normal. That is pretty much a health summary of my graves disease for the past five-six years lol.
Oh wow, I'm not really the person to ask as most of my research has gone into my own condition.. I was hyper thyroid because of an over-active nodule that was producing too much hormone which, I'm pretty sure, would not relate to children.
I do know of transient thyroiditis which can have many causes (perhaps that's what your specialist believes it is) and, of course, Graves disease. I googled 'juvenille hyperthyroid' and there was an array of results.
I was diagnosed with Graves disease 11 years ago. My endo prescribed Methimazole, which I was allergic to, so he told me he didn't want to prescribe me anything else because sometimes the allergy kills the thyroid. It apparently did, because all of a sudden I was hypo and I had to go on synthroid. Since then, I lost my health insurance and got handled by my PCP instead of the endo (cheaper).
Graves is an autoimmune disease. AI diseases are like roller coasters with highs and lows. Think of other AI diseases like rheumatoid arthritis, lupus, diabetes, etc.....they have times when they "flare" and times of "remission" where they are in active. It seems very plausible to me that you very right and probably are in remission -- just makes sense! But, the question is, like the other diseases, how long will it last? I hope a good long, long time!!! Congratulations!
Graves Disease is never cured BUT it is managed better without a thyroid or after RAI.
You still have the antibodies but no thyroid for it to attack.
As for meds, you swap one lot for another.
You go from anti-thyroid meds to a T4 medication so basically you are on meds for life.
The thyroid regulates every organ in your body and if no thyroid, meds have to do the job.
Hyperthyroidism is a lot easier to manage without a thyroid.
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