graves disease ophthalmopathy mayo clinic

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Ok..to start with , dont toy around with any meds....allow each med to get into your system (around 3 months) and take it from there. What were your last lot of elevsl and how long since RAI? The swelling around the eyeball is NOT from RAI or from the meds. It's also fairly common for your eyes to exhibit mild signs of a condition known as Graves' ophthalmopathy. In Graves' ophthalmopathy, your eyeball bulges out past its protective orbit (exophthalmos).

What is the differences between Endophthalmitis and Graves Ophthalmopathy with enlarged eye muscles? I have researched the treatment for fungal Endophthalmitis with Diflucan. Why would this not be a potential treatment for the enlarged eye muscles?

gov/pmc/articles/PMC4314568/ And because you already have a diagnosis of Hyperthyroidism, your doctors are pointing to Graves’ Ophthalmopathy (much more prevalent than IgG4 ROD) , where the overactive thyroid affects the area surrounding eyes and may cause inflammation, redness, achiness, pink eye, eyelid retraction and bulging eyes, etc.

I had a multi nodule goiter. Before surgery I was on 50 mcg Levi. I was so hyper I could almost walk across ceilings. Can you have Graves' disease after thyroidectomy. Having horrible itchy skin, ear eczema and hyperpigmentation all over my skin. Damn Drs only want to run tsh. I tremor all the time and my legs are so weak. They take my Levi up and my tah goes low. Please help. Don't know where to turn. Graves on my family but no doctor will listen.

I have severe Graves Ophthalmopathy and my Ophthalmologist has just put in a referral to have Orbital Radiation. I am having trouble finding information on this and am very nervous. Has anyone had this done? Or have any information about it? I'm hoping that the benefits will outweigh the risks... as my eyes are so sore and bulging and I really want some relief (without going back on steriods)! Thanks for any info you may have!

Selenium helps with thyroid inflammation so this may help with your throat symptoms. Also, in 2011 a study demonstrated that selenium supplementation (200 mcg per day) can slow the progression of eye disease and improve quality of life in patients with Graves' disease with mild ocular involvement (Graves' ophthalmopathy). In supplement form, the most bioavailable form of selenium is L selenomethionine.

Hi! I've been to Jacksonville, Mayo twice. Since I live in the Southeast I know a lot of people who have been there and had great success. My mother had carotid artery surgery a few years ago - very risky surgery - turned out great. She is going back in Nov. to have the other done as it is more than 75% blocked. She also had a hole in her retina or cornea, I can't remember which, repaired - and that went well too. My luck at Mayo has been so/so.

TED is found in persons with Hypothyroidism, Hashi, Hyperthyroidism, Graves', persons taking Armour, and in people with no other evidence of thyroid dysfunction, and, is more severe in people who smoke. For that reason, the preferred name is now Thyroid-Associated Ophthalmopathy (TAO), or Thyroid Eye Disease (TED) rather than Graves' Ophthalmopathy (eye disease).

Conventional treatment options for Graves' disease include: * Anti-thyroid medication: In the US: - Methimazole [brand name Tapazole] - Propylthiouracil [PTU] Approximately 30% with Graves' disease will have a remission after prolonged treatment with anti-thyroid drugs.

What's the best way to take GcMAF for people with Grave's hyperthyroidism/ Grave's ophthalmopathy? Can't afford getting a treatment from a clinic with injections so what's the best oral GcMAF? Sublingual, yogurt, tablets/capsules and where to get them from a trusted source in Europe? Thank you.

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

He is reluctant to put me on interferon/ribavirin therapy which would last 48 weeks, because of the risk of blindness from Graves Eye Disease. Although I have been euthyroid for four years, I was treated for hyperthyroidism from 2000-2002 with atenolol, tapizole and PTU, and currently have clinical evidence of mild Graves eye disease in one eye, demonstrated by lid retraction, and slight limitation of upward and outward gaze.

After being diagnosed with Graves Disease, I opted to have my Thyroid obliterated using the Radioactive Iodine Therapy procedure. During the transition of losing the Thyroid, I lost a good portion of my vision in my right eye. Was told that the vision loss is due to AION (Anterior Ischemic Optic Neuropothy). Once I lost my vision, I began to feel "unbalanced" or "light headed" at all times. Sometimes this feeling diminishes but it never really disappears.

Hyperthyroidism lists fatigue as a symptom. This can be due to insomnia and difficulty sleeping, a rapid pulse, and/or higher blood pressure. Conventional treatment options for Graves' disease include: * Anti-thyroid medication: In the US: - Methimazole [brand name Tapazole] - Propylthiouracil [PTU] Approximately 30% with Graves' disease will have a remission after prolonged treatment with anti-thyroid drugs.

TSI also contribute to the related eye disease, Graves’ ophthalmopathy. TSI is used to diagnose Graves’ disease, to monitor response to anti-thyroid drugs and to helping predicting remission. While the normal range is <130% activity, individuals who are normal do not produce TSI and have levels <2% activity. Individuals with levels between 2 and 125 %, which indicates thyroid autoimmunity, do not generally develop symptoms of hyperthyroidism until levels rise.

I also am thinking it could just be me being paranoid since I have had such a hard time with Graves and Hashimotos. My brother also has Graves and many relatives in the family. Just wondering if anyone knows if that information might be true. I keep encouraging them to have the thyroid checked.

I had treatment with I-131 at Mayo Clinic in 1986 for Graves Disease. I have been on Synthroid or Levothyroxine ever since. Recently, my TSH went way down. Although my dosage has been reduced from .112 to to .100 and now .088, I am continuing to have hyper symptoms after 8 weeks on .088, I have the scalp "raised spots" and other symptoms including throat and swallowing "fullness" and some ear discomfort, all on the right side. No shakiness though, which I had with Graves.

When Grave’s disease is not under control, the body’s immune system also attacks the eye tissue which resembles thyroid gland tissue. This is called Grave’s ophthalmopathy or Grave’s eye disease. In Grave’s eye disease, weakness of the eye muscles, swelling or stiffness of eye muscles, protrusion of the eye, watery or dry eyes etc can affect vision (cause double vision, lag in image formation, inability to see in some directions etc). First a complete thyroid gland function is assessed.

Here's a good web site to start with: http://www.endocrineweb.com/ Armour, Synthroid, Levothyroxine are all meds for hypothyroidism - they replace the naturally produced thyroid hormone. They are not for hyper. Ask the endo for an ultrasound or CT scan for the nodule then discuss an uptake scan to see if the nodule is "hot" (producing too much thyroid hormone - causing the hyper symptoms) and ask for a *complete* thyroid panel including antibodies.

I have read about radiation therapy for Graves eye disease, but did not have it. I asked my eye doctor about it and he didn't think it had much effect, but then, he's a surgeon and inclined to cut. The radiation is supposed to shrink the swollen tissue behind the eyes that causes the bulging. I had orbital decompression on both eyes a little over two years ago. Best thing I ever did for myself. Graves eye disease is a long road, and there are no quick fixes.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

Graves disease ophthalmopathy mayo clinic

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