graves disease mayo clinic

Hi! I've been to Jacksonville, Mayo twice. Since I live in the Southeast I know a lot of people who have been there and had great success. My mother had carotid artery surgery a few years ago - very risky surgery - turned out great. She is going back in Nov. to have the other done as it is more than 75% blocked. She also had a hole in her retina or cornea, I can't remember which, repaired - and that went well too. My luck at Mayo has been so/so.

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

He is reluctant to put me on interferon/ribavirin therapy which would last 48 weeks, because of the risk of blindness from Graves Eye Disease. Although I have been euthyroid for four years, I was treated for hyperthyroidism from 2000-2002 with atenolol, tapizole and PTU, and currently have clinical evidence of mild Graves eye disease in one eye, demonstrated by lid retraction, and slight limitation of upward and outward gaze.

//www.mayoclinic.

After being diagnosed with Graves Disease, I opted to have my Thyroid obliterated using the Radioactive Iodine Therapy procedure. During the transition of losing the Thyroid, I lost a good portion of my vision in my right eye. Was told that the vision loss is due to AION (Anterior Ischemic Optic Neuropothy). Once I lost my vision, I began to feel "unbalanced" or "light headed" at all times. Sometimes this feeling diminishes but it never really disappears.

I also am thinking it could just be me being paranoid since I have had such a hard time with Graves and Hashimotos. My brother also has Graves and many relatives in the family. Just wondering if anyone knows if that information might be true. I keep encouraging them to have the thyroid checked.

I had treatment with I-131 at Mayo Clinic in 1986 for Graves Disease. I have been on Synthroid or Levothyroxine ever since. Recently, my TSH went way down. Although my dosage has been reduced from .112 to to .100 and now .088, I am continuing to have hyper symptoms after 8 weeks on .088, I have the scalp "raised spots" and other symptoms including throat and swallowing "fullness" and some ear discomfort, all on the right side. No shakiness though, which I had with Graves.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

I am a 45 year old female who was diagnosed with Graves Disease in Jan 2006 and have been treated successfully with PTU ever since. My lastest blood work came back with a TSH level of 0.73 mUnit/L (the only test my current endocrinologist will run.) Last week while on vacation, I started noticing my hands and feet going numb. The large toe on my left foot is numb most of the time, and at times painful. I am waking up night with my hands, feet, arms, and legs tingling.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

I also have Graves disease and from my understanding you are never "cured", but, once your thyroid is either dead or you have it removed you should no longer be suffering from the symptoms. Except the protruding eyes, that is the only symptom that they can't reverse. That you are going to have to live with for the rest of your life. That's why it's so important to get treated before that happens. I would say that your tiredness is from being perimenopausal.

http://www.mayoclinic.com/health/graves-disease/DS. In short, though, if you have Graves' Disease, your immune system is mistakenly attacking your thyroid.

Glad things are going well. Sounds like she is moving right along. Demyelinating Disease is a disease which damages the myelin in the Central Nervous System. It is not a diagnosis in itself usually.

My new neuro wants to refer me to Mayo Clinic. She thinks this is definitely an autoimmune disease but doesn't think that it is MS due to the intermittent low grade fevers for no apparent reason. I haven't discounted the fact that more than one thing may be going on. Anyway, saw that JH has the big autoimmune disorder research center and wondered, if this is what we're looking at, if it might be the better place to go. Any comments??? Thanks!

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

m curious as to why so many people are against the Mayo Clinic? I myself am a patient there currently undergoing diagnostics, though I received a clinical MS diagnosis upon first appointment in November, at this time my other cranial issues and viral issues are also being examined. My Neuro there was able to detect issues in one visit that other facilities could not in several other states- including Stanford Over the course off seven years.

Okay, I have Graves disease...I had had it for almost 2 years (as I know of) I really haven't treated it at all. My doctor is an hour away and I have transportation issues....my symptoms are palpitations, shortness of breath, mood swings, hair falling out, extreme fatigue & night sweats. I also recently had a miscarriage eventhough my levels were better. My question is what can I do about this. I don't want to have RAI....

I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.

I have been referred to see another team of neurologists at the Cleveland clinic in Weston since my doctor thinks the Mayo clinic did not do the proper workup that the $15K should have paid for! I would appreciate anyone's take on this clinic - am nervous about starting another series of tests that may bring me to "post viral syndrome dx" again with more time and money down the drain. Hugs to all!

You can go online and register or call to set up appointments at Cleveland Clinic and the MAYO Clinic. MAYO has three clinics in the U.S. You do not need a referral to get in to either of these clinics. I have also heard of people the drive there and tell them their symptoms and sometimes they get in right away. So, you might want to consider checking them out online and trying to set up an appointment. I hope this will help you, as I know how frustrating this can be and disabilitating.

You may want to contact the Cleveland Hospital or the Mayo Clinic for information. Also the link provided may be of some help. Thanks for your question. http://www.medhelp.

Hi there! New to this forum. I'm a gal who has been hyper for years with graves. I'm profusely sweating, gaining weight and not able to get insurance w/o being hypo for a year.I'm supposed to be level on my blood work or a little bit low/high, not sure. I'm having bad joint pains too and developed a tigger finger out of the blue. I'm having a RAI scann in a couple weeks. What are your experiences with the ablations and going hypo, good, bad otherwise?

Graves disease mayo clinic

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