Graves disease edema
Common Questions and Answers about Graves disease edema
graves-disease
I have Graves & Graves Eye Disease & your symptoms sound exactly like mine when my disease started. You need to see an ophthalmologist as soon as possible. After the exam he will order a cat scan of your eyes to see if there is any muscle enlargement behind your eye. I had more prominent orbital edema than buldging at first but that along with eye fatigue, tearing & eye dryness are some of the first symptoms. The endrocrinologist should know that.
Here's an interesting discussion of some years back on this question--------
http://www.medhelp.
t any doctor spoken to you about Graves or Graves eye disease? Have the doctors just been letting your thyroid grow without treating you? Get to a good endocrinologist.
Have they tested your TSI antibodies to determine Graves?
What are 'slightly high' labs? The standards for diagnosing and treating thyroid disease are changing, but many hospitals still go by the old standards. I would not trust a regular doctor or ER doctors to your care.
Has your wife been tested for lyme
I would have to say that those tests are very limited and you need more done. A complete thyroid panel should be done with TSH, Free T4, Free T3 and all antibody testing for Graves and Hashimoto's autoimmune thyroid disease. A TSH test alone does not tell what is going on....just a marker that you need more testing.
You should also be taking Vit D....did your Dr tell you to start on any yet?
Graves is an autoimmune disease and unfortunately for life. Controlling whether they raise or suppress is key to beating the symptoms of the disease.
If you are on Levo now - your labs must be abnormal and now lean towards hypoT levels. You would feel like cr@p right now with the swinging patterns you have been on.
"Once Graves.... always Graves" is the saying here. But I am positive your endo or ???
I have been going to an Endocrinologist for almost 1 year. He has done several ultrasounds showing that I have 5 tumors on my thyroid. I have a biopsy which showed they were benign. I recently had another ultrasound which showed one of the tumors had shrunk but another one appeared.
I'm desperate to find help for multiple symptoms that I feel may be thyroid related. I moved to a different state across the country 20 years ago and I have yet to find a good endocrinologist who specializes in thyroid diseases such as Graves- consequently, for the last 20 years, my health has been spiraling down & out of control. I had severe Graves disease & had a thyroidectomy leaving 2gr in '75. I've been on 125 mcg Levothyroxin for many years.
Have you been tested for thyroid antibodies to make sure you do, in fact, have Graves disease and are not simply in a hyper phase of Hashimoto's? Both Graves and Hashimoto's are autoimmune.
While Graves is always connected with hyperthyroidism, Hashimoto's is most often connected with hypothyroidism, however it's not uncommon for one to have periods of hyperthyroidism in the beginning stages.
You should ask for thyroid antibody tests.
If you don't mind. I see you posts starts out as Graves Disease and you are looking for a surgeon?
While I would have to do some checking around on this can you post the reason for the removal? - Is it for Graves disease?
Has your doctor told you, you have Graves Disease? Yes, your TSH is extremely low and your FT4 is extremely high, indicating that you are hyper, but your antibody tests indicate Hashimoto's. TSI is the definitive test for Graves Disease and I don't see that listed.
Have you been put on antithyroid med?
Did I develop neutropenia from the Graves disease and how do I stop the neutropenia from getting worse? Also, what are some things that I should avoid as a result of my neutropenia? In addition, my heart rate ranges from 120-140 and I feel very tired and confused. Are these feelings a result of my heart rate? Thank you in advance.
I am glad I found this site, I found out today that I have graves disease, I also have a multinodular goiter and I had a thyroid scan and it showed a cold area, so I have to have a biopsy. I am so scared, I have never really been sick and now all of a sudden I get this. Has anyone had a biopsy on a nodule and how long does it take for the results to get back? Any help is greatly appreciated!
ve been having these severe migraines for over 2 months now, my eyes hurt terribly from all the pressure, im not sure if its the pressure in my nerves from all the spasms and intense pain and weakness im having in my limbs but im scared that its ocular migraines, i could not read properly with having bad pain in my head, i have graves disease but with my doctors appoinment yesterday at the endocrinologist the doc says im 'normal' when im everything but the muscle weakness is so sever i
I've just been diagnosed with Graves' Disease. I have autoimmune thyroid disease that has changed from being primary Hashimoto's thyroiditis to Graves's Disease. I was diagnosed in 1997 with Fibromyalgia. I also have severe osteoarthritis, especially in both hands. What am I doing wrong? The doctor told me I'm a very strange case. What's that mean?
Looks like Graves' disease based on the significant elevation in T3 however to confirm this a TSI blood test or I-123 nuclear uptake would be required.
I was diagnosed with graves disease and had the radioactive treatment to destroy it a few years back. I have had a few times where I did not have my meds for a week at a time. Is it normal to feel so tired and cranky? Also I took Zirtec for my allergies and I felt like I was cloudy and just wanted to sleep and tightness in my chest..... I am currently on 137 mcg of Levothyroxine.
Hello. I'm 36 and I am almost 9 weeks pregnant. I have Graves' disease and had radiation treatment back in 2009. I hadn't been taking my thyroxine constantly for a few months as I was super stressed and now that I am pregnant haven't missed a dose. My thyroid levels are still very high and I'm worried that this will affect my baby's brain development/IQ levels. Has anyone else had similar experiences? I'm scared and worried.
iam apatient who suffers graves disease. My question is : Although I am almost 4 months on Carbamizole treatment 60 mg + Taking inderal ( propanalol), but the levels of my T4 & T3 are still high and the levels of TSH is less than 0.01.
what do you think , should i sstop the medication and think of the other allternatives like the radioactive iodine or surgical removal?
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