Graves disease and ptu
Common Questions and Answers about Graves disease and ptu
graves-disease
With both FT3 and FT4 as low as they are, it's no wonder you feel like you were run over by a truck; add a severe cold to the mix and you probably feel like it not only ran over you, but backed up and did it again.
We have to back up a little bit, though; I just realized what you said in your first sentence: "i was diagnosed with graves disease and initially shown as hypo". Graves disease is associated with being hyper, not hypo. Please clarify that.
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
I was diagnosed with Graves Disease approximately 10 years ago and have been treating it and dealing with it fairly well. I have even gone off maintenance meds (methimozole) was on very low dosage, did not respond well after a long time. Recently was put on PTU and it has been suggested that I do Radioactive Iodine Therapy or Thyroid Surgery even though I am responding to PTU positively. I am on 150 mg a day and it is said that might be lowered to 100mg/day.
We were told that Graves disease does not cause headaches. She had a MRI and it was normal. She has only been on the meds for about 3 weeks. These headaches are killing her. It breaks our hearts to see her like this.
This discussion is related to <a href='http://www.medhelp.org/posts/show/264121'>Normal TSH with hyperthyroid symptoms</a>.
Then I started having palpitations and other symptoms of not feeling right and blood tests showed I was taking too much PTU. I went down to taking it twice a day for several months and it was fine. But through more tests and such, my doctor said it seemed I didn't need it anymore and I could stop taking it.
It may be worth coming off the PTU to see what really happens, also of interest would be TSI and TBII which are markers for Graves disease. If you are on a low dose PTU (50-100mg/day total), stopping it may reasonable with close observation. Remeber, I-131 therapy is never an emergency, so it is important to make certain the hyperthyroidism is likely a consistent problem requiring definitive treatment;.
Sounds like you may have had thyroiditis and not Graves -- at this point you are hypo and most likely this is not from too much PTU (the dose is quite low) but actually the hypothyroid phase of silent (or possibly subacute) thyroiditis (which is also autoimmune. I could be wrong, but it is very unusual for this severe a swing in TSH levels. If you had an I-123 uptake scan done at the initial hyper diagnosis and it showed elevated uptake, then it is graves with an unusual pattern.
Turns out I have a bad case of Graves disease. I have a lump in my throat (goiter) that I didnt even notice til I had the storm. My labs the day of the storm are as follows:
T3 uptake 50.07 (25-36)
T4 22.2 (5.4-12.0)
FTI 11.12 (1.25-4.55)
TSH 0.03 (0.4-5.3)
FT4 5.79 (0.8-1.6)
T3 Free 9.35 H
I was put on Propanolol 40 mg, four times a day, PTU 200 MG, every 4 hours (total 1200mg), and iodide 1 hour after the PTU.
Exactly one week later, my labs are:
FT4 2.40 (0.8-1.6)
T3 Uptake 38.
My 3 y.o was diagnosed with Graves Disease 2 weeks ago. Since then she had seen a Ped. Endo and RAI is scheduled in 3 days. She does have eye involvement. Her eyes don't close when she sleeps. My question/concern to you is: I heard RAI can increase the effects on her eyes due to the increase in hormone surge I read that taking prednisone can help decrease the inflammation that may be caused. Has any of you taken prednisone after getting RAI.
I can tell you what my doctor told me - I have Graves and Graves Eye Disease. My doctor offered RAI or TT, but suggested TT because sometimes RAI makes eye problems worse, and it can't be "taken back" as you say. Worse eye problems was not something I was looking forward to, as I as already having enough issues, so I chose TT. I believe Dr.
In fact the disease can be linked itself to the liver not functioning to its full level and adding in PTU can cause damage more.
Without leveling out naturally and getting to the root of WHY the Graves antibodies rage on and on for you in not being looked at and fixed with PTU or even going for a sugical removal.
Hello
I am 9 wks pregnant and my new endo has just put me on Tapazole, taking me off PTU. Her explaination is that Tapazole is now more safe to take than PTU. But the endo prior to her said PTU was safer. I have been researching this and I'm still very nervous about the whole thing. Can you please explain to me which one is safer and what are the effects on my child? I'm reading all these horrible defects that could happen such as cranial defect and intellectual issues.
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