fibromyalgia network site

m hooked on Klonopin, and, just as with Lyme, seemingly about 1% of doctors understand how nasty and prolonged the withdrawal syndrome can be. However, there is a network of doctors who specialize in Lyme treatment (they call themselves Lyme-literate Doctors or LLMDs) and Lyme patients can seek out an LLMD to receive informed treatment and care. My question is this: is there a Benzo network of any kind? Or anything like it?

I'm one of those who believes that yes, fatigue is a symptom of hcv, as well as other symptoms. I was dx'd with fibromyalgia and hcv simultaneously and thought it odd that all of my symptoms were attributed to the fibro when in fact that didn't have a clue as to what fibro was. At the time (and maybe still) the only way to dx fibro is by ruling out every other medical condition, there was/is not definitive test for it.

Many patients with fibromyalgia feel that their joints are swollen, although there is no visible inflammation of the joints (arthritis). ### FIBROMYALGIA TESTS — There are no specific laboratory or imaging tests used to diagnose fibromyalgia. Thus, the diagnosis is typically based upon a thorough patient history, a complete physical examination, and blood tests, which are used to exclude conditions with similar symptoms.

There are many other treatments for both migraines and fibromyalgia. I was diagnosed with fibromyalgia years ago. I was like a cripple trying to get dressed. Taking a small dose of Trazadone helped me some. Over the years, I kept increasing it which cured most of my symptoms. There is a new fibromyalgia med called Savella which I read praise after praise on another website. Also anti-depressants can serve as pain killers.

IC can also occur and usually does along side other pelvic conditions, like Pelvic Floor Dysfunction, Fibromyalgia, IBS and others. We do know that most IC patients have an increase in Mast Cells and histamine, which is why many doctor's start their patients out on an antihistamine to help treat it. This is also a found in many autoimmune diseases. The symptoms of IC can vary greatly between patients and even the same patient throughout the day.

t get into see your pdoc or therapist for another two weeks but you really want to reach out to someone...does anyone know of an online chat site where someone can find that kind of crisis help?

In the course of my negotiations with the insurance company, I finally contacted the agent that sold me the policy. He said that he remembered walking me to the network site and seeing that doctor listed. But the most interesting thing he said was that my daughter followed protocol informing them at the visit of her new provider and they failed to tell her the doctor had left the network and had almost 4 weeks in which to contact her prior to her next visit and failed to do so.

After the endoscopy we were given the diagnosis of chronic fatigue / fibromyalgia . Having been initially relieved that we finally had a diagnosis we are now starting to think differently. Once you have been tarred with this brush it would appear the doctors are not interested. My concern is how quickly this diagnosis has been made. I've read people can wait years before getting this confirmed as tests for all other conditions are looked into.

Has anyone noticed (if there are any members left with ME/cfs,) that this site has changed over the last year? I feel so sorry for all the people with fibro but what about us? I used to look forward to thinking "oh, I'm not the only one", Now it's "OMG, I'm the only one on the site!", Very disappointing. I would just like to know where all the others have gone so that I can go there too. Anyone know ?

I have FM for over 12 years now, I've read numerous books, I belong to the National Fibromyalgia Network, The Fibromyalgia Association, and follow the latest research on many aspects of FM. These include, medical and pharmaceutical research. There is NO evidence that people with FM have brains that age faster. There is a neurological aspect to FM that can affect our brains. Our neurotransmitters may not be firing right to put it simply.

I research fibromyalgia because I have it and I am a site leader on another site constantly. My husband has Crohn's disease along with other things that go with it but he is allergic to Remicade. I have never seen anywhere that Remicade was used for fibromyalgia or CFS/ME.

I came upon this site accidentally...and was reading some of the questions and answers. How can you offer medical advice if you are not in the medically field?

It was recorded, and yes, it is available online. Look at the pituitary network site.

I call BCBS and they say this Doctor is in the network; and then I log onto BCBS site and it shows the doctor is in network; BUT when I call the doctor the office says they are not taking the insurance and BCBS list is not updated. I even have a rep from BCBS call the office and they tell the rep the same thing. I do not know if I should switch to the Humana POS or stay with my BCBS. My BCBS is an awesome plan if I can just get seen.

They do not cover out of network providers. They say that if there is someone in the network that can provide the service my dd needs they will not cover out of network. I dont think the NL in Westchester can provide my dd with what she needs but I think The Chiari Institute can. I am not sure if Hudson Health Plan will see it that way. What can I do to convince them?

Everyone thinking of or in the beginning of recovery YOU CAN DO IT. The people on this site are such a great support network. Thank you and God Bless.

Hi! I have been on the Fertility forum of MedHelp for a number of years now, but was just re-directed to this forum today (The Complete Idiot's Guide to Fibromyalgia recommended it)... I am 37 years old and have had fibromyalgia since being run over by car in kindergarten. Unfortunately, I wasn't diagnosed until the late 90's and just today had my first appointment with a fibro-specialist.

Hello--I am new on here--I have had hepatitis c I figure about 35 years--I have had the elastograph and fibrosure blood test-A year ago my pcr was 14,500,000-In the last 5 years I have been dxed with fibromyalgia,gastritis,barretts esophagus,Raynauds,cryoglobulemia and recently hypothyroidism and celiac. At first all the diseases were seperate--then Drs felt they were all from hep--Now we are back to seperate again.I have been from rheumotologists to hepatologists to gastroenterologists.

t like to advertise that they will pay for out of network/out of spec tests, but you may be able to get a friendly in-network doc who can make some maneuvers.

Fibromyalgia network site

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