Fibromyalgia network org

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fibromyalgia

627818 tn?1271777026 I don't know how many of you get the National MS Society newsletter online but yesterday's version had some interesting articles in it. There is some good research and clinical trials going on, so I thought that was encouraging! I'm sure you can go to the NMSS website - it is one those org ending sites, and sign up if you don't already receive it.
Avatar f tn I am new to this and haven't written about anything.I have been treated for fibromyalgia for over a year now. The dr. never really stated I have fibro. I'm being treated for high cholesterol and trigylcerides. I'm taking welchol powder once a day and trilipex for this. I'm taking lyrica 150mg. bid and mirapex at bedtime. I went to get a lab slip yesterday for blood work and was informed i needed to be fasting for my cholesterol and trigy. levels.
Avatar f tn Fibromyalgia is a diagnosis of exclusion. This means it is diagnosed when all other conditions have been ruled out. It is not a disease. It is a group of symptoms. Lab work is usually normal in fibromyalgia. There is no true, measurable inflammation even though it feels like things are inflammed. A good and informative link it fibromyalgia-symptoms. org. I'm not a doctor but considering your elevated sed rate I would seek another opinion if it were me.
806806 tn?1239513014 ve been diagnosed with Fibromyalgia, Chronic fatigue, adrenal fatigue and a pituitary microadenoma. Oh yea, depression too. I feel like **** at least 90% of my days. I get overwhelmed very easily, any stress to me can put me down for the day. Stress to me lately can be the phone ringing too much or traffic etc. Is there anyone with any advice on what to check or questions to ask. I'm wasting away.
Avatar f tn There might be solutions for planned hospital stay/procedures, it depends on a state you are in. First, find if your state has a program. Then find a hospital that participates in it. They will require proof of income; if your income is less then certain threshold, it may be free for you; above it, you may have to co-pay some portion according to sliding scale. For office visits, I haven't heard of any public assistance programs.
Avatar f tn Hi I have been sick for almost ten years with some sort of auto immune disorder first dotcter thought was lupus and sent me to rhemutology .all of my tests kept coming back negative except for my ssdna was always high during a flare over time sympoms have gotten worse i have a rash that comes and goes on my face wierd swelling some times my hands some times my ancles it varies with the flare ups have had a head ache for months urine has come back posative for blood and protien .
Avatar n tn What kind of doctor should I consult as my primary care provider for fibromyalgia?
Avatar n tn Ditto what fibromed said. The blood tests just rule in or out other causes for your symptoms like autoimmune disorders etc..
190673 tn?1259203266 I have IC and am the director of MOARK IC a support group for Missouri and Arkansas. The ICA and the IC-Network are both support org. with a lot of info on IC. You might also consider getting a referral to a pelvic pain PT they are often more helpful then anyone else.
Avatar f tn Lyme is bad enough, and then you gotta deal with the clueless portion of the medical profession. I hear you. It took me 20 docs to even get a Lyme diagnosis, and the trick then is finding a good Lyme-aware doc. Are you stuck in a medical plan that requires you to stay in-network only? My insurance at the time reimbursed me for out-of-network docs, but at a lower rate than in-network docs.
Avatar f tn Hi to both. Please check a thread in the Fibromyalgia Community: "medhelp(dot)org/posts/Fibromyalgia/IWillDoThis-To-help-Alleviate-Fibro-Symptoms/show/1677486" You will find some helpful suggestions and hopefully alleviate your suffering. Should you have any questions, or just to comment, please do not hesitate to post again or pm me directly. Take care.
Avatar f tn i was checked for lyme disease he said everytest came back normal he did tell me that my thyroid is enlarged but when they did a ultrasound it came back normal they did blood work that came back normal ...
Avatar n tn Here is a good link: fibromyalgia-symptoms.
929287 tn?1244319023 Wow, it sounds like you have a lot to deal with. From the mayo clinic website: "Connie Luedtke, R.N." "If one of your parents or siblings has fibromyalgia, your risk of also developing the disorder increases dramatically." I have two siblings myself who have been diagnosed with fibromyalgia, and it definitely can cause a lot of pain. Have you looked up restless leg syndrome? Have you had your catecholamines and plasma free metanephrines checked?
Avatar m tn I have been diagnosed as having fibromyalgia, and have suffered from severe pain in my muscles for around nine years. In the past I have had positive ANA counts, but recently had a negative ANA. I have had six bouts of uveitis, with several being severe. After I had the most recent bout of Uveitis, I again had extensive blood work done. The only findings were elevated C-Reactive proteins and elevated Sed Rate.
Avatar m tn t take case unless NSF diagnosis by skin doc, but you can have retained metal that dechelates or is retained if told to take iron, zinc , copper, etc, read rsna org, auntminnie com and fiercebiotech com sites, see fda gov and nyas org, free registration, Fourth Annual NSF conference, e briefing 13 Sept 2010. I have skin sx began July 2011 till now, prior, and concurrent , R arm pain, diff walking, balance, fatigue, dec appetite, diff sleeping, irritable, etc.
Avatar f tn //flash.lymenet.org/scripts/ultimatebb.cgi? List all your daughter's symptoms.
Avatar n tn "The Food Allergy & Anaphylaxis Network" has lots of information, most of it aimed towards kids. I just checked (it's the dot org site) and they have cookbooks as well as recipes. BTW...I'm allergic to soy and have problems both with food and topical. Soy is in lots of shampoos (not sure about baby shampoos), lotions, soaps, ink etc. I can always tell when I'm using something I shouldn't because it makes me itch like crazy...then I get a rash.
Avatar f tn I have FM for over 12 years now, I've read numerous books, I belong to the National Fibromyalgia Network, The Fibromyalgia Association, and follow the latest research on many aspects of FM. These include, medical and pharmaceutical research. There is NO evidence that people with FM have brains that age faster. There is a neurological aspect to FM that can affect our brains. Our neurotransmitters may not be firing right to put it simply.
Avatar n tn Lyme disease,autoimmune causes or secondary to some medications. Imay add that I have Chronic EBV Fibromyalgia and Chronic fatigue syndrome. What does this mean? Iguess the antibiotic that I am still on is not helping. Please advise.
Avatar f tn I had lyme disease that the doctor thought was later stage lyme, Had been diagnosed with fibromyalgia, probably after the first lyme was ignored, and now years later I had microscopic colittis. I have severe degenerative arthritis that is destroying my spine. I think everything goes back to lyme disease. I only had the 28 day antibiotic treatment. Please help me if you have any ideas.
Avatar m tn Energy industry officials argue that the Keystone XL would be no different from an extensive network of energy pipelines already in place – and some say its state-of-the-art design would make it safer than many of the country’s aging pipelines. The State Department would have to sign off on the pipeline because it spans the border between the U.S.
1943833 tn?1349276589 I have wondered often over the last few years if I have Fibromyalgia, but have never asked a doctor about it because I don't seem to have the tender points. I'm wondering how many of these symptoms are "common" for fibromyalgia. Or maybe CFS? -occasional severe sensitivity to noise. I can be sitting in a room, with people around me and noises I would normally not mind (kids playing, etc) will "hurt". I don't really have a headache, and it's not an actual pain.