fibromyalgia mayo clinic

I've not been to the Jacksonville Mayo or the MS clinic in Houston, I'm sorry about that. I have heard a lot of good things about the University of Texas Southwestern Medical Center at Dallas and Dr. Elliot Frohman who works there. I'm sure if you google his name you can find out much more than I can tell you about, here.

Has anyone from the MS forum ever seek treatment for their MS at the Mayo Clinic? If so, how was your as your experience with physicians from the clinic? I am considering driving up to Mayo at some point if my neurologist in town can't definatively diagnosis me.

I have just made an appointment for a full work up at the Mayo Clinic, does anyone know the tests involved and how much they charge? Thank you!

I am over the moon excited that DH got a 5-10 day appointment at Mayo Clinic - Dec. 10. Anyone have any experiences on what to expect etc?

Some here on the board are not real pleased with the Mayo clinic. It seems they have their own set of standards to give out a dx of MS. I personally know nothing about them and wish you the best....hoping for that answer.

Has anybody here been to the neurology clinic at the Mayo or in their inpatient pain treatment program?

My sister was diagnosed with MS (finally) after going to the Mayo Clinic. She had been trying for 2-3 years to find out what was wrong. Her doctors in Kansas were perplexed. She feels like they were not sympathetic to her pains, treating her like she was making it up. She said the doctors at Mayo Clinic are proud to the point of being pompous-but they know their stuff, so they have the right to be that way. She thinks I have MS from my symptoms, because my symptoms are so similar to hers.

I have been at the Mayo Clinic for the last week. It has been a very pleasant experience, given my circumstances. They have been very efficient and very informative. They have treated me like a person and not just a number. I am very impressed. I am looking for some personal advice on medications. I was dx with CIS due to the fact that I am not really experiencing any symptoms other than the optic neuritis, which has resolved for the most part.

Hello. My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!

Have since been to mayo clinic. I have Fibromyalgia, POTS, Elher-Danlos, Myalgic Encephalomyalitis, SEID to go along with the Celiac and Hashimotos that I already knew about. Wow, I was not expecting that. The first doc that looked at me 6 years ago ruled out the fibro as I didn't have the tender points. Either they developed later or he didn't know how to test for them, this time around I had almost all of them so easy diagnosing.

Truthfully, I've heard one of the best MS Clinics in the US is the Mellen Center at Cleveland Clinic. You might try checking out http://www.mscare.org They list all the clinics available, etc. My neuro said the clinic at Cincinatti isn't that great but thinks Cleveland Clinic is really good. I've never heard of the Mayo Clinic being highly rated for MS, but more for heart desease.

I have seen my PCP, many specialists that she has referred me to and gone to the Mayo Clinic as a final resort. I was diagnosed with Hashimoto's thyroidits and several stomach ulcers and FMS. Upon my discharge, I was referred to a physical medicine dr at Mayo. Over many exams sensitivity abnormalities were found in my legs, ie patches of numbness which no one could place.

I decided that I should travel to the United States and hopefully get a diagnosis. I know that Mayo clinic and Cleveland clinic have a good dysautonomia clinics but I don't know which one should I choose so I would appreciate any suggestions !!! Also I know healthcare in the US is so expensive and since I don't have insurance I wonder how much such a visit to one of those hospitals will roughly cost ?I know it's hard to tell but I'm asking for a roughly cost. Thanks.

I have POTS and am supposed to go to the Mayo Clinic in Minnesota this winter. I'm curious who has been to Mayo before and how their experiences went. Did you use the POTS clinic part of it or something else? I am also curious because I am mainly going to see if any doctor can figure out the underlying cause of my POTS (my current doctors are not interested in testing for any possible causes of it). Should I go to the POTS clinic part of it or should I just see a general doctor there?

been on disability ever since. anyhoo, there is a fibromyalgia clinic in Tucson, AZ that seems to be part of a family of FMS/CFS clinics all over the US. Their approach is more holistic and I don't know if they use narcotic pain meds as part of their treatment protocol. I was not able to get my BCBS to cover the cost of a visit to them, so i have not been yet. I think I'll just suck it up and pay the cost myself just to go see what they have to offer.

Maybe I was too harsh about Mayo. To be fair to Mayo Clinic, I do think they do have some very good doctors there, maybe it's just hard to get a neuro diagnosis - as it seems to be most other places in this country - so what's new? I did really think the Mayo radiologist who looked at my films was excellent - he found a couple of things the original outside radiologist did not notice such as brain mass loss.

I have had every test known to mankind then some,, even went to mayo clinic,, I have had a punch biopsy done on my leg which showed small fiber neuropathy,, I have been on somany pills that it takes up w whole sheet,, I have been told its Sjogrens syndrom even though my bloods are negative,, rheummy believes i have it,, the burning is nonstop,, now neuro surgeon says there is no way neuropathy can cause all this,, he thinks its some compression of the cervical spine,, and wants MRI;s done,, ya

Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.

t hear back from them right away - I requested an appointment with the Mayo Clinic and it was almost a year before I heard back from them! If your current docs office does the request/referral, though, it should go a lot faster.

Cleveland Clinic and Mayo Clinic are obviously both top-flight medical centers, so the choice between the two would not be so much "which is better, Cleveland or Mayo;" it would be which one has a doctor or program that is more specialized to what you need.

A while back I entered the patient scholarship opportunity for the Social Media conference at Mayo Clinic. You may have even been one of the many people who ‘liked’ me through Facebook. They awarded three scholarships for the patient/caregiver and one companion to attend the conference. I was not one of the three people selected to attend, but I did reach out to the winners with my congratulations.

I just read that the Mayo Clinic in Arizonia is denying medicaid patients due to low reimbursments. They have to pay cash. Any thoughts?

I went to the Mayo Clinic in AZ in January - hoping to find some answers. I will say that it is a very well run facility - but don't pin your hopes on a big "well known" facility to solve everything for you. The neurologist that I saw at the Mayo clinic didn't want to see my timeline or my list of symptoms - although at the end of my initial appointment, he did take my list of symptoms to include in my chart.

Primary hyperparathyroidism removes the calcium from your teeth and bones and deposits the calcium in your kidneys (kidney stones), bladder, blood vessels, muscles, and body organs. The doctors at Mayo Clinic tested my hydroxyapatite crystals, which are clinically elevated, but did not do anything with the results. My mother and grandmother had these same problems, which doctors can only prescribe pain medicine.

Fibromyalgia mayo clinic

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