Fibromyalgia and peripheral neuropathy

Common Questions and Answers about Fibromyalgia and peripheral neuropathy

fibromyalgia

My ankles have no reflexes. I have been diagnosed with peripheral neuropathy, fibromyalgia, and chondromalacia patalla. As a result of an EMG/NCS conducted at the Emory Clinic in May 2008, my neurologist concluded that I don't have neuropathy, but diagnosed diabetes as a result of an oral fasting glucose tolerance test (fasting result was 117). Yet all of my A1C tests have been in the high normal range.
It took some time to realize that this was peripheral neuropathy and that I did have severe nerve damage, and it was progressing rapidly. The difference in our experiences though, is that I knew I already had some neurological problems from a spinal injury before I began taking any psychtrophic medications. So, in my case at least, I know which came first. It was the nerve damage, not the Effexor.
I am glad you found us but sorry to hear about all your medical problems. Yes you can have both neuropathy and fibromyalgia. As Jan explained they effect different systems. Just as you can have asthma and COPD. They are two very different diseases. You can have one and not the other. Generally diabetic neuropathy does not appear until the disease has progressed and not during the early stages, or in your case "showing signs.
I went to my doctor and he said I may of had Lupus, Fibro, Rhuematoid Arthritis, Neuropathy, or 6 other things I can't pronounce. He did blood work, upped the dose on the Neurontin and my Darvocet at night (when it is worse) and called me when my labs came back. Said he wanted me to come in today. He told me he spoke to my Neurologist and my labs came back showing an official diagnosis of Neuropathy. He said it was caused by my other official diagnosis of Hypothyroidism.
'06 - I could barely drive - legs weak, burning hands burning and extreme fatigue. Had MRIs with contrast brain and spinal cord, lumbar puncture - all neg for MS. Neuro tested for viruses - high levels for HSV-1, CMV and HHV6 - he put me on Famvir (I had no cold sore). The burning continued until May '07, then started to subside a little for a month. It came back full force until now - it is subsiding again. I have to have my feet cool and I am taking Pamelor, Neurontin to help.
Sorry to hear about this. Is there anything you can recommend that would help with my recovery from your experience?
This test revolved around the hands and arms and the neurologist told me upon finishing the test that I had a neuropathy in hands and arms. I proceeded to have two carpal-tunnel surgeries on both wrists and the pain resolution was not successful; in fact the surgery seemed in exacerbate the pain. Furthermore, I continued to be treated for a shoulder ailment which included in treatment, shots and phys.-therapy as well as a more targeted injection with the assistance of radiography.
My feet go numb while laying in bed and sometimes if I stand on them too long, my va doctor says I have peripheral neuropathy. He is a physician assistant through the veteran care. He says the only thing to do is put me on neurotin. I of course asked for a referral to the neurologist. He says the dr. of neurology does not take neuropathy patients. I complained to the patient advocate saying that I needed to see a specialist. She got the head doctor of some dept?
Walking is becoming hard to do because of the pain and when my breathing gets heavy, my upper back stings between my shoulder blades. My great great grand mother, and my mom all have had or have peripheral neuropathy but it is due to diabeties. I am not diabetic. I do not get the tingling feeling or the burning sensation. It simply hurts and is stiff. I am also having urinary retention. Does this sound like peripheral neuropathy or do you have any other suggestions as to what it may be?
The pains/tingling are mainly around the ulnar nerve (last two fingers and u to the elbow), but I also get pain and tingling in the radial nerve (thumb and first few fingers). The symptoms are definitely worse in some positions (ie arm out straight, flexing the wrist) in both arms. To complicate matters, I've also been getting pains in my heels/feet and tingling in the toes sometimes, but it's much less severe and doesn't seem to be brought on by a particular position.
I have idiopathic peripheral neuropathy (and fibromyalgia). The EMG test did not show this (my neuro ordered it only to see if I had "large fiber" neuropathy). These tests that showed my neuropathy: skin biopsy and Q-SART. My troubles started after a car accident with whiplash. Got worse and had to cut back on work to 20 bours per week, then had to stop working. Cannot travel much or excercise much either.
This is for the many posters on this board who report variations of peripheral neuropathy and MS-like symptoms, especially the many who are frustrated that conventional medical testing and workups have left you without solutions, or even diagnoses.
Anyway, they eventually told me it was Peripheral Neuropathy caused by B12 Deficiency and sent me home. My neurologist doesn't believe thats what it is. It's now nearly June and I'm still not better. I'm B12 is fine. I had three Kidney Infections since then. I can walk at least but I get tired very easily and experience a lot of pain after. I'm constantly tired. The pain is still on both sides of my body but the right side is a lot worse.
I was given the medicine Lyrica, which is for fibromyalgia, which I do not have, and that medicine takes the low back pain away, as well as in my feet! I have been taking it for nearly a year now, and I am not only more comfortable, my mind is able to focus better because I'm not distracted by so much pain. So, I think you should ask your doctor to give it to you, and see if it helps.
My peripher al neuropathy is diagnosed, but we don't no the cause,,I have a great neurology doc and my family doc working together. I am on alot of meds, trying to keep me out of as much pain as possible. I take Neurotin. It is a good med. but I take it along with alot of other med..you just have to get with a good neurology doc and go from there. They can do alot of tests..Sometimes its just finding out the cause and they can get rid of the perepheral neuropathy pain..
It sounds like you are getting a little bit of the run around here. You really need to see a Rheumatologist who is friendly to Fibromyalgia. I looked at your profile and didn't notice where you live. Are you in the states or outside? Below is a really good website to find a doctor or provider who knows how to treat and diagnose FM and CFS. Depending on where you live, I may have one more site for you. http://www.co-cure.org/Good-Doc.
Nobody, can tell me why, and there is no medication that works.. I have had all of the tests known to man, (and doctors too), and still cannot lead to why it came on.. It is crippling.. The best thing seems to be to grin and bear it and work my butt off, on my feet, although they are killing me. Then the next day is not so bad.. I don't get it. Is not gout, and no abnormal color or ulceration. Feet feel like they could explode any second,,, but are not swelled at all.
The really overnight I started having pain in legs, fatigue and pin and needles in legs and arms, numbness in toes, toe pain and lots of muscle twitches about all over. Then a lot of fatigue and I went from 6 workouts a weeks to none and barely able to walk 1/4 of a mile. The I noticed that I was losing muscle in my arms as they look more wrinkled even at age 56 I was fit and firm. I want to family doctor and got like 30 different blood tests and all normal including b12.
But its off-label uses include the treatment of peripheral neuropathy, trigeminal neuralgia, cluster headaches, migraines, and reducing neuropathic pain.
RedLabsUSA is a national lab that apparently is able to diagnose both Fibromyalgia and CFS. The test is still a research test at this time. So there is a fibromyalgia - thyroid connection, but there are also people who have been misdiagnosed with fibromyalgia. And on top of that... some fibromyalgia patients can go for years without a fibro-flare.
I have had hashimoto's for over 45 years and have just been diagnosed with peripheral neuropathy with axonal and demyeliatng features. I am told it is most likely related to my thyroid dysfunction. My symptoms included bee sting like pains in my feet and legs, sensations of both burning pain and areas that sometimes went cold, numbness and cramping and lessened sensations. The testing was EMG and nerve conduction studies by a doctor specializing in Electordiagnostic Medicine.
Have you ever been checked out for Lyme / Borreliosis? It can cause the same symptoms as fibromyalgia, chronic fatigue, neuropathy, and many other neurological, gastrointestinal, and other issues. In Europe, arthritis is less common than it is in the US. Here is a document that has a thorough list of symptoms seen in the US. http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf You can also do some research online to learn more about it.
Hi Lin, You mentioned that the docs sent you for a test on your arm and determined by that test that you had peripheral neuropathy. Do you remember what kiind of test this was? My doc is sceduling me for an EMG have you ever had that done? I am kind of scared of what I have read about the needles being stuck in your muscles. OUCH!!!!!!!!!!!!!!!!! What other tests do you think might help to diagnose the problem? Also, I have a question... you said you don't know how you got this.
I was prescribed neurontin for the neuropathy. Hope this will help with neuropathy and burning in legs. I have those differential diagnosis's as well.
In April after a 4 month battle with dealing with symptoms I finally was dxed with peripheral neuropathy. I have seen 2 neuros. the first one and I decided to go our seperate ways because his main focus was to prove to me that I didn't have ms as my primary care doc had suggested. As soon as he did that he basically told me that he thought I had an anxiety created neuropathy. my new neuro disagrees completely. All of my reflexs are still intact (thank god!!!
What exactly is Agent Orange? Is Fibromyalgia now considered a close cousin to Peripheral Neuropathy (PN)? PN is one of the conditions military retirees would need to qualify for damages received because of Agent Orange. I did find one old posting here from 2004, but I know there must be much more uptodate info out there now. Thank you so much.
My joint pain is better on tx. I hope it stays that way. Lyrica is a great drug for fibromyalgia and Peripheral neuropathy. Beacause it makes me a little "loopy" I can't take it - I drive all day, but most who have taken it swear by it. It also helps you to gain weight (Which is good for those on tx) Anyhow, find a good Rheumy to help. They know about HCV and all the extrahepatic manifistations that go along with it.
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