fibromyalgia and lupus

Just wondering who on the board might have diagnoses of both MS and fibromyalgia. What are your most common symptoms of both? And a question for the medical experts here: does having one of the above disorders predispose you to having the other?

My Rheumy already said I have a connective tissue disease. He said the rash that I have on my face and neck is a conective tissue disease. He said it points toward Lupus and not Rosacea. He said he thinks have Lupus but not saying right now. I've been with him for three years now. I don't have enough symptoms for Lupus. If you have CFS for less than 5 years, some people recover. But the longer you have it, then you really don't recover. My specialist was CFS Dr.

t the brightest in the world, but they care about their patients and actually spend time with you instead of trying to kick you out the door in 15 minutes or less. Oh, and I am on both a lupus med and a fibromyalgia med... I am taking Lyrica for the pain, which has been recently approved for fibromyalgia. It knocks a lot of pain out, but I warn you if you aren't on it... it makes you gain weight if you don't watch what you eat.

I get tested for the ANA and sometimes its up and sometimes down,I also have a negitive lupus and sometimes positive.My doc says its all connected,but still dont have any real answers so i have declined on the blood tests for now as theres always something out of balance yet no answers,and the old wait and see deal.So unless i am feeling unusally unwell(apart from the aches and pains) I just dont bother now.

then the pain was intolerable from the lupus and went back to the pain meds. Since then I have been diagnosed with Pericarditis, Sinus tachycardia, Mixed Connective Tissue disease. I go to see pain management on friday. I would so like to go back to life prior to all of this....but I just don't know how to handle pain. Has anyone gotten off successfully with a systemic disease like mine and if so what do you do for the pain. I have tried Acupuncture and Cortisone shots to no avail......

I got to spend a short time in Florida the last 2 winters and I found it very agreeable. My husband and I plan to spend 3 months in Florida this winter. I don't know if summer in Florida would be good for me, since really hot weather and high humidity bother me as well.

I know many people with dual or even triple diagnoses - RA and lupus, lupus and PsA, RA and fibromyalgia, etc. Whatever the diagnosis, though, the treatment for RA, PsA and lupus are nearly identical. So what label you stick on it is less important than what meds work for you to make you feel better and slow down or halt the disease progression.

t have myoclonus what would she think I had she was non commital and has discharged me and booked me in for rehabilitation for my muscle issues, bad back and myoclonus. Any input welcome.

But, I never heard of pleurisy and fibro. And she kept saying it was from lupus until our last visit, like she just got tired of me bringing it up..... So, don;t know what's up with that twist. Haven;t been offered steroids yet. I keep hearing that that works wonders, but I feel weird asking the doc for drugs, since she is the doc and I am the patient, but, maybe I need to. Because between the chest pain and the rib pain, I'm in pain!! (No kidding, right?

I am a 31 year old female who suffers from chronic pain...in my lower back, shoulder/arm, chest, knees, hands and feet. I have bouts of iritis and my fingers and toes stiffen at random times and hurt when they do so. I've had problems with my vision (blurry, eye twitches, and seeing specs). Stress, lack of sleep or fatigue can worsen the symptoms but sometimes they occur almost out of the blue. I've gone to doctors and have been tested for lupus and arthritis...

Thank you for answering. I am 55 years old. No history of diabetes or hypertension. I have had numerous blood tests, and MRI to rule out MS, lupus, diabetes. Everything came back O.K., except Rheumatoid Arthritis showed up low to moderate level.

My husband and I were both diagnosed with fibromyalgia. Our fibromyalgia pain has gotten so much better since we have been in treatment for lyme disease. Being in the army means you do a lot of work outside in all kinds of vegetation. You don't have to have a bullseye rash and getting a negative test result does not mean you don't have it. The testing for lyme disease is very poor. I should know because I had 4 tests and they all came back negative.

This pain has gotten worse over these months and now it hurts to do anything, it even hurts to do nothing. My doctor has ruled out lupus and rheumatoid arthritis. I am in the process of more tests now but I don't know what to do in the mean time. I have 3 kids and a husband to take care of but I can't even take care of myself. Please help me I'm miserable.

Sounds like the mysterious Fibromyalgia. Those of us who have it take vitamins and minerals. Sometimes Gabapentin (anti seizure medicine) will help. My supplements include Essiac, CoQ10 and Ipriflavone. I have very few bad days now. But I do still have a "flare up" from time to time. There is no cure for Fibromyalgia yet.

It would seem to me that certainly sleeping issues would go along with lupus and fibromyalgia! I know I have lots of fatigue and there are days that if I'm sitting still I will nod off b/c our bodies just need the sleep that much imo. I don't know if there is another treatment they would be giving you for narcolepsy? My guess is that if your symptoms fit then they will pursue the diagnosis for you.

I'm concerned I may have lupus in addition to or instead of fibromyalgia and the rheumatologist I saw is just blowing me off. I recently went to my pcp and he ran some basic blood tests. My rheumatoid factor and my sed rate were elevated, so he sent me to a rheumatologist. The rheumatologist took 17 vials of blood so they could check for everything.

RA and fibromyalgia can often go together. Have they ruled out Lupus as well? A 2nd opinion does sound appropriate.

s so hard to tell what is related to what when one has fibromyalgia and I am not sure doctors know either so I have learned to listen to my body and my intuition more and treat myself gently...

I had to have Lupus and MS ruled out before we conculded that it was indeed Fibromyalgia. It is often hard to tell for sure because the symptoms are so all-encompassing. I did a lot of research myself and had my doctor write me a referral to a rheumatologist because my doctors kept telling me I was "depressed" and that fibro was a "waste-basket" diagnosis. I was thinking.."if you don't HELP me...I'm going to BE depressed, thank you very much!

I have Raynauds phenomomen, so my hands get very painful when they get cold and because of the rheumatiod arthritis my joints in my hands get red and hot. You know all the doctors always want to put people on antidepressants for Fibro but I've yet to hear that they work at relieving the pain. I know several people like yourself is on something but they still have pain and the numbing and tingling. Have you been offically diagnosed.

Very interesting. I have hypothyroidism, ulcerative colitis (surgically cured), lupus, and fybromyalgia. I've not been told I have endo but I do wonder if I do as all my organs are glued together from so many surgeries and I have awful abdominal pain outside my uterine area just before my period.

One common finding among autoimmune patients with positive ANA and RNP as well as fibromyalgia syndrome is that over 75% have chronic bacterial and viral infections. I suggest that you consider testing for some common infections found in these conditions. A list can be found on our website under Clinical Testing (immed.org). If identified, these infections can be treated (see information under Treatment Considerations on our website).

RA often occurs along with other disorders, like fibromyalgia, lupus, thyroid deficiency, and more. Additionally, RA can affect the cartilage in your rib cage, which is called "costochondritis." It can be mistaken for pleurisy if the doctor is inexperienced in dealing with autoimmune disease patients. Don't give up!!

Can Anyone tell me what should be included in a autoimmune workup for a person with Lupus/fm/ MS type symptoms and what specifically one should look for. Also, what is a really high Sed rate level. I know 40 is high but what is a little high and what is shockingly high in nature. Also why would a doc suggest a muscle biopsy in general and are there blood tests that would make this a non necessary proceedure? Also is a elevated sed rate a reason to rule out fibromyalgia?

Fibromyalgia and lupus

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