Enbrel lung disease
Common Questions and Answers about Enbrel lung disease
enbrel
I have had several lung infections over last three mts. Just out of hospital where boop was the only possibility until my lungs were flushed and bacteria was found. I have also been exposed to mold-a lot -in my aptm recently. No one could tell me if fungal test was back. There were no biopsies done- no masses,cancer blood clots. I have RA and had a staff infection last summer after stay in hospital. Lung infection and vulva ulcer. Months on heavy anti-biotics to clear it.
I have been diagnosed with Interstitial Lung Disease and Pulmonary Fibrosis. Also Traction Bronchiectasis. I am on 5 ltrs of oxygen 24/7 for the Fibrosis.
These are my last two CT Scans:
CT Scan: 11/18/10- Lungs: Bilateral upper and lower lobe interstitial thickening with groundglass opacities and traction bronchiectasis. Splenic granuloma. Spenule is present. Hepatic Steatosis (fatty liver).
I was concerned from the stand point of having problems with my lungs because what I have read says not to take methothrexate and enbrel type meds with lung issues. The CT of the lung said facute versus chronic and follow-up of this area is recommended, so that was why I was worried. My doctor finally called last night to say I needed to come in so he could talk to about both tests but was more talking about the thyroid scan than the lungs.
Thank you so much!
got my sides mixed up under left breast
My doctor wants to put me on Enbrel but i am nervious about it. All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, lupus or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on Raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But Enbrel scares me.
Thank you so much. I am just home from another appointment. They presume it is my rheumatoid arthritis, like rheumatoid nodules from what they are saying now. My R.A. doctor says my R.A. is quite severe now and we need to treat that and maybe the lungs will improve. I was on methothrexate and enbrel for a while, they don't know what caused this lung problem; the drugs or the R.A. So we are just in a holding pattern.
One young wife lost her husband to an inflammatory bowel disease - she insists he became worse when Enbrel was ordered and that it was responsible for ending his life. I can't say that is a certain fact - however the widow would otherwise.
Enbrel can cause serious side effects. Your Rheumatologist should not argue with your concerns - if he/she is educated about Enbrel - which I am certain they must be.
I know that achilles tendon and plantars fasciatis are common in ALS but, are you more prone to injuring your tendons/ligaments in general because of the disease? I am wondering if the inflammation that is found in tendons/ligaments causes them to injure more easily or if I have just become an unbelievable Klutz!
Any information would be appreciated!
Recently, the RA flared up and my doctor added Enbrel. I have severe headches and feel like my heart is beating so fast that i get dizzy. The doctor thinks that this is because I am on yet another medication and my body has to adjust. Is anyone familiar with this drug? Has anyone gone as far as to have a second opinion for their RA? I just find it scary to give you one drug to have to counteract side effects with another. Then they add more.
A friend of mine has PA and has been taking Enbrel for years and she is in great health now. I started taking it 14 weeks ago after being so miserable for 4 years. I feel the best I have since getting sick 4 years ago. I urge you to speak to your Dr. about it. Take care.
I am 42 and have been on Enbrel for 8 years now. The Sureclick was no good for me because I can't stand not knowing if it is all in me or not. Also, the two most feared things in the world to me are needles and knives. I waited a full month before building the courage to give myself my first injection and it literally stared working overnight. I have very mild AS and have a fairly large dose of Reactive Arthritis (Reiters' syndrome). Both knees, one toe, neck and both wrists.
I am having the exact issue you describe, except I'm on Enbrel. Just started seeing an ENT specialist to try to get to the bottom of it. The Enbrel works for my RA when I can stay on it, but then I get sinus infection and have to go back off... it's a constant cycle. Constant headache behind my eyes and sinus congestion. I take Allegra D for sinus and Bultalbital (prescribed) for the headaches, but it barely takes the edge off. Been dealing with this for years...
He diagnosed me with Psoriatic Arthritis which is an autoimmune disease that he believed was triggered by the interferon. He wanted to start me on Enbrel right away but I opted to wait. I did have some steroid injections though.
Well....slowly but surely the pain started to subside. It took a few months to really notice the difference but Im now 11 months post treatment and all the joint pain is gone. Im glad I didnt start the Enbrel and was patient.
Every single medication comes with some very scary risks,I know exactly what you are going through and tried every natural cure I read about, my disease was too severe for any of them to work. The Enbrel has helped me tremendously, I did not want to take it either at first and it took about a year for me to realize I was getting worse and life was passing me by, I missed out on too many things because I was always in too much pain and too tired/fatigued to have a life.
The cyst on your back is not related to the pneumonia unless it formed a track containing puss to the lung from the back. If you still have symptoms of pneumonia, please see a lung specialist - a Pulmonologist. They will order a CT of the lungs to look closer within the soft tissues and ask them to order Lung Function Testing to see if you are breathing adequately and have good lung capacity.
weird, never thought that enbrel would be a cause of hpv. I have developed hpv before starting on enbrel. what connection is there between the two?
AROUND THREE YEARS AGO I WAS HAVING FLARE UPS AND MY DOCTOR ALSO ME ON ENBREL, WORKED VERY GOOD FOR THE RA BUT MY NOW MY THROAT IS ALWAYS SORE AND CONGESTED WITH PHELM. THIS YEAR I'VE SEEM NUMEROUS DOCTORS ENT, GENERAL ALERGIST AND EVEN HAD SINUS SURGERY FOR 30 GRAND, NOTHING FIXED THE THROAT PROBLEMS. I SEEM MY RA DOCTOR THE OTHER DAY AND ADVISED HIM I'M GOING TO GET OFF OF THE ENBREL AND SEE IF MY THROAT CONDITION IMPROVES. HE DID NOT THINK THAT WAS THE PROBLEM.
My husband has had JRA since he was 7. He is now 27. He had his hips replaced at 16. He has the systemic version of this disease, and it isn't pretty. Last april we spent the entire month in the hospital with pancreatius. He has had his gall bladder removed and is on Creon-10 which from my understanding is a pancreatic enzyme. I guess my question is my hubby has been on prednisone and plaquenil. He takes hydrocodone for pain which is usually severe. The doctor has suggested Humira.
I have been told to get off Enbrel for needed gallbladder surgery. My problem is that when I get off Enbrel, every joint in my body swells, turns red, hurts unbearably and locks up. I become completely bedridden and cannot get dressed or go to the bathroom without help. My blood tests show that, even with the Enbrel, my c reactives and other immune response numbers are very high. They tell me that they will give me prednisone to help with the reaction.
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