Enbrel for crohn's

Common Questions and Answers about Enbrel for crohn's


The TNF Blockers work really well for the reactive arthritis related to my Crohn's Disease [Crohn's Colitis]. However, I have found that to varying degrees Remicade and Humira give me the following side effects. I am trying to find out if these are normal side effects and if anyone has found a way to manage them. Physical therapy is not giving me enough relief at this point.
The pain often would land me in the ER where I would usually get a CT scan because the ER Doctors thought I was either passing a kidney stone or having acute appendicitis. My doctors suspicioned that I had Crohn's and tested me for it. I had the IBD first step, but that came out negative. I then had a colonoscopy and barium enema and swallow. Nothing showed. When I had my EGD, however, it turned out there was some chronic inflammation present.
Please be careful to watch for infections and take care of them as soon as you know, my immune system was so thashed that my infections included fungal ones that nearly killed me and required daily trips to a cancer center where they gave me infusions (had to live with a central line for about 6 months) for it. Enbrel and Humira are great drugs, don't get me wrong here, they give us our lives back from RA but PLEASE BE AWARE FOR ANY POSSIBLE SIGNS OF INFECTION.
My son, age 24, is taking Humira for his Crohn's Disease and Ulcerative Colitis. He gives himself the shot every 2 weeks, but within 24 hours, he has a excruciating migraine for 5 days. He is on morphine and fentanyl and it doesn't even touch the pain. The Humira has kept him in remission for 4 years, so we don't want to go off of it, but I worry about what it is doing to his mind/body/spirit!
I have been told that I have IBS, then Crohn's. Water-loss stools X4/day X16 days/month. I was told that I also have RA, but now they are questioning it regarding my GI difficulties. Is there a link? How do you distinguish between IBS, Crohn's, autoimmune disease, etc?
Has anyone ever taken Cimzia for Psoriatic Arthritis? My Doc wants to switch me to it, but the problem is, it's only approved by the FDA for RA and Crohn's at the moment, although it's expected to get approval for PA "soon". I've tried Enbrel, didn't work; Humira, worked for a couple months; and Simponi, only works for 1 week of 4 and he wants to stay away from Remicade as long as possible.
Hi - I have had Crohn's disease for 34 yrs and have been on methotrexate (self inject 12.5 mg weekly) for 6 years, with a short break when having FEC chemo for breast cancer. I have monthly blood tests including liver function and everything has been okay until last month when my red cells were enlarged and white cells low. Gastro is keeping an eye on them, but has continued to prescribe it.
Hi there, Please don't be so quick to reject prescription medication. For every horror story there are dozens for whom the meds have literally been a lifesaver. I am one of them. I've been on Enbrel several years with no serious side effects and complete relief from RA flare-ups. There's a good chance it'll work for you too, but you won't know unless you try. Every patient is as different as a fingerprint. Having said that, it is ALWAYS your choice, your body!
There are lots of new and exciting treatments available now for Crohn's. Remicade and Enbrel are proving to be very effective in forcing and keeping the disease in remission. Ask about these drugs at your appointment. Again, good luck to you.
I have had symptoms for 10+ years, no diagnosis, looking for help. Approximately 10 years ago I started have sore hips/back when sleeping. Activity helped, classic ankylosing spondylitis symptoms. Numerous tests and drug trials (Enbrel, Humira, Indomethacin) have failed to diagnosis or help. I exercise quite a bit and years ago heavy workouts would lead to intense back and neck pain.
Hi, I have been on the thyroid community for awhile and not sure about the answer to your question, but so glad you asked here because it's a good question. Hoping others will stop by. I'm a Co- Community Leader for Thyroid and will post there asking members to stop by here if they know.
I dont know what to make of this, oh and steroids do help substantially.after a few days of taking them. Ive been on enbrel for months with it helping by about 15pct while steroids helped about 85pct. Sorry my question bounces around im taking gabapenten 3 times daily wich pretty much destroys my memory of short term and even long term memory to some degree. Please ask any questions you need i will respond almost immediately as i get all notifications directly to my phone.
The black box warnings for prescriptions for the treatment of rheumatoid arthritis, psoriatic arthritis and Crohn's Disease are required because of an increased risk of lymphoma and other malignancies. These medications include Remicade, Enbrel, Humira and Symponi. The FDA issued an update on 4/15/11 for long-acting beta agonists (LABAs) for the treatment of asthma.
after weeks on the net, your symptoms sound the closest to mine, after blood test, x rays etc, all they can find is borderline RA, and one of the test for autoantibody came back as 'inbetween', i thought that i had swollen lymph nodes (which i did for months) but when Dr checked today he said they weren't swollen? baffled me as the pain there is awful, (back of neck and groin) he's refered me to the rheumatologist, but i'm left feeling a bit baffled?
The black box warnings for prescriptions for the treatment of rheumatoid arthritis, psoriatic arthritis and Crohn's Disease are required because of an increased risk of lymphoma and other malignancies. These medications include Remicade, Enbrel, Humira and Symponi. The FDA issued an update on 4/15/11 for long-acting beta agonists (LABAs) for the treatment of asthma.
I have had exactly the same symptoms for the past several weeks. I saw my MD. He used a sort of instrument that caused me to feel vibrations. I could feel vibrations everywhere but the knee that has been bothering me. My doctor then told me to make an appointment to see a neurologist. He thought it might be caused by a small nerve but that it probably wasn't anything serious. Have you found out anything about why your knee feels wet?
No side effects, and costs only $30 per month without health insurance - the only possible downside is that it may not cure your incurable disease. People are using it for cancer, Crohn's, MS, fibromyalgia, autism, and all other autoimmune diseases. For hep c LDN will not eradicate the virus, but it will reduce the viral load levels and inflammation drastically and keep them there. Meanwhile, many naturopaths do the IV lipoic acid treatments - they do not have to be MDs to do so.
If it's an allergy (for me) I think it might be to MSG, if it's an intolerance (again for me) at the moment I'm thinking it's to very fatty foods. It's always worse when I'm stressing about something. Does any of that apply to you? You can get IBS tabs over the counter (we can here in UK anyway). Or you might want to try testing out foods to see if you are allergic/intolerant. It's a pain to do this (I keep meaning to, but haven't yet).
Its been like this for a little more than a month. A few years back, it was like this for nearly 2 years but went away for about 5 months the later part of 2007. Both reactions were right after I had sexual relations with a partner. The coincidence led me to believe std related but negative tests say otherwise. I myself feel lost and not sure what to do because from what ive been reading, it seems like the creams/moisturizers and medications do not really help so much.
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