Enbrel and rashes

Common Questions and Answers about Enbrel and rashes

enbrel

HI There! I took my 3rd injection yesterday and the pain and stiffness in my hands has subsided a lot. In the mornings it takes me almost 2 hours before I can stand up straight, or use my hands. My back and leg pain is still there but now I am being tested for MS and possible Myasthenia Gravis, a neuromuscular disease. All my problems started because of the RA, and as my back pain and leg pain got worse they dx me with the AS as well.
She has taken Methotrexate along with Enbrel, Humira, and now Orencia. All of her numbers are going up and her CRP and RF are rising significantly. Her rheumatologist is now suggesting Rituximab. It's scary to think that this drug is designed to wipe out all of her B cells. What can you share with us about side effects, success rates and long term effects of this medicine? Should she wear a mask to prevent illness?
I have gone through several coarses of Peg Interfeuron, Riboviran and so forth, The side effects were so bad , I lost my hair, I had chills and shakes and vomiting and aches and it felt like the worst flu ever. I made it through a Year once, the other two times I had to stop the treatment because ( this is just my opinion) the doctor was sick of hearing me complain about how crappy I felt. I have so much more to say but I'm a bit overwhelmed by actually finding this site.
You were giving updated reports on your viral load and alt ast numbers. Its been awhile and just curious as to where you stand now.
1974- Dx with 39% Scoliosis 1976-2000 - hospitalized off and on with severe rashes and temperal artirosis(temple blood vein bursted - mega pain) 1994 - Dx with Severe Rhuematoid Arthritis - fever- pain in shoulders and feet - could not walk. Took 4 months before my RA factor showed up. The main tx was prednisone and anti-inflamitories - lots of pain and deterioration 1996 through 2007 - Many surgeries to correct deformaties and pain.
I have rheumatoid arthritis and having problems controlling it. I am on 40mg humira every other week. June 2007 - March 2008 I was on Enbrel and prednisone. I started on 10mg prednisone daily in June of 2007 and reduced it to 2 mg daily currently since December 2007. I am also very fatigued, have no libido, skin rashes here and there, my hands have "hot spots" of red and swollen flesh which moves around every few days.
she has recently started bruising easily, constantly complaining of being tired and not feeling well and looks very pale, she has also had some petechiae on her chest (just a small area). i took her to her pediatrician and he did a cbc which came back normal. can someone please tell me what could be wrong with my child? i feel like the doctors don't seem to know what is wrong with her. There is something going on, but it's as if they don't know so they are giving up.
Like the other side effects of tx, rashes came and went all the time. I also got some 50 cent size itchy rashes on my lower thighs after a shot and they would usually resolve within 8 hours--go figure. Sometimes I would get dry, raised red spots on my face which the elidel helped. I used aveeno bath oil in the shower right before toweling off which helped. Exposure to the sun made it worse. Good luck to you and I hope you don't have much longer to go.
So going into treatment I had high hopes, albeit very cautionary and measured, I would be successfully treated…and with any luck finally offload at least some of the fatigue that has plagued me for nearly a quarter century. So what HAS happened after being treated and ridding myself of the virus? Well, a lot of things. Let me speak firstly of physical well being after treatment. As the drugs wore off late last summer (stopped tx in early June ’07), my body was a wreck.
I think everything is over and I clean up. I walk out of the toilet and in about 2 minutes time the stomach cramp and the fainting sensation comes back (I've fainted only once to date from this and was out for about 15-20 minutes). 6. When I get back to the toilet I have a really violent Diarrhoea episode in pure liquid state.
5 year process I had an infectios disease dr tell me it was all my allergies! I am not on Enbrel and diclofenac and have had fewer flares and am overall doing a bit better.
) According to some, Enbrel is not liver toxic and in fact one very small study several years ago suggested it could help interferon clear the virus better. Still, when I suggested Enbrel to my hepatologist, he cautioned that using a second immunosuppresive like Enbrel may have unknown consequences in regard to treatment and should be held off as a last resort -- especially since I was doing so well by clearing the virus early in treatment.
Then pins and needles in foot progressing to both arms and legs. Some ongoing pins and needles in arms and legs still (not idiopathic, happens all the time, standing, sitting lying down, ) Ongoing pain at back of knees. Also on spine I get 'hot spots' around T9-T12. I can feel they are bright ultraviolet to purple.(No I'm not hallucinating when I feel the bit of my spine hot I see purple / violet - very odd.
I have had it for 4 years and mornings and night times are the the worse time for pain and stiffness, and the more I move around the better I feel which is classic AS. I have been on Enbrel now for 12 weeks and started to finally feel better by week ten. Your comment about the heat really resonated with me, the last two days my hands, knees and feet are painful and swollen again, so I don't care what any doctor says, weather is a factor as far as I'm concerned.
As most of you know I have had severe RA (Rheumatoid Arthritis) - for 14 years - been on the biogenetic Enbrel for the last 9 years with pretty good results until the Hep C raised its ugly head Was dx and tx for Hep C April1 this year (Pegasus and ribavirin) I stayed on the enbrel during the treatment - had to stop tx 3 months in because of a severe RA flare - but besides the extreme joint pain - there is very bad burning and aching and tingling muscle pain in my legs and feet.
I have skin rashes and psoriasis. I have thickened skin on the tops of my toes, the soles of my feet, and on my elbows. Something is affecting my nerves, causing tremors, myoclonic jerks and dizziness. I can barely move the muscles in my lower legs and feet now without getting charlie horses. My lymph nodes inside my parotid glands have been swollen for several years (I look as though I have the mumps). I have developed arthritic problems in my joints and my spine, and also tendonitis.
I take the enbrel, arava, and folic acid for the RA. Been on the enbrel for 1 year now. This is the best i have felt in 10 years. I also have congestive heart failure,and reflux. I have the RA that gives you nodules both on the inside on lungs and from my feet to my ears. The nodules are a bit painful, make breathing a bit difficult, and walking is painful. But i always look on the bright side, I don't have it as bad as someone else, try and make the best of each day.
I even went to a dermotologist to have them biopsied! It was due to the meds and I had the rashes on and off during tx. My dermo prescribed Triamcinolone Acetonide which helped and an antihistamine too. I hope you get some relief. -cbee.
I have found that the use of a 1% hydrocortisone lotion (OTC) on strategic areas have helped considerably with the itching and rashes. You have a lot invested in TX so far so hang in there and finish. Talk to your doctor about the possibility of reduction of Peg on the last half of TX. I am told there is some evidence that reduction of Peg is less important in keeping the virus suppressed than the Riba. Unfortunately it is probably the Riba that is causing the anemia and fatigue.
She was ticked that my regular doctor didn't give Rx treatment for my symptoms other than pain killers for 8 years and has since been treating me aggressively, making all but about 1% of my pain disappear (with Celebrex, Plaquenil, Enbrel and Methotrexate). I contacted the insurance company and explained about what the docs have done BECAUSE of my insurance and they have since changed their ways, and my rheumy has stayed with them.
I have the longest eyelashes without mascara and there are pointing down , straight down. I look like a Llama and they stick me in the eyes and it hurts. Tx has been really awful for me so its good to laugh about something silly for a change. Im with you this tx and the sx are cruel. I would tweeze them as much as you can for now. If it doesnt work Im positive it will go away after tx. Perhaps some kind of wax to let them relax. Dont feel bad you should see my hair sort of like Zeppo Marx!
) Including weight lose, nausia, no appitite, migrains, mental fog, insomnia, tinitus, rashes, thinning hair, and the list goes on...I'm on permanant disability from Warner Bros. It got to painful to continue working. I had a biopsy last week (they took 3 plugs). I get all the results tomorrow when I see my Dr (I CANT BELIEVE IT TOOK ALL MY DRS ALL THESE YEARS TO FIND THIS).
(just noted my chart today) 41 yr old female 1993 - Known clearance of ALL Hep issues (Hep Panel documented - no health issues other than Asthma Mild and occasional yearly allergies and sinus infections - strep once or twice a year - EMT2 profession plus dispatching) 1993 - HEPB vaccine 1995 - pregnancy - normal - October conception 1995-1996 Jan Dec - vag bleeding - Rhogam (gammaglobulin) - stopped poss miscarriage 1996 - Jan - Florida Cruise - Extreme swelling up to 3 shoe sizes - profuse
Still have chronic pain, dislocating/popping/grinding joints that make me want to scream sometimes, fatigue (though less fatigue now with better diet), swelling of joints - especially hands, rashes on hands, and butterfly rash on face that comes and goes. I can now cross off "try new diet for joint condition" off my list. 2) Have now had a full MRI of brain, neck, upper back, and mid back (basically everything from the shoulder blades on up).
I definately suggest pre-loading if you want to get all those lose ends tied up before Peg. Got a major migrain though. Also on Enbrel and Prednisone for severe RA So the journey begins...It's amazing how I can feel so bad but feel so good to be on the road to SVR. Here's to all our bravery and determination...
i have a 5year old boy. his always complaining of a sore back. its more annoying to him than painfull. his hands constantly shake but these are becomin worse, where its hard to pik up things , not sure wat it could be. today his legs are week and sore with his back and shakin is bad.
It may be the meds because they are known to cause sensitivity but usually people burn easily or get rashes and I dont (I only burned that one day, but didnt itch). I was on the meds for over year before this started. Also due to my other medical problems I am under a lot of stress and anxiety, this could also be causing it.
There might be some mention within other threads of post tx sides, but the threads mentioned might give you a good headstart of other svrs that have checked in and commented already, while you wait for answers here. I had aches and sensitivities prior to tx, they got enhanced during tx and I don't expect them to completely go away post tx, but it would be nice if they did.
There are a few things that have been helping me - I take the Biogenetic Rituxan infusions every 6 months (Enbrel use to work) I take a gambet of vitamins and brain food (Q-10, amenio acids, enzymes, omegas, lipids etc) They seem to help...but the best thing for the fatigue by far is Consortea (an ADHD drug) I split a 36 mg 4 ways and take every 4 hrs. I also take 1/2 darvacet several times a day and 5mg prednisone.
This happens often and I have always treated it as a possible yeast infeciton. This time it didn't go away and so I saw my ob/gyn. She took a culture and found strep B, which has nothing to do with Strep A that creates strep throat. She said she could give me antibiotics to make it go away but then I would get a yeast infeciton from the antibiotics and then we'd have to use another cream etc. She said just to let it ride it's course.
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