Enbrel and lupus

Common Questions and Answers about Enbrel and lupus

enbrel

HI There! I took my 3rd injection yesterday and the pain and stiffness in my hands has subsided a lot. In the mornings it takes me almost 2 hours before I can stand up straight, or use my hands. My back and leg pain is still there but now I am being tested for MS and possible Myasthenia Gravis, a neuromuscular disease. All my problems started because of the RA, and as my back pain and leg pain got worse they dx me with the AS as well.
All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, <span style = 'background-color: #dae8f4'>lupus</span> or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on Raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But enbrel scares me.
All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, <span style = 'background-color: #dae8f4'>lupus</span> or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But enbrel scares me.
But both have come down to almost normal since receiving the Solumedrol. I am on Plaqenil and just started <span style = 'background-color: #dae8f4'>enbrel</span>, I do know some of the side effects of <span style = 'background-color: #dae8f4'>enbrel</span> are MS symptoms. BUT this was going way BEforE I started the enbrel. The tingling goes on during the day some in my hands, feet and legs, especially if I'm sitting.Sometime my foot and toes will go numb during the day. But this is ALWAYS worse at night.
I went to my Dr. in November, 2010 with joint pain in my hands/wrists since late July 2010. He ran a CBC, rheumatoid facter, & ANA. My sed rate was 26, elevated. Rheumatoid factor negative, and positive ANA. He referred me to a rheumatologist. In January I saw the rheumatologist, and she said it sounded like RA but wanted bilateral hand/wrist/feet x-rays, and a ton of other labs. I do not have insurance. It seems rather straight forward RA to me.
There is info on this website and others regarding the different kinds of <span style = 'background-color: #dae8f4'>lupus</span>. Check it out. And do not assume your doctor knows a lot about lupus. Many doctors do not.
cure for lupus, that leaves us with the next best thing which is flare-up management and general <span style = 'background-color: #dae8f4'>lupus</span> symptom control. I will dig out my research notes and see if I come up with anything useful.
An anti-inflammatory that worked great for me is prescription Ketoprofen, 200 mg a day. I am currently on <span style = 'background-color: #dae8f4'>enbrel</span> injections and just started a morphine patch to help with the pain. Please stay in touch with me, I have been thru a lot the last four years and may be able to help guide you based on my experience. Most important thing is to find a good rheumy that listens to you and is determined to find a dx.
Once I started taking methotrexate, it decreased the severity of my flares but didn't stop them altogether. A few years ago i added <span style = 'background-color: #dae8f4'>enbrel</span> to the mtx, and I'm as close to full remission as I've ever been.. :) No two people who have RA (child or adult) experience the same set of symptoms, severity, or progression. It can be acute and aggressive, or more chronic and low-grade. It can be a minor inconvenience for some, literally deadly for others. It sounds like you have been lucky!
My ANA and RF have always been negative but I have had a high ESR and CRP. I am on <span style = 'background-color: #dae8f4'>enbrel</span>, Plaquenil, and methotrexate. Thanks for any and all comments.
I have had two shots of Humira, I constantly have sinus issues, pain pressure, teeth hurt and hedaches. I got them on <span style = 'background-color: #dae8f4'>enbrel</span> and after 9 years it quit working, so tired remicade but after 4 infusions I had such a bad insus probelm I quit it also raised my blood pressrue a lot. I don't seem to be able to handle hard core antibidoics so I can take zpack, and it helps, but I always seem to be back on it alteast every two months.
I am also on steroids for my adrenal glands as my cortisol level was low in the beginning of my sickness and between <span style = 'background-color: #dae8f4'>enbrel</span> and steroids it doesnt really make sence to me, any ideas? Also on Diclofenic and that seems to not work and Percocet seems to not really help either, I have tried everything from A to Z.
I went to 3 different doctors and ended up at the Mayo Clinic. I have ReA and Ankoylosing Spondylitis and take <span style = 'background-color: #dae8f4'>enbrel</span> for it. Do you have copies of his blood tests, if not get them. What is his sed rate? There is no reason he should have to live like that, please get him to a new doctor and keep us informed. I know all too well the pain from that type of swelling and it is excruciating. Glad you found this forum. Please stay in touch.
I did bring up the medicine you all referenced (Rituximab) but he commented that it is not approved for <span style = 'background-color: #dae8f4'>lupus</span>/Sjogrens treatments and I would never get it covered ;-( I did get co-pay assistance for the Copaxone and I will only have to pay $35.00 per month and they will pick up the $12,800 balance.... unbeleiveable. I am still struggling a bit to understand if the reason why I have struggled to manage my Sjogrens is because it wasn't the Sjogrens, it was the MS...
These cause pain in people who have Arthritis, Fibromyalgia and <span style = 'background-color: #dae8f4'>lupus</span>. People with Arthritis need to take good care of their teeth also. Doctors prescribe anti-TNF such as enbrel for Arthritis. I think the best preventative is swimming. Wishing you the best.
he recommended to go to rhemotolosts. he did blood test again and confirmed it is <span style = 'background-color: #dae8f4'>lupus</span> and he started treatment by giving predinisone +calcium tablets but till now i did not see any symptoms that are curing if anyone who is having similar problmes, please suggetst me, how long it takes to cure, what are the precautions i have to take in home. is there any other tests?
Every illness is not always due to <span style = 'background-color: #dae8f4'>lupus</span>. Sometime we just get sick like regular people. But give it a try and let me know what happens. I am curious as to what is causing these throat problems. Take care drink lots of fluids (orange juice) and keep me up to date.
This is an overlap of autoimmune symptoms, primarily Scleroderma, and <span style = 'background-color: #dae8f4'>lupus</span>. There are many treatments avilable once you get a Dr. who takes you seriously, and once you get a diagnosis (even if it's just "ballpark" like mine). I am now almost 31, and have found some medication that slows the progression of the disease, and impoves my symptoms. I am pregnant right now though, so I just have to suffer, because it is not safe during pregnancy or nursing.
I have rheumatoid arthritis have been on methothrexate since December and am supposed to start <span style = 'background-color: #dae8f4'>enbrel</span> next week. I got very sick the first of March with pneumonia and pleurisy. I took levaquin for 10 days and I still have the pain so the doctor ordered a ct scan. I have a strong family history of lung cancer in non smokers, I have been a smoker for over thirty years. This is my second bought of pneumonia in a year and a half. Please help me with the ct scan results.
We agreed to stop the <span style = 'background-color: #dae8f4'>enbrel</span> for a while and see if I get any relief and go clear down to 90 on the peg and take a tad more off the Riba. It seems to be helping....joints still very sore but much more energy and less brain fog. Not sure how long I'll stay off the enbrel - going day to day at this point. June 12th - 2008 - Went back down to 135mg on my 9th and 10th Peg shot - also am pretty much at just 600 mg of Riba every day. Dr.
I have been told I have fibromyalgia and hypothyroid and osteoarthritus and diabetes.
I treated with both topicals, UVB light and laser to keep it in check. <span style = 'background-color: #dae8f4'>enbrel</span>, a systemic that supposedly is non liver toxic was recommended early-on but I declined because it's also an immunosuppressive. Anyone with psoriasis who is intending on treating should be well aware of the flare-up risks and should get themselves set up with a good dermatologist beforehand.
Hi I have to go on and off of prednisone for <span style = 'background-color: #dae8f4'>lupus</span> and I tell you a lot of those symptoms don't go away for a few weeks after stopping However you should soon notice improvements dropping to 10. Are you going at a slow taper from 10 to zero?
with the addition of methotrexate works to halt or slow down the disease itself. I'm on <span style = 'background-color: #dae8f4'>enbrel</span>, mtx and meloxicam. In the end, it really doesn't matter what the blood tests say. You definitely have a joint disease and it's causing visible damage. Many RA sufferers are RF negative - no one knows why this is. A good rheumie will take this in stride and go by what your body is saying, not the blood tests. Good luck!
Hello, are you taking any other meds with the <span style = 'background-color: #dae8f4'>enbrel</span>? I have AS, RA and mild sjogrens and my doc has me on plaquenil and methotrexate and, if my back is not better in 8 weeks, he will add enbrel or humira. Sometimes the best results come from a combination of these drugs.
You are on my prayer list and I feel so bad for you and all the krap you have gone thru while on tx and now afterwards. I'm glad you got some morphine, it's about time. I haven't tx'ed yet, I'm going for an ultrasound at the end of this month and hopefully I can start right after that. I can't answer your question except to say you will get better, I just don't know how long it will take. God loves you, I know that for sure and he never gives anyone more than they can handle.
Strong electric shock feelings in left fingers, hand and arm up to elbow. Had EMG and carpal tunnel surgery on Thursday this week. Seems to be no better. I also have numbness and tingling now in my right leg, thigh front down front of leg to ankle, with rubbery leg feeling at times, very heavy and akward use. Left leg is only in toes and left side of foot to ankle. Any suggestions of what the problem may be.
Her mother was diagnosed with <span style = 'background-color: #dae8f4'>lupus</span> and Sjogren’s as a young woman and her father was recently diagnosed with Hashimoto’s and also has a positive GAD 65 auto-antibody. Amy was diagnosed with pre-mature ovarian failure as a teenager which was thought to be autoimmune related. She was diagnosed with an undifferentiated connected tissue disease in 2001 related to peripheral joint pain.
I know for sure my mother, younger brother, niece, and at least three aunts all suffer the same or similar symptoms as I do in the '#2' department. I now take <span style = 'background-color: #dae8f4'>enbrel</span> and methotrexate pretty successfully, for my RA, and have for quite a few years. i take other meds I don't feel the need to discuss, because my symptoms all started before the meds. Mine 'usually' are brought on, although not always, following several days to a week or more with no BM.
I take the Plaquenil generic and have had a bit of nauseau and loose stools but the benefit is so worth it. <span style = 'background-color: #dae8f4'>lupus</span> can also cause this so not so sure it is the drug. I also take a PPI to help my stomach which is pooched from all the ibuprofen I take for inflammation and pain.
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