Enbrel and kidney disease
Common Questions and Answers about Enbrel and kidney disease
enbrel
I was in between jobs and had no insurance and had to stop the Enbrel for 3 weeks, within 2 weeks the pain and stiffness was back worse than ever. The price of Enbrel is $1500.00 monthly so it doesn't surprise me that the insurance company won't give you the 2 a week you need. Talk to your doc about the other 2 drugs and see if they will better help control your pain and stiffness. Keep me posted!
Never had the cough or metal taste during the time I used Reumofan. I am not back on Enbrel, and not happy about it. I take say 15mg, 1x weekly...or something like that. Just enough to take the edge off. Reumotolgist approved this dosage.
About a month off Reumofan, Dr wanted to check my blood just to see if there were any steroid use indicated. I gained 15# and I never gain weight. Blood tests came back negative for anything.
I have had two shots of Humira, I constantly have sinus issues, pain pressure, teeth hurt and hedaches. I got them on enbrel and after 9 years it quit working, so tired remicade but after 4 infusions I had such a bad insus probelm I quit it also raised my blood pressrue a lot. I don't seem to be able to handle hard core antibidoics so I can take zpack, and it helps, but I always seem to be back on it alteast every two months.
got my sides mixed up under left breast
I'm in the same vote. On enbrel and have developed hpv. Very tiny bumps if even noticeable at all, but its been spreading. Aldara only made my psoriasis and psa flare up. I guess the next thing is to stop enbrel till my hpv clears up? I am 29, male, non smoker. Enbrel is the only med I take.
All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, lupus or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on Raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But Enbrel scares me.
I was only 42 at the time and the thought of that was mindboggleing! Enbrel was introduced in 1998 and by the time my insurance agreed to pay for it it was Spring 1999 when I took my first injection. I started Enbrel along with an injectible dose of.09 Mtx weekly. For me Enbrel was a light-switch medication and within 2 weeks I was a normal functioning adult again with no pain at all.
One young wife lost her husband to an inflammatory bowel disease - she insists he became worse when Enbrel was ordered and that it was responsible for ending his life. I can't say that is a certain fact - however the widow would otherwise.
Enbrel can cause serious side effects. Your Rheumatologist should not argue with your concerns - if he/she is educated about Enbrel - which I am certain they must be.
I've been on Enbrel for almost 9 years. I've recently been developing tremors in my hands, cheeks (when I smile), and tongue. Talked to my rheumy. He doesn't think it's the Enbrel, but I am growing more concerned. They're not bad, but they do seem to be progressing.
Several ground glass opacities in my right lung showed up on a CT scan in July 2011. Enbrel was discontinued and coincidentally I took a regime of prednisone for an allergy problem - 60 mg for one week, then with a weekly taper. A repeat CT scan was performed in December 2011 and one ground glass opacity remained (15 mm), with a small focus of sold component within the ground glass density. A percutaneous biopsy was performed to rule out bronchogenic carcinoma.
Thanks smittygirl. I was on the fence with this decision but leaning in the same direction as your perspective. Sunday, today, is my injection day. I've had the p.i. for a week, and it seems to be clearing up despite the Enbrel. So like you, I agree; I'd rather itch a little, then have the chest-wall pain (my main symtom). BTW... good luck with AS. Prior to joining this forum, I read some of the past posts, and yours came forward as a real success story.
Pain meds do not control the pain, either over the counter or prescribed and the stiffness in hips and knees and feet is affecting my balance. I asked if continues joint destruction would occur if I stopped the anti-inflammatory meds and he replied "no". I am under the impression that it is the inflammatory process that causes the destruction of the joint. Who is correct ? Thanks !
Recently, the RA flared up and my doctor added Enbrel. I have severe headches and feel like my heart is beating so fast that i get dizzy. The doctor thinks that this is because I am on yet another medication and my body has to adjust. Is anyone familiar with this drug? Has anyone gone as far as to have a second opinion for their RA? I just find it scary to give you one drug to have to counteract side effects with another. Then they add more.
I am 42 and have been on Enbrel for 8 years now. The Sureclick was no good for me because I can't stand not knowing if it is all in me or not. Also, the two most feared things in the world to me are needles and knives. I waited a full month before building the courage to give myself my first injection and it literally stared working overnight. I have very mild AS and have a fairly large dose of Reactive Arthritis (Reiters' syndrome). Both knees, one toe, neck and both wrists.
I have Reiters and it first presented as a UTI. Despite all kinds of tests (blood, urine, xrays, body scans, etc) and visits to almost every hospital in America (including Hopkins, Cornell, Mass Gen) no doctor could pin point the cause of my pain and symptoms. I had always suspected Chlamydia.. but it was never proven. I am HLA B27 negative.... I have even tried an experimental approach to curing this condition (dual antibiotics for a year). Nothing helped.
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