Dilantin free levels

Common Questions and Answers about Dilantin free levels

dilantin

I do not have insurance and go to a free clinic. I have been taking generic dilantin as prescribed. Started at 300mg and was upped to 400mg two years ago. I've only had a handful of seizures while awake but when sleeping I have a few a week. When I have "bad" ones and go to the ER, my levels are always at a 1 or below. My Dr says I'm not taking my meds cuz I'm a "young punk kid with tattoos". He refuses to try anything else.
I had a relative in the hospital who was malnourished, and his blood work gave a false reading that his dilantin levels were too high. Is this a common phenomenon or did I misunderstand what i was told?
Does anyone know what can cause Dilantin levels to be too low after taking correct dosage? My levels have been around 3.2 and I take the correct dosage my doctor prescribed of 400 MG a day. 200 in the morning and 200 at night. My doctor thinks I am not taking my Dilantin and I cannot convince him otherwise!!! I don't know what to do or where to find any information about it. Would appreciate any information, please.
Local doctors or hospital did not check dilantin levels- thought I had mental problems. Took them 20months after many more drugs to discontinue the dilantin. Then so many symptoms began for 3 years now- lupus, sjogrens etc so on Plaquenil for this year , and seeing connective tissue, dermatologist, renal specialists, nerve conduction, and vascular physician next month- none of these in our city, have to fly away.
trying to wean myself off Dilantin safely without having the status epilepticus from withdrawal because I never have had seizures before but had where I would go blank but still beable to function but not speak for a short time like 5-10secs doctors here did a EEG and find nothing out of the ordinary but prescribe Dilantin anyways which I have been taking 200mg daily for about 10yrs I hope it has not done any damage to where I can't make my own decision and wean myself off of it I am now at 50m
I hope you are getting your levels checked often, especially if you take an extra pill here and there, dilantin levels to high, can be just as destructive as levels to low.. I found this out, hard way..
My neurologist just informed me that Osteoporosis and shrinkage of the Cerebellum are very serious side effects for long term users of Dilantin. Does anyone know more about this? I've been taking 500mg of Dilantin for over 30 years since I was a teenager, and now I'm terribly worried. Not one of the neurologists had mentioned anything about this over the years, and now at 46, I've learned that I may have severe osteoporosis.
Try something else. Elevated Dilantin levels can cause inability to walk, liver and kidney damage. 40 years seems like a long time on the same med.
My last test results he took yesterday was TSH- 0.011, Free T4- 1.99, I can't get him to do a Free T3, he says its not necessary. isnt my Free T4 to low? my TSH shows Hyper thyroid, but I feel like doggy doo and gaining weight.. My doctor keeps lowering my Synthroid dose, and I keep gaining weight faster and faster.. I have gained nearly 30 pounds in a yr, with most of that with in the past 9 months. and I'm eating only 800-1000cal/day! plus exercising.. I was held steady at Synthroid-.
Is there a recommended schedule for bloodwork to test Dilantin levels? 2. What factors change the Dilantin levels in the blood? 3. Are there any known triggers for seizures? 4. Is there anything he (we) can do to prevent the seizures from occurring? 5. I have been told the seizures are a result of "electrical" activity in the brain - but I don't understand why or when this would happen. This uncertainty of not knowing when or where or why makes everything very difficult.
My husband after being 90 days seizure free had a I guess partial seizure this morning (he had very labored breathing and his fists were clenched. He came out of it and slept soundly for a couple of hours. He felt better and he came to the table to have a light breakfast. He was eating OK and all of a sudden he had a tonicclonic seizure. He is resting now with a violent headache. I have seen on some of the posts that you say no ibuprofen.
even though these are not that elevated it still indicates inflamation and damage being done to your liver. ---------------- Correct. My guess is that these enzymes levels would be in the teens or twenties if the virus was treated. I thought my enzymes were normal at one point but they were only normal per the chart. After I treated they dropped down another 30 points each to the twenties and high teens.
Lamictal,Keppra,and Dilantin. Actually I've been on Dilantin for 16 years and was seizure free and then I had a breakthrough seizure[devastating].My doc is transitioning me off of Dilantin and onto Lamictal.She said the Keppra would be a bridge while the Lamictal becomes fully therapeutic.What can I expect in terms of side effects? Is it realistic to think that Lamictal will eventually be my only AED? I currently take 600mgs of Dilantin daily.
My primary physician wants to put me on supplements, which are Ioderal (a high potency iodine, and MedCaps3 (XYMOGEN), because antibodies could form on my gland and create nodules, which could be dangerous for me. I have been on Dilantin since 1975, for a seizure condition. I have been seizure free since 1990. I have also developed sinus problems when we moved to Florida, and for the past 2 years I have been taking Vicks Sinus (over the counter), and it helps me breathe better.
I had another one like this in mid september and have my meds changed several times now to adjust to blood levels. I now take 400ml dilantin(200 am/200 pm) and 10 ml of clobozam in the evenings. Since Sept 11 I was totally seizure/aura free but just had an aura like seizure about an hour ago. My wife watched me and said my hands were figdity and I paced around aimlessly not answering any of her questions.
(thats called cerebllar atrophy) So he took me off of dilantin and put me of KEPPRA, he had to experment with the levels but the level I'm on now is 500mg twice a day. And I'm also on diamox and tegertol..........Good Luck just don't go back on dilantin.
She is on Dilantin for seizures and is not doing well. Very tired all the time. Her dilantin level came back at 21 so the doctor just lowered her dose. I'm just wondering if she should be taking the Free T3 test instead. My parents doctor is an older gentlemen and he never checked their thyroid levels until I asked him too. Thank you for any response.
The level of Keppra I'm on now is 500mg twice a day. I'm also on Dilantin and tegertol..........Please don't go on Dilantin go on Keppra....
has anyone ever heard of deep sleep from a sleeping pill taken by a child mistaken for a seizure the medicine was phenobarbital and my some was 14 and we couldnt wake him up twice his eyes were rolling and he was dianosed with epilepsy but not we are being told it may have been a reaction from the pill he is 30 now and seizure free on dilantin ever since but the levels have always been low only 3.
Went 12 years seizure free thanks to the wonders of Tegratol CR - then two years back what I thought was petit mal was returning, however looking back the 'absences' were and are atypical about 15 per month often based around food and sometimes accompanied by sweat but no zoning off into the parallel world which I used to weirdly like. I mostly aware of where I am and with whom I am speaking although the thread goes.
I have used dilantin for 40 years along with depakote. My doctor tells me at this time in my life the dilantin is probably not doing me any good. It makes me very tired and I don't have the energy I used to and not because of my age as this has been since I first started taking it. Depakote causes tremors and yet it is the only drug that has stopped my seizures. I will now be adding Keppra to my meds while tapering off dilantin and then I will just be on depakote and Keppra.
24). I had Steven Johnson's syndrome at the age of 14 in reaction to Dilantin and amoxicillin while being treated for RSD. I have chronic GI issues and joint pain. I have a high ana (around 9). I was diagnosed as celiac for two years but I do not have the two genes involved in the disease. I have been diagnosed with Crohn's for several years but the colonoscopies never biopsy Crohn's. The latest doc says it all looks fine and I must have IBS. But something doesn't fit.
Diabetes mellitus is a group of metabolic diseases characterized by high blood sugar (glucose) levels, that result from defects in insulin secretion, or action, or both. Diabetes mellitus, commonly referred to as diabetes (as it will be in this article) was first identified as a disease associated with "sweet urine," and excessive muscle loss in the ancient world. Elevated levels of blood glucose (hyperglycemia) lead to spillage of glucose into the urine, hence the term sweet urine.
My husbands Doctors office called today to tell him that his Alkaline Phosphotase levels were elevated and that they needed to schedule a Bone Scan to rule out a problem. Well, first of all he has been on Epilepsy Meds for 32 years. Dilantin seems to be an issue as he has been taking 250 to 300 mg/day for that long.
It is very strange that your Thyroid hormone levels would be dropping like that. Are both Free T3 and Free T4 results dropping? Please post your test results form the time when you were feeling good, and also the current test results.
Had the levels checked every week (blood), ended up in hospital twice in October toxic from Dilantin levels were 28 - 32 both times. Should be 10 - 20 max. More MRIs, u/sounds etc. They did find that since two years ago I have developed an occluded carotid artery which might deprive the brain of oxygen even though the other three can still supply this to the brain sufficient to be able to manage, providing they are all clear of plaque.
Im on 300 mcg of syntyroid.My T.S.H was .70 fri low normal.My free T4 was high it was 1.75 on fri.I have had a weight gain of 70 lbs in this year after my thyroidectomy.wich has caused me to stop eating.ive not lost any.but ive not gaind any more. in the last 2 months. ive stoped eating. My paratyroid's are gone to. im on 18 pills of caltrate 600+D a day.0.5mcg of calcitriol 2x a day. so far that has keept me out of the hospital for I.V calcium.but im still low.calcium test were 6.8 fri.
I even knew so much as to START taking it again about a week before one of my scheduled blood tests to check the Dilantin levels. I wasn't stupid. I'm not trying to give medical advice about your daughter, just sharing my personal experience. I did continue to have occasional seizures, maybe once a month, or as often as once a week, until I was about 14.
25 seconds every 12-24 hours. Phenobarb levels were in the 40s early on, dropping to 15-25 levels currently. I will need to consult on acidotic and dysmorphic question and get back to you. Several factors point to NKH but the Glycine level is not elevated enough to confirm. Thank you for the additional references amino acid, etc. testing I will follow up on that. Thank you very much.
MedHelp Health Answers