Dilantin and skin rash

Common Questions and Answers about Dilantin and skin rash

dilantin

Hi everyone, I'm new to this community. My neurologist just informed me that Osteoporosis and shrinkage of the Cerebellum are very serious side effects for long term users of Dilantin. Does anyone know more about this? I've been taking 500mg of Dilantin for over 30 years since I was a teenager, and now I'm terribly worried. Not one of the neurologists had mentioned anything about this over the years, and now at 46, I've learned that I may have severe osteoporosis.
This is what I'm facing now, Having my gums 'shaved' due to hyperplasia, I have peripheral neuropathy and the friendly tremor, vitilgo, Strange rash/broken skin on cheeks [Dr's auto thought alcohol abuse! ] My eyesight not good - Nystagmus (horizontal, vertical), mild ataxia, raised MCV levels , macrocytic anaemia.
taking Dilantin 400 mg bid daily for about 18 years. I have annoying cognitive side effects, and also suffer depression/anxiety. My seizures, : however, are controlled except for an occasional aura now and then,related to flickering lights, ie: sun through trees. I am interested : in the possibility of changing to Lamictal (as monotherapy). Does it have fewer side effects than Dilantin? Is Lamictal used alone for my kind of : seizure disorder?
Posted By CCF Neurology MD on July 11, 1997 at 11:33:38: In Reply to: Dilantin VS Lamictal posted by Warren on June 28, 1997 at 20:39:25: : Hello: I am diagnosed as having seizures (complex partial that secondarily generalize). An EEG I had done related the following: "The EEG is mildly abnormal, demonstrating scattered sharp activity in the frontal regions and brief bursts of spike, sharp and slow sharp activity".
When I get out of the shower, my skin on my face and around my lips feels very tight and dry, especially if I don not moisturize. The thing that really bothers me is that every time after I eat a meal the inflamed border of my lips gets much redder and much more inflamed. This has happened for about 7-8 years now. I have gone to several dermatologists and have been diagnosed with eczema by some and given elidel and protopic, which did not work to improve the symptoms around my mouth.
My day, age 85 has developed large (up to 2 inches) blood blisters on his left leg from knee to ankle. Some blisters are small and clear. When draining them and clearing away the skin, the surrounding skin peels off like tape. The blisters have now spread to his right leg. His left arm has a rash and is hot to the touch. Both feet are swollen and are hot to the touch. The hospital doctors say that they have never seen these symptoms before.
i tried, but the rash was gone, i did not know to keep the tick, and was just told i couldn't get lyme in Kentucky. well i am living to tell everyone you can get lyme disease anywhere, i had several neck operations because it got in my bone marrow and weakened it.
Have epilipsy -temporal lobe syndrome- and take 400 mg. Dilantin a day since I was 27. My family doctor said I had chicken pox twice when I was 2 and 4. Crazy, but that's what he always said. At 30 years I got that weird thing where half of your face just freezes up and it was paralyzed for about a week, maybe 2 (can't remember the name). Last year I got meningitis and was in severe pain and in hospital for 2 nights. During the meningitis my legs didn't work very well.
Hi Michelle, My son has Epilepsy and was on Dilantin the majority of his "epilepsy life" with wonderful effect. Several years later he developed a rash (not hives) all over his body and started having odd muscle movements also envolving his entire body. The neurologist told me that he had developed an allergy to Dilantin and to never use it again as a treatment. We discontinued the Dilantin while he was in the hospital while introducing a different medication.
The most common drugs we see this with is sulfa drugs (bactrim) and dilantin. The condition starts out as a rash and can progress to patient shedding all of the skin of their body. Therefore, the have many of the same challenges as caring for a major burn patient.
taking a hot shower makes my muscles feel better but seems to irritate my skin. i use bodywash and soap for sensitive skin and i don't get a rash. the water feels like little needles hitting my skin. just another weird symptom! i hope you have a good weekend and are feeling better. try to stay positive!
You mentioned oily skin and dry skin. This sounds like your hormones are really out off whack, and when one hormone gets thrown out of sync, many others seem to follow for some strange reason. Have you seen a rheumatologist? regarding the joint pains. Then i go back to the migraines, have you been seen by a neurologist? Have you had an MRI of the brain? If you havent been seen by a neurologist, then maybe this is the specialist you need. Or a really good neuro-endocrinoogist.
and I think what happened here is that the sympathy went with the addict and alot of underlying pain and anger surfaced. I agree with you about the advice she was given... it was rash... but you did a great job of letting us see the other side... and I am simply using the board to object to the injustices that addicts suffer at the hands of our government... I do not see addicts profitting from their disease... but the legal system, DEA, law enforcement and other governmental agencies DO.
Anyway, after three months with this horrible condition, and plenty of seizures more, I was switched, during part of my presurgical workup, to dilantin. The rash went away, but my skin has felt so sensitive every since (this was 4 years ago now). Currently take allergy pills to help, and am on Lamictal XR. Hated dilantin as well. Anyway, good luck with your decision PS: saw you posted your comment a while ago....
Adverse dermatological reactions to phenytoin occur in 5—10% of patients and can present as maculopapular rash, or a more serious response such as bullous rash; exfoliative dermatitis; purpura; erythema multiforme; Stevens-Johnson syndrome; or toxic epidermal necrolysis. These conditions may be a result of a severe hypersensitivity reaction to hydantoins.[387] Minor reactions, such as rash, can develop in the first few weeks of therapy and should be investigated promptly.
tell your doctor and pharmacist what prescription and nonprescription medications you are taking, especially methotrexate, phenytoin (Dilantin), warfarin (Coumadin), and vitamins. tell your doctor if you have or have ever had liver or kidney disease, asthma, severe allergies, or glucose-6-phosphate dehydrogenase (G-6-PD) deficiency (an inherited blood disease). tell your doctor if you are pregnant, plan to become pregnant, or are breast-feeding.
I've noticed that myu skin has been really dry and flakey all over. (my hands, back, ect.) I developed a rash after being on dilantin for almos two months and am concerned about haivng an alergic reaction to the neurontin (though I'm told it's one of the most benign AEDs out there.) I have no fever, just itchy all over. HAve you seen this reaction before? I've been on five different meds in the past 3 months...
Skin rash; urticaria; photosensitization; edema of face and tongue. Hematologic: Bone marrow depression including agranulocytosis, leukopenia, thrombocytopenia; purpura; eosinophilia. Gastrointestinal: Rarely hepatitis (including altered liver function and jaundice); nausea; epigastric distress; vomiting; anorexia; stomatitis; peculiar taste; diarrhea; parotid swelling; black tongue.
I am extremely sensitive to meds and looking for any alternatives so that I can function outside my home which I have not been able to do. Now that its cold this is escalated by the cold, and clothing against the skin hurts. Any ideas.??????Although this has been determined to be peripheral nerve problem 1 of the 6 Neuros I saw says its brain chemistry and is therefore permanent. How does one come to the conclusion whether something stems from peripheral nerve problems or brain chemistry.
I've noticed that myu skin has been really dry and flakey all over. (my hands, back, ect.) I developed a rash after being on dilantin for almos two months and am concerned about haivng an alergic reaction to the neurontin (though I'm told it's one of the most benign AEDs out there.) I have no fever, just itchy all over. HAve you seen this reaction before? I've been on five different meds in the past 3 months...
(my hands, back, ect.) I developed a rash after being on dilantin for almos two months and am concerned about haivng an alergic reaction to the neurontin (though I'm told it's one of the most benign AEDs out there.) I have no fever, just itchy all over. HAve you seen this reaction before? I've been on five different meds in the past 3 months... all but depakote contol the szs well but the adverse reactions made it impossible to continue suing them.
Basically if you take Lamictal if you get a rash you call your provider and they will see what it is and then discontinue it if found but if you don't you are out of the woods. Its safe and effective and doesn't require blood draws and can't cause weight gain either. Also many providers will stop using Lithium in a consumer after ten years because there is the risk of kidney failure long term especially if not properly titrated.
I've noticed that myu skin has been really dry and flakey all over. (my hands, back, ect.) I developed a rash after being on dilantin for almos two months and am concerned about haivng an alergic reaction to the neurontin (though I'm told it's one of the most benign AEDs out there.) I have no fever, just itchy all over. HAve you seen this reaction before? I've been on five different meds in the past 3 months...
skin biopsy and Q-SART. My troubles started after a car accident with whiplash. Got worse and had to cut back on work to 20 bours per week, then had to stop working. Cannot travel much or excercise much either. I am interested in joining or starting a neuropathy support group in Central Ohio. Have you noticed that people who do not have this "invisible" disease have difficulty understanding it?
I also have tender spots all over my legs that seem to be just under the skin. My husband and I can actually feel little knots or grainy like areas where it feels tender. The other night I had a charlie horse so bad my big toe stuck up and wouldn't go down for 15 minutes!I'm a fifth grade teacher with 32 students and I don't know if these symptoms are from stress or if I should see a doctor.
The throbbing, stabbing pain near that notty part of skull behind the ear is similar to sharp shooting pain of an ear infection, but isolated to one exact spot on my skull. And the skin feels inflamed and almost like a "burn" to the touch. Has anyone else here wear headbands?
I'm 42yrs old, mother of adult son, but have had undiagnosed symptoms off and on for years. From Joint pain and swelling to lymph node swelling and tenderness to now currently weakness (heavy feeling) and constant tiredness. I was diagnosed about a year and a half ago with a dead gallbladder which was removed...and it was dead. But now my PCP is testing for Autoimune and Viral/baterial infections: Mono, Lyme, Celiac and Lupus. I won't get the test results for another 24hrs or so.
I also have that annoying warm sensation that is in my right leg and it moves from my ankle and up about 4inches and seems to be very frequent. I too thought it was a little heater under the seat of my car that was warming my leg-but the heat was not on. Also, the balls of my feet are burning along with this sensation. I need to know what this is?
I had been treated for what is now recognized as Panic Disorder with barbituates and phenytoin (Dilantin). While neither did much good, it is interesting that those were the drugs of choice, because PD can often be a seizure-like business anyway, and they should have been more effective than they were. At any rate, I had decided that if some was supposed to be good, then more might be better, and wound up needing a lot more phenobarb than had been prescribed for me.
I had all 3 done at the same time and i have no metal I did real good for the 3 years but started to have pain again in arms and shoulders and a recent MRI says I need to probably go back and have the metal and another clean up arthritis again so we will see I wore the Miami J collar for the first 2 months wasnt bad but if you need it done do it when its cool I had it done in summer bad mistake rubs on your skin and makes you sore !!!
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