dilantin and its side effects

I'm not familiar with Tegretol.But as an epileptic,I took Dilantin for 32 yrs~~~way too long! Can't remember all the side effects;but do remember you have to have a CBC every 6 monthes due to the possible risk of leukemia.The main reason the neuro got me off of it was that Dilantin leaks into your body,building up in your organs.Wishing you the best in finding relief from nerve pain!

I have a TSH of 0.24 and T4 of 1.04. I have been on Dilantin for 30 years. I have been on Thyroid replacement therapy for 18 years with monthly injection of B12. I have had extreme fatigue and chest pains. Seeing neurologist for medicine change and have be referred to endocrinologist. How concerned should I be? What tests should be given? Is this my pituitary gland?

The medications used to control seizures can cause side effects like the ones you describe. I would recommend consulting your Neurologist. Together, you and your Neurologist can weigh the pros and cons of taking Dilantin or possibly another medication.

My neurologist just informed me that Osteoporosis and shrinkage of the Cerebellum are very serious side effects for long term users of Dilantin. Does anyone know more about this? I've been taking 500mg of Dilantin for over 30 years since I was a teenager, and now I'm terribly worried. Not one of the neurologists had mentioned anything about this over the years, and now at 46, I've learned that I may have severe osteoporosis.

t possibly cause these side effects (I looked it up only after about the 4th day on it and these are known side effects, but from much higher doses). So I'm wondering if it could be because of my other meds that this small amount is causing side effects? I just feel dumb saying I think it's causing all this when the dose is so small. Anyone else experience anything like this with tegretol? Should I give it more time?

I have been doing some research into the medication i currently take (dilantin) and it would seem as if i suffer from one of its side-effects. I was wondering if there was an alternative to counteracting this side-effect or is it something i will have to deal with as i take this medication..

RIGHT NOW I HAVE STOPPED TAPERING MYSELF OFF OF ANY OTHER MEDICATION OTHER THAN THIS DILANTIN, BECAUSE I KNOW I CAN HAVE SEIZURES. ARE YOU CERTAIN THIS DILANTIN WOULD NOT CAUSE THESE OTHER SIDE EFFECTS GIVEN WHAT YOU NOW KNOW I HAVE JUST TOLD YOU?

Google Dilantin side effects and Dilantin withdrawal.

My husband has is dilantin very low and I was wondering if he can increase his medication to 200 mg.I was also wondering why does that keep happening and what is the side effects for the dilantin.

My new neurologist wants me to try depakote after keppra, dilantin, and dilantin and topamax together have failed. They did not control my seizures and I had horrible side effects. I have been using my medical marijuana which my neurologist never had anything bad to say about it just wants me to try another pill as well. I'm worried about the side effects and whether they will work when these others haven't..

Well if it is a sudden change check your neurologist before thinking it's your meds...but gosh!

Acute alcohol consumption increases the availability of phenytoin (Dilantin) and the risk of drug-related side effects. Chronic drinking may decrease phenytoin availability, significantly reducing the patient's protection against epileptic seizures, even during a period of abstinence. Any form of alcohol, even beer is contraindicated for some time when you are weaned off dilantin. Sexual activity is an exertional activity which can cause exertional or sexual headache.

i have been on dilantin for over 25 years . i to have very bad mood swings and i just cant take any stress at all . my neuro is taking me off dilantin slowly. i take 400mg daily . my neuro told me dilantin will cause mood swings and cause me to be irritable and was hard on your body after being on them so long. i have started keppra and dropping 1 dilantin a month . i was told my moods will improve and i will start to think more clearly.

I had a seizure on the operating table and was paralyzed on my right side. So whenever I have a seizure I go paralyzed on my right side and it takes me about 3 minutes to talk again. I think the best medication to take is Depakote and Lamictal. I'm on both of them Lamictal 200 (morning and night) and Depakote 1000 (at night). Because I was on Trileptal and Dilantin. Dilantin made my gums swell so I had to have surgery on my gums. Hope this helps...

Very very sorry to hear about this. I've been on Dilantin for about 30 years, also started at 13 yo. and was on 400mg @ night. I went through the same issue a few years ago and the seizures suddenly began 20 mins after I got out of the car after a 3 hour drive. I tried several and none seemed to work for me. I tried Sodium Valproate, Tegretol and Topamax, but NONE of them worked as well as Dilantin. So they had me up to 800 mg of Dilantin and slowly brought me down to 500mg.

how well has keppra worked controling your seizures and what side effects do you have? has the keppra helped your mood and stress level? has the keppra helped you lose weight and how long did it take you to get use to the med? thanks for all your help .

With that low level of Dilantin and already stop Dilantin since 1 month ago, will it still cause any side affect with above symptoms? 2. Given those above set medication to resume for next 3 months, should it be ok or could it cause any other side affect, as we noticed some of above drugs could have others side affects? Appreciate your advice. Thanks a lot, Johan & family.

I was taking Topamax and Lamictal for several years, but because of insurance reasons I had to switch to Carbamazepine and Dilantin. I HATED IT!! it controlled the seizures but the side effects were horrible. I had tremmors in my hands, arms, feet, legs and eyes. I was dizzy and just felt drunk all the time. I could not be still. I was having to take it 3 times a day so by the time they side effects would start to calm down it would be time to take another round...

Was just interested if anyone has had to transition from Dilantin to Lamictal and if they have had any side affects

emotional outbursts. My neurologist lowered me to 500mg at night only and so far the side effects have subsided... Now this has only been a little over a week so we will see how things go. I have not had another seizure but if I do, we will have to adjust meds... I know every person is differnt.. I feel your pain when it comes to the interuption in your job. My job requires me to drive (external marketing) and that has really made things hard for me.

I am on Gabapentin 300mg 2 a day, I have had weight gain since being on them, I have gained 15 lbs in 2 months time. I am sitting here thinking if he ups my meds like he wants to the side effect of weight gain will only get worse. I talked to the people where I get Gabapentin and they said that that side effect don't go away and if the dose is inceased it will only get worse so if the med isn't helping me there are other options.

new neuro weaning me to keppra, not sure if i like it.. but said dilantin was causing side effects (chest pain,, kidney probs) i'm starting to wonder if age is a factor, I'm 44, or perry menopause? even though my gyno says my hormone levels are not consistant with menopause..

According to a government website concerning this sort of thing, while it depends on how bad the overdose was, any coma, and so forth, normally a person has full recovery with no complications, other than the liver might suffer from the overload. Your dizziness and tremors are probably because of being so knocked out for so long, and also just being in the hospital for a while can weaken a person.

I took 2 old, and 1 new for about a month, then 2 new and 1 old, and am now on 3 new dilantin 100mg. every day. I have been on this for about 2 weeks, and I have not had any problem at all. I do feel kinda nervous about it, though, and never leave home without my medical card in my wallet. (something I never even had to think about with the old dilantin). How about you? Are you on the new capsules? If so, how are you doing?

Have my teeth become grey and decayed because I have to take Dilantin? One year into Dilantin and I have to have four front teeth pulled. Previously healthy. Gums are in good order as I brush them 5x daily.

constipation; dizziness; headache; mild nervousness; nausea; trouble sleeping; or vomiting. (this link may be helpful: http://www.rxlist.com/dilantin-drug.htm). I hope this helps. Take care and do keep us posted.

Dilantin and its side effects

Common Questions and Answers about Dilantin and its side effects

dilantin