Cyclosporin urticaria

Common Questions and Answers about Cyclosporin urticaria

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I was diagnosed with cold urticaria seven years ago. I would like to get to know people who has the same allergie. I have no hives, only swelling of the mouth, coughing and choking if exposed to cold air, air condition, fridge, freezer, drinking cold drinks, etc. I have to use gloves to touch anyting cold otherwise my fingers will swell and get very red, or have broken blod vessels as a results. No medication is working, avoidance is the answer. Maybe someone out there have the magic answer?
I too have had this problem, cholinergic urticaria or mitochondrial urticaria, for over 14 years. They told me it would only last 10 but guess they were wrong. I take Reactine (Citrizine sp?) 10 mg during the summer and whenever I think I may break out. Walking around the mall, someone yelling at me, any exercise can trigger it. It basically comes with an increase in heart rate. The Dr. who diagnosed me (4 doctors later) explained it like this...
Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?
What is the recommended dose for per os administration of cyclosporin soft gel caps in a male patient (approx 85 kg) with chronic persistent urticaria with partial good response to H1+H2 antihistamines and better response to cortisone? No findings from lab testing.
Does anyone have any experience using Xolair for Chronic Autoimmune Urticaria. My 20 year old daughter has a severe case that started about 10 months ago and has been getting progressively worse over the last 4-6 months. She was completely unresponsive to antihistamines although she continues to take many. She has been on an immune suppressant called cyclosporine that was working fairly well but had to go off quickly due to bad kidney response.
Before taking the plunge I am seeking personal experiences with this ************** for autoimmune urticaria so that we can make a more informed decision. I have read a number of studies and understand that immediate and delayed anaphylaxis has occurred on rare occasion in clinical trials. Any stories would be helpful to know.
Since Jan '06 I have been suffering with chronic idiopathic urticaria and angioedema. I have been put on so many different drugs including cyclosporin, montelukast, steriods (tablets and IV), dosulepin and a whole host of anti-histamines! I am now taking 1 10mg cetirizine tablet 4 times a day, 1 25mg phenergan tablet at night and 1 25mg dosulepin capsule at night (soon to be increased!), also IV steriods when swelling becomes a problem. And still I swell up!!
My story - I've struggled with allergies all my life (severe eczema, mild asthma, very nasty urticaria) but at the end of last year I had a really bad bout of CFS (or CFS like symptoms) and then early this year my allergies started flaring up terribly. My doctor put me on prednisone which I was on and off for six weeks until I could get to see the allergist who essentially told me my only allergy was dustmites and there was nothing he could do - gave me steroid creams.
I AM IN THE BRIDE TO BE STATE AND A WOMAN I GOOONA MARRY IS A PHYSICIAN AND SUDDENLY EXPLAINED TO ME THAT SHE SUFFERED FROM PRESSURE URTICARIA AND SINCE THAT MOMENT I STOP MY MARRIAGE PROCEDURES AS I DON'T KNOW THE INHERITANCE OF THE DISEASE FROM PARENTS TO CHILDREN) AND THE EFFECT UPON WIFE DURING SEX, KISSING AND ANY PRESSING OVER SKIN FROM HUSBAND TO WIFE - IN PREGNANCY AND THE SIDE EFFECTS OF THE DRUGS USED TO TREATMENT IN THE MOTHER AND HER BABY.
My doctors didn't know why this was happening and my allergist was quite content to write them off as idiopathic urticaria. THEN I happened to develop a goiter and was diagnosed with hashimoto's thyroiditis. Thanks to the internet was able to put the two conditions together. I pointed out to my doctor that there were a lot of folks online who believed that hives are very common in autoimmune thyroid problems, but still got a skeptical response.
My daughter's ige was 47,000 the last time we checked it and we went to see a Dr. in Ohio that took her off the steroids and put her on cyclosporin which is a type of chemo for transplant patients. I'm not sure if I am going to get all the details right but I will give it a try and you can talk to a Dr. The medicine keeps her immune system from fighting her own body. They started her on it in the hospital for a few days and then sent us home.
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