Finding treatment for Amyloidosis is difficult, as few doctors are well-informed about it. If you can, I urge you to go to Mayo Clinic,
Rochester MN, or Boston University, as they both have Centers of Excellence for Amyloidosis. My insurance covered me to go to Mayo, and it was well worth the trip. Also, there is a great Amyloidosis ListServe, you will get it by googling Amyloidosis Support Groups, or Muriel Finkel, its founder. They were very helpful to me. Good luck!