Copaxone study

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copaxone

382218 tn?1341181487 php Long-Term Study With COPAXONE(R) Indicated Protective Effect On Brain Tissue In Multiple Sclerosis Patients Article Date: 29 Apr 2009 - 7:00 PDT "New data presented provided evidence that long-term treatment with COPAXONE® (glatiramer acetate injection) may offer sustained protection from neuronal/axonal injury.
422172 tn?1215990852 In hindsight I wish now that I had opted to do the Avonex/Copaxone study. There is no placebo group in this study; participants are on one or the other, or both drugs. I would have started treatment probably 2 months sooner and maybe even prevented my last relapse. Also, in a study one gets very close monitoring.
Avatar m tn I talked to the pharmacology staff of the Shared Solutions and they were rather pessimistic in the treatment of PPMS with Copaxone. They were very honest with me and talked about three studies on PPMS and Copaxone. At the very most in small studies of less than 50 people, 22 to 25 percent of them showed some disease progression.
195469 tn?1388322888 She told me that it was once thought that persons with mild MS disease, were all placed on Copaxone. She said that a study was done, paid for by the makers of Rebif, to determine if Rebif or Avonex were better at treating MS than Copaxone. At the end of this trial, it was determined that Copaxone was just as effective as preventing more lesions and brain volume loss, as the Interferons, Rebif and Avonex. (Please note that this is what I was told by my Neuro.
572651 tn?1530999357 I was at a Shared Solutions sponsored dinner, and the keynote speakers were two local neuros who are involved with lots of MS trials. Both of these doctors are very much in favor of DMD's for CIS. Here are some thoughts they shared with us about CIS and its progression to full blown MS - A patient with CIS, who has 3 or more white matter lesions apparent on a T2 MRI, is predicted to have a greater than 80% chance of developing CDMS (clinicially diagnosed MS) in 7-10 years.
1084398 tn?1277304810 The Copaxone rep called me yesterday to discuss my refills. I have some questions that maybe some of you can answer. She asked me if I was was still taking Copaxone or a different MS drug with Copaxone, or instead of Copaxone. In the 8 months I've been on Copaxone, I've never been asked this question before. I know the new pill is out, but is anyone here taking the new medicine? and if so... does it work, do you like it? why did you choose to take this?
Avatar f tn I was diagnosed in April 2010, and started taking Copaxone in November. I haven't had any of the tightness in my chest or rapid heart beats or anything, but at the injection sites I have been having massive swelling. I understand that there will be a reaction, but it is lasting for days, feels on fire through my pants, and is about the size of both of my fists put together and the patches are rock hard! Why?? Is anyone having any kind of reaction like that?
Avatar n tn I'm 23 and I'm starting Copaxone in about 2 weeks. I wanted to get the flu shot too. Is it safe to get the flu shot like tomorrow and then start Copaxone in about 2 weeks?
Avatar f tn I just got a call from my neuro's office. They are wanting me to participate in a study they are doing and I would love to know what you all think. She said they are doing a study on patients taking copaxone, rebif and betaseron. I would need to go to their office and sign a consent. The they send me to a dermatologist to have a biopsy done of the injection site (same day as injection). And that is all I have to do and they will pay me for it.
387113 tn?1313512083 I just read an interresting study on Copaxone too. It said that 92% of pts who started Copaxone and stayed on it were found to still be walking after 10 yrs. This is hopeful. It also said that they've discovered how it works too. It shuts on the monocyte's toxic cytotoxin message to the lymphocytes which is what attacks the mylen sheath. In mice it has shown to reverse paralysis. They are looking at expanding the study to include further MS research. So, that sounds promising!
Avatar n tn I was on Copaxone 20 mg daily for about 4-5 years. I didn't really improve, but didn't seem to get worse either. Then I went to 40 mg 3x weekly. I had worse injection site reactions, which I didn't like, and was frustrated that I wasn't getting better, so I stopped altogether. I'm thinking of going back to taking Copaxone, but I have moved to a state with poor access to appropriate medical care.
572651 tn?1530999357 I just wrote to the study coordinator for a study being held in Portland, Or. They are still looking for test subjects and a few of you might be interested. I could do the low fat part, but the vegan diet would take me out of the running. I have to have my butter and ice cream. The contact person for this is listed on the NMSS website or if you want more info drop me a PM and I'll send you the contact information.
620048 tn?1358018235 I have had so much trouble getting my copaxone renewed this year....Aetna specialty pharmacy faxed the renewal to my MS Dr.'s office in December and the Dr.'s office just sent the renewal in this week. I have been calling and emailing also.en Now it takes awhile to actually get it through .....I can't even remember what they said but I have 2-3 days left and thats after cutting back on my injections already. I have done everything I can to get my copaxone now and still waiting..
Avatar f tn Hi everyone. I'm new to ms and will be starting copaxone soon. I like to reaserch as much info as I can on any drug I take before I start so there are no suprises. Believe it or not, I am more concerned about weight gain than any thing else. I have literally struggled with it all my life. I am 50 lbs over weight now an can afford to gain an ounce. I've read where cushins symdrome is a side effct, oddly enough, it was a concern earlier with my weight issues.
Avatar f tn My husband and I went to a dinner sponsored by Teva Neuroscience last week at Maggiano's in Richmond. They had some guy who is a personal trainer speak at the beginning and then a doctor from a local neurology practice talked. I didn't learn anything that I didn't already know, but the food was amazing and it was a free date night. They did mention Laquininmod (I think that is what it was called), the oral agent that Teva is coming out with.
1637739 tn?1371688706 I have been taking Copaxone going on 5 months now. For the last 3, I have had the itchy lumps for a day or two after. I thought maybe they would get better but they really aren't. The PA at the neurologist office said they probably wouldn't. My question is this: Should I continue to tough it out or should I switch? I am curious from others if they have dealt with this and what they did about it. The itching isn't that bad, it's the lumps that bother me the most.
199882 tn?1310184542 You have always been very special to Craig and I. There was a small study done on men with PPMS and Copaxone. It showed some improvement but only after six years. the study (can't remember the name) was stopped after 18 months since the results were not statistically significant. Then some men continued using the Copaxone and were followed casually. It showed some help with less disability six years after the study was started. Copaxone did not ever show to help women with PPMS.
Avatar f tn d like to hear the reasons why her neuro dislikes Copaxone. I keep hearing good things about Copaxone - that it reduces disability, and it's better over the long term. Here's a good resource - reasonably impartial. http://en.wikipedia.org/wiki/Glatiramer_acetate I just got back on it. Mainly the only things I don't like about Copaxone is the lipoatrophy.
Avatar m tn I have just found the results of the LDN study done by Dr. Cree at UCSF. It was mostly funded by people who have MS and are taking LDN. It was the first study to actually document findings on people who have MS and take LDN. Updated: Nov 10, 2008 > LDN for MS—University of California, San Francisco, CA A study of LDN in the treatment of MS at the University of California, San Francisco, was implemented in early 2007 by neurological researcher Bruce Cree, MD, and colleagues.