Copaxone side effects patients

Common Questions and Answers about Copaxone side effects patients

copaxone

1469703 tn?1372041476 I'm wondering if anyone else here has had any issues with Copaxone concerning side effects other then the injection site reactions? I've been on Copaxone for 3 months now, I am agitated, frustrated, quick to anger. I've also been experiencing paranoia and mild visual hallucinations. I'm getting sick at least every 2 weeks, and have a general feeling of "un-well" or "ill".
1983221 tn?1333506185 those are definitely not listed among the side effects of copaxone - perhaps you really had some type of virus in your system making you feel bad? hope you feel better....
382218 tn?1341181487 The study demonstrated patients who received COPAXONE® improved in their cerebral neuroaxonal integrity relative to patients treated with placebo. Patients on placebo showed a decline in NAA consistent with that demonstrated in historical control studies. 1. Khan, O. (2008). Long-Term Study of Brain 1H-MRS Study in Multiple Sclerosis: Effect of Glatiramer Acetate Therapy on Axonal Metabolic Function and Feasibility of Long-Term 1H-MRS Monitoring in Multiple Sclerosis. Neuroimaging 2008. 2.
Avatar f tn This is a weird question, but I see you live in NY. I live in ct. Can i ask what the doctors found to diagnose you? I have been having a he'll of a time getting a diagnosis and I used to live in hampton bays. I saw river head and got excited. Sorry for the off question but I was just curious tht there may behold for me yet. Would you be qble to send me the name of your neuro?
Avatar m tn Our nurse at one of our MS support groups brings to our attention that the article skims over the Copaxone side effects and makes no mention of the Copaxone site reactions, but focuses on the liver concerns with all the others. That is the concern. Taking into context the fiscal crisis in the state of NV there are program cuts continuing across the board for many services.
Avatar f tn If you are waiting for the orals because of less side effects you will be sorely disappointed. The side effects can be far worse. The oral drugs are stronger than the DMDs and therefore have some really harsh side effects. They are meant for folks for whom the DMDs are not slowing the progress. They are not simply the the CRABs in a pill form. Damage is done in MS with out symptoms so although you may feel fine nerve damage can occur. It can occur anywhere in the body.
739070 tn?1338603402 My question is regardng side effects. I read the literature and the package insert, etc. Before the SS nurse arrived, unexpectedly, I had a headache. I get migraines but the was the garden variety type. Anyway, after the injection ,which was a breeze with minamal discomfort, my headache worsened. Took a long nap. Headache gone. When I awoke, I was lightheaded, actually felt more like orthostatic hypotension as I have a long history of hypertension. Anyway, took my BP and it was 156/110.
Avatar f tn Welcome to the club! For me (in 2004) and many others, diagnosis was in many ways a relief, because now we know what we’re up against, and we can frequently keep it at bay. The common longtime therapies (the CRABs) have time-tested safety profiles and generally about the same statistics regarding slowing of disease progression. Certainly read what the drug companies have to say, but you’ll find more objective reports on sites like the National MS Society at this link: http://www.
Avatar m tn Anything experienced by trial subjects when the drug was being studied must be listed, no matter how rare it was or how unrelated it might have been to the drug itself. Remember - the only things without possible side-effects also come with... no effects. Don't let the hypotheticals mess with your head. I don't mean ignore them. I mean, I never once considered Copaxone. I don't want something I have to think about daily and I am not willing to deal with possible lipoatrophy.
Avatar n tn Hi Ali. I can tell you my experience with Copaxone. I was just diagnosed in Dec of 07. I haven't been on any other MS med. I was put on Copaxone. In those 3 months I struggled with depression, sleeplessness, gained 10 lbs and had terrible dark circles under my eyes. It completely changed my personality. I took myself off it and finally after 2 weeks am starting to feel like myself again and have dropped the weight and the circles under my eyes are gone.
462771 tn?1358355843 Before Avonex I was on Copaxone. I have to disagree with Lulu about no side effects. The first month or so was fine, but after that I began getting hives, bumps, lumps, rashes and horrible itching. The bottom line is that I developed a severe allergy and had to go off it. Virtually everyone here who's on Copaxone is contending with bumps and itching to some extent, but far far less than I had. So everyone is different.
1028689 tn?1254441334 d rather inject daily then deal with the Rebif side effects and increase in depression! I have been on Copaxone for a week already and the ONLY side effect I have had is injection site stinging. No fever, No sweats, No fatigue, No muscle pain, and No other flu like symptoms. I hope things get better for you soon! Take Care!
Avatar f tn It can take a few months to separate disease activity from treatment side-effects unless its something obvious like Copaxone welts. Be sure to mention this to your team when you go for the second infusion so this gets put in your notes and you get feedback from the pros. In the mean time, I'm so sorry you're feeling this wiped out.
Avatar f tn in addition to a few flu side effects, my lip has started twitching and was wondering if this too could be a side effect?
2288403 tn?1339564728 You should be fine starting the Copaxone while still on IVSM. For most people, Copaxone actually has very few side effects. If you feel comfortable sharing more detail about your concern we can be more specific with help. Welcome to our MS community. We’re always happy to see new faces even though it’s sad we all end up gathering here to deal with MS. I hope you hang around and we get a chance to know you better and help you through the rough times as you start living with MS.
Avatar f tn I had a similar reaction after 10 days on copaxone without any previous problems at all Did my 11th injection and within an hour I started having chills and headache like I was getting the flu. Temperature ran up to 102. I went to bed because I figured I WAS getting sick and shivered and sweated for the next 15 hours. An advil brought the temp down gradually and then I felt fine. No runny nose, no headache no more fever.
439253 tn?1240835565 Hi Frog, i love the stuff. I have taken Avonex, Rebif, Copaxone(sp), and back on Rebif. The side effects are minimal and something tylenol can take care of. The three days a week bit is nice and I think you will like it. As much as something like that can be liked. You may have some extra perspiration at night but turn up the fan a tad. Hope it works for you well...
Avatar f tn hi Marizzy, and welcome to the forum. I can say that since this is your first post! I'm glad you have decided to join in the conversation. I am also a heart patient - I had a heart attack last year at the age of 53. I am fine but do remain aware of all things cardio. Have you called the Rebif hotline and talked to them about side effects? I am on copaxone and very know little about the other DMD's and their side effects, but I will look and see if I can find some answers.
470613 tn?1207312671 Hi All I'm back asking advice again! Last week I started my 3rd significant relapse this year, my specialist nurse is now talking about Tysabri. I was on Rebif for about 15 months and wasnt getting on with the side effects so I switched to Copaxone 6 weeks ago, which I'm quite happy with. I looked up Tysabri when I got home and all I got was all the bad news about the PML patients. They say that theres a 1/1000 chance of getting it, that seems quite high to me.
Avatar n tn The problem is the better a drug works at slowing progression the more side effects and risk is involved. This is known a risk/ benefit analysis. These drugs do not work on symptoms directly. They can slow progression and that can make you feel better. There are two things at work in MS inflammation which comes and goes and with it symptoms. There is also nerve damage which is permanent and so are the symptoms related to it.
Avatar f tn I really would love some input on what medications are the best and offer less complications/side effects... This is so hard...