copaxone not working

seem to think that the copaxone is not working for you as well??? Thank you for your response.

What symptoms do you have? If the Copaxone is not working you have every right to ask for another DMD. I suffered with symptoms for too many years because I did not know any different. My GP treats most of my symptoms because it is easier to contact her and be seen. I am sorry you were on the slow track. One day medical science will shake their heads at the conservatism of this time in MS diagnosis and treatment.

I wish I could help, but I'm not on Copaxone. It's the weekend, and a little slow around here. Hang in there, and I'm sure others will pipe in with good advise!

After 12 months of therapy on Copaxone, I show no new lesions, slight decrease in size in older lesions and only minimal brain volume loss. I dread to think of what the MRI would look like had I not been on Copaxone. I believe, as I understand it, that the Interferon drugs are more apt to keep the brain volume loss in check more effectively than the non-interferon drugs. Correct me if I am wrong.

I'm not on Copaxone, but Copaxone does take a while (I think maybe around six months) to take full effect, which you've passed in a way, but not at the proven dosage. In addition, the DMDs are not said to improve existing damage (some of the ones in trial now are said to have neuroprotective effects, but not the FDA-approved ones except maybe Tysabri) . They are prescribed to slow down and perhaps prevent future damage.

In Feb 08 I began taking Copaxone for MS. Shortly after I began using Copaxone, the right side of my tongue went numb. I initially stopped taking the Copaxone to see if it would resolve itself. It didn't and I continued with the Copaxone. The right side of my tongue is still numb, the numbness on the right side of my mouth has resolved mostly but now I have the most horribly dry mouth. I have tried everything--even so much as sucking on a mouth full of vinegar.

I have never heard of this side effect from copaxone and not sure how it could effect your cycle. Anyway, I had a hysterectomy way back when so I couldn't have this symptom regardless. Sorry.

Ive decided to go with Copaxone, after much hard deliberation and waiting on the result of a chest X-ray and anti dsDNA results . They were normal so I guess that ruled out sarcoidosis and lupus? Idk I was debating between Copaxone and Avonex. I had pros an cons for both but I decided I would save the interferon treatments for if my MS got worst. Not sure if that's logical but oh well. The flu like side effects and the IM injection was what made me decide against Avonex.

At this point (if I were you and I most certainly am NOT) I’d try to give the Copaxone an entire year trial before considering a change **ESPECIALLY** if you haven’t had a flare. It was around the taking-Copaxone-for-a-year mark that I realized I was feeling better than I had in quite some time. Not ‘original normal’ but a manageable (almost comfortable) ‘new normal’. She asked for stories and got a novelette. Hang in. Good luck. You are doing great!

i saw where there is a new and improved copaxone!! is it true?? made by peptimmune not teva... sure hope its true but have seen lots of things hyped up!! any feedback????

So today I went over my page of complaints w/ neuro today. we discussed my MRI she said i guess according to the MRI the copaxone is'nt working good enough so now we're going to try avonex. I got a script for balcofen, thank goodness. nothing for fatigue though. How long does it take for the avonex thing to go through, I am assuming it's through a specialty pharmacy, but she gave me a handwritten script. I can take it to walgreens?

I have a neuro appointment today. He wants to discuss how the Copaxone is working for me. I can be happy to tell him that now that I am injecting manually it is going wonderful :) I am so happy it is working. Copaxone is the only DMD I was considering due to the low side effets but with the autoject and the site reactions I was getting I was going to talk to him about switching but for now I am content with Copaxone.

It is difficult to identify the cause. One way would be to stop copaxone for some days and find out. But it is not be advisable. In MS, the tongue numbness usually lasts for several days together, and may also be associated with tongue spasms. It is really difficult to say if it is MS or copaxone at this point.

My insurance prescription coverage only covers generic drugs and since there is no generic drug for Copaxone it would cost me $10,000 for a 3 month supply! I obviously do not have that kind of money, not really sure who could afford that but anyway... I was working with Shared Solutions and their medication assistance only to be told that I was inelidgeable for the assistance.

hi im on the Copaxone train to wellness to and i have the legg nots that arent going away and some pain i dont do under my arms i do the shot like u would a booster shot do to the swelling and pain and the booster shot way is working out great and less swelling and no knots at all whooo for that hips and tummy doing ok to its just my leggs thinking about doing the under sides see how that works out and about that diet thing all i can say is im going on one ive gained 20 lbs in 3 months and s

Copaxone seems to be working for me. I had one large flare before Copaxone, and three small ones afterward. (I think I'm having one right now, but I won't know for sure until it's gone!) The site reactions were a real itch. I still have red marks on my skin where i scratched in my sleep, and bruised myself. Day to day symptoms have not been relieved. I still feel crummy about two weeks out of four. But at least it's not the Copaxone making me feel crummy...

I've been taking is copaxone, and it hasn't been working so I'm switching medications. I'm not really sure which medicine I should take next does anyone have any suggestions?

s the same kind of rash that I have on my right shin that I got not even a week after I started the copaxone. Coincidence Idk. I called shared solutions and talked to a nurse. He advised not taking another shot until I talked to my neuro. I called my neuro and he said to skip the shot last night and if the rash was no better today to go see my pcp. Unfortunately the rash wasn't any better when I got up this morning.

I'm not sure that DMDs, like Copaxone, are supposed to improve current symptoms. As you mention they are used to alter the progress of the disease. It seems to me that you have put yourself between a rock and a hard place. You are seeing a neuro who won't order MRIs and you won't take steroids, which may relieve your current symptoms, without MRIs. Looks like on or the other has to give...

I'm happy to hear that you'll be starting a medicine. MS, mild or not, can rev up and create havoc (of course it may also just pitter out, too). It is so unpredictable. However, not going on a medicine is a gamble that your disease will stay mild. At first, you may be seing your neurologist more frequently.

Copaxone is Teva's goose which lays the golden egg. It makes more money on the U.S. market with Copaxone than all the rest of the World combined.It is the most profitable MS drug in history. Novartis its chief rival has Capaxone which is the generic version. Teva has fought in the courts to keep it off the U.S. market. It will be on the market soon. The plan was for Teva's oral MS drug to make it to the market before Gilenya but it still is not on the market.

Dxd:11/09 DMD: Copaxone daily and IVIg every other week for 3 days

Just a comment on spinal lesions: It's my understanding that these are often more "eloquent" than brain lesions, meaning their presence is felt and they can do more damage. It's possible to have dozens of brain lesions and not know it, because they may be in "silent' areas of the brain. I don't know if the spine has silent areas, so one lesion can cause a lot of grief. I suggest you do more research on specific outcomes from Copaxone.

Copaxone not working

Common Questions and Answers about Copaxone not working

copaxone