copaxone and ms

m going thru my second round of IV steroids. I am supposed to start Copaxone tomorrow and am nervous about the side effects and if I should start it while going thru Steroid treatments. Any advice would be much appreciated!

Hi and welcome, As far as i'm aware IV solumedrol and Copaxone are often being done together, i've never personally heard of specific interaction problems, usually the choices you get is to stay on Copaxone and do the IV Steroid (with or without oral taper) or stay on Copaxone and skip the Steroids if it's not a major relapse.

hey there how r u...i am sam and im 23 yrs old and found out i have ms since december 2003,, it was hard for me cuz at that time i was turning 17 years and i was so young and confused y i have ms when no one in the family has it...the doctors diagnosed me with copaxone too but when i took it i was unable to walk so i just quit takin it cuz it was affecting me...

my husband is on copaxone and his back hurts severely. also his hands hurt and he is having asthma type reactions. also he is having dizziness and frequency in urinating. eye problems as well. please tell me if anyone else is having these disturbing things.

I have lipoatrophy already and I've been on Copaxone for about a yr and half. I don't shoot into my thighs anymore. My abdomen has dents now. I have mentioned this to my MS Dr and he just says not to inject into those areas, but I am concerned about the future..I think a call to the Shared Solutions would probably be a good idea.

In Feb 08 I began taking Copaxone for MS. Shortly after I began using Copaxone, the right side of my tongue went numb. I initially stopped taking the Copaxone to see if it would resolve itself. It didn't and I continued with the Copaxone. The right side of my tongue is still numb, the numbness on the right side of my mouth has resolved mostly but now I have the most horribly dry mouth. I have tried everything--even so much as sucking on a mouth full of vinegar.

hi ess- don't know what was wrong with me this morning, must have been to early -- of course i wanted to include you in my reply and also regarding the misleading formulation of my question-- thank you so much for your replies- will check out the health pages section about ms and depression.

(Pill and other forms) I too, was loosing CLUMPS of hair and it has now stopped. I have been on Copaxone for 8 months now and had the same experiance at the 4-5 month mark. Best wishes!!!

It took me a year at least. I even went for a second opinion and he said yep MS. Diet and exercise are good but because MS is neurological they can't stop it. That said I do both. I started exercise and a balanced diet after diagnosis because it was something I could do. With MS you can have other conditions such as perimenopause. Exercise and diet help that some what. I had no side effects on Copaxone. Remember with any medicine they have to tell you every side effect.

Bringing a little life in the world IS possible if you have MS. I have two children and MS. They are now 34 and 38. See, we got through it just fine. Good luck to you dearheart. Keep us posted...will you?

1 month later my platelet count is back down to 79. I was diagnosed with MS about 5 years ago and have been on copaxone for almost all that time. Could the Copaxone be causing my platelets to drop? I went off the copaxone when I went into the hospital and have been off of it for almost 2 months now. How long does the copaxone stay in your system after you stop taking it? Anyone have low platelet counts?

Thanks everyone for the feedback! It definitely is going to be a tough decision, but it helps to hear about others' experiences. I just want to clarify that my neuro did make the "official" diagnosis after ruling everything else out. I saw 5 neuros and 2 MS specialist (which my current neuro is an MS specialist) and all of them thought it didn't fit the MS norm. As far as only having it on one side of my brain, and it only progressing in 4 years from 2 lesions to 4.

I have MS treated with Copaxone. It has been suggested that I try a product called PROTEIN 7 SYNTHESIS...

Hello. In 2016 i was diagnosed with MS and i'm taking Copaxone .For 2 weeks now i have this disturbing pain on my left side of the head and if i touch my hair it feels like somebody is pulling it hard.Another symptom is itching skin at times and sensible leg skin an touch.Can it be the Copaxone or another lesion in progress???

Hello, I am sorry that I am saying this, I was pre-diagnosed with ms that was recently confirmed not ms. I am sorry that I had the news that most of you reading this will not hear. However I had accepted the diagnosis and was prepared,to move forward with my newly found life. And as a result almost a year of injection copaxone treatment ms that I don't know what to do with. I hate to throw it away but am not sure if I have another choice. Does anyone know of any other options?

I went for my 6 month followup on copaxone and post dx. The good news is that the copaxone seems to be "doing its job" cause no new lesions. Bad news is that I was dx'd pretty advanced with a bunch of lesions. They told me the damage I already have isn't going away. The rheumatologist wants to figure out a drug that will cover both the lupus and the ms. My neuro started talking about tysabri. It scares the **** out of me. I just looked it up.

Hello I am sorry you are seeing more progression. It is a shame the Doctors waited so long to put you on Copaxone. Progression happens with or with out symptoms. Copaxone is meant to slow Progression, not necessarily help symptoms. It works in 30% of people who are new to RRMS. It is probably the least heavy hitter of the DMDs. Its advantage is it has the least symptoms. Are you seeing a general Neurologist or an MS Specialist? If you are not seeing an MS Specialist you may want to see one.

You are so very smart Laura. Like my friend, Immesco (spelling), I enjoy your posts and agree with everything you say! You are very informative to us newbies, we need all the help we can get :) I spoke with Shared Solutions who reported the side affect to the FDA during my call and are going to follow up in a month. I really don't want to change drugs as this is the only side affect I'm having with the Copaxone and I don't feel physically bad.

I know they have looked at different way to dose Copaxone - including reducing the amount and another study that looked at going to an every other day injection. I was thinking that neither of those worked out in the studies, but I may be remembering that incorrectly. I'm going to a copaxone sponsored talk this week and will ask that question if I remember.

Five days after first Copaxone shot, I developed SEVERE myoclonic head and arm tremors -- shudder like and serious depression and cognitive problems and emotional liability. These dystonic head tremors were constant (5x) causing my entire head and shoulders to shudder whenever I spoke. I looked like Ozzy Osborne meets Dory the forgetful fish from Finding Emo. I gave myself Copaxone each day for four and a half years. I also tried BOTOX in my neck to try to control the tremors.

When I started they only had the shots. Because the interferons can make depression worse and I have always had major depression I went on Copaxone. I did not mind a shot everyday. Copaxone started as a pill in the testing phase but it did not work it broke down in the digestive system. It is important for the doctor to know her health history and her MS. everyone's MS is different. My MS is super slow progressing so it makes no sense for me to be on the pills which have more side effects.

She has since told me her other MS patient on Copaxone has had the same issues. In my case I know I was peremenopausal and I think it or the MS sped the process along. It was odd I stopped bleeding with in days of stopping the Copaxone. I did not stop the Copaxone because of it.

Copaxone and ms

Common Questions and Answers about Copaxone and ms

copaxone