on one hand, they say i probably don't have lupus, but on the other hand they can't tell me what i do have. i know that something is wrong
. i'm not crazy!! my husband has witnessed my siezures or whatever is happening to me. my hair is falling out, like thinning. i have chronic headaches. i have severe sinus problems, but the ent doesn't understand why, i even had sinus surgery! i hurt soooo bad some days, and others, i can tolerate it. my lower lumbar spine is horrible.