cellcept used for lupus

I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?

My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.

I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.

I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?

Thanks for the website I checked it out and there is alot of information. I have been given several differant meds but afraid to take any. Oxycodene, Gabapentin, Amitriptyline, Hydroxycholroroquine. I do take a multi-vitamin for anemia. Yes the ANA came back positive Pattern: Nucleolar Titers >1:640 SED 13, SS-A 0.4 and SS-B >8.0H AI. Lip biopsy came back positive for Sjogrens.

There are many medications out there that are not FDA approved for what they are being successfully used for. Cellcept is another one. I did not do well on Cellcept but a woman I met online that lives in North Carolina claims that is the medication that put her into remission a few years ago. How have you done on Imuran so far? What dosage are you on? Has it caused your ANA to go down? Are your symptoms gone or at least under control?

The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.

I was diagnosed with Lupus Nephritus IV , my doctor had me do a 3 day IV treatment of 1g solu Medrol , each, that was a week ago. I was already on prednisone 60 mg a day and right before the treatment Cellcept was added. I am feeling like I got hit by bus ! I read elsewhere that most of my current issues are withdrawal from the Solu Medrol . I was wondering if anyone else has had this treatment and how long it took to feel" normal" ?

Should I get a referral for a rheumatologist who might take a better overall look at lupus? Or do I press for a biopsy to find out what is causing the kidney failure and make appropriate treatment plans??

I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.

I have been on Plaquenil since last April. It has done wonders for me. I am still waiting for a definitive diagnosis of RA and/or Lupus but is looking most like Lupus. I am usually very sensitive to meds and easily react. I have tolerated this drug quite easily. In the first month or so I did have a bit of nausea and very vivid dreaming but once I was used to it that has disappeared. It will take 2 or 3 months before you start to see improvements.

Some doctors have used immunosuppressants to act to function like long term steroid treatment. I think this is an "off label" use for Cellcept. Online there are a couple of posts like: http://www.inspire.com/groups/mrf-multiple-sclerosis/discussion/cellcept-4/ that mention Vanderbilt MS clinic using Cellcept.

Can delaying treatment for auto-immune issues, increase the risk of permenent neuro symptoms? Me - 47 female various diagnosis including SLE, Sjogren's, Grave's, GERD larynx, hypothyroidism, 5x5x4 thyroid nodule, dysphasia, angioedema, mouth dryness makes talking and swallowing difficult, long tract spinal issues, insomnia, and most recently some scary issues...

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.

The latest drug they want me to try is CellCept which is used in transplant patients to decrease rejection. Now I have also been trying to have children, and with this drug I absolutely cannot get pregnant, as it causes major birth defects. Also I have a giant increase in risk of cancer, and sickness. My question is.... has anyone had success taking this drug, and being able to taper off with no recurrence of symptoms?

Because this disease robbed me of my life, I am leaning towards cytoxan therapy because it seems to be more aggressive than the cellcept (which is used mainly for transplant rejection). I really don't care about the side effects IF THE END RESULT IS GETTING MY LIFE BACK. My question, therefore, is this: do most neurologists use cytoxan as a last resort for CIDP patients? Have the results been beneficial to the patient (remission of the disease process)?

I have heard of remission. I used to think it was a myth. I go to a support group for people with lupus and someone there know someone who went into remission but so far i haven't and no one i know that has lupus has. You are so lucky to be in remission I feel like I have been in one big flare up for 4 years with no end in sight. I am not sure what being in remission really means. I guess you actually feel like a normal human being for a change.

when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?

I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?

I am just now starting to get on my feet. Thank You for the article. We are still treating with Cellcept after finally being weaned off of high doses of prednisone. horrible side effects...

I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.

Hi, Welcome to the MS Forum. You have mistakenly posted your question on the Patient-to-Patient Support MS Forum and not the Expert Forum where Dr. Kantor can see and answer your question. Please click on this link and post your question to Dr. Kantor. http://www.medhelp.org/posts/show/787897?post_id=post_4117801 He only takes one question for free a day, but if you want to and you can't seem to get your question in, then you can pay $25 for a certain answer.

Cellcept used for lupus

Common Questions and Answers about Cellcept used for lupus

cellcept