Cellcept off label use

Common Questions and Answers about Cellcept off label use

cellcept

Avatar n tn Did your doctor prescribe it to you for this? If not, STOP right now...'experimenting' with prescription medications, which are extremely addictive can NEVER have good outcomes.
Avatar n tn It is still considered off-label use but my doctor knew I would would follow his directions so I was his first patient to try it. First I had to get off Prograf because the interaction makes the Prograf 70x more potent. I was switched to cyclosporine and Myfortic. When the Incivek was started my cyclosporine was dropped to 25 mg once per day due to their interaction.
Avatar n tn m a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.
645800 tn?1466860955 Some doctors have used immunosuppressants to act to function like long term steroid treatment. I think this is an "off label" use for Cellcept. Online there are a couple of posts like: http://www.inspire.com/groups/mrf-multiple-sclerosis/discussion/cellcept-4/ that mention Vanderbilt MS clinic using Cellcept.
Avatar f tn It is perfectly legal for a physician, once a med has been approved by the FDA, to use it for off-label purposes. What isn't legal is for the manufacturer to talk the physician into using it for off-label purposes. So this med might be the best thing for you, and it might be completely inappropriate depending on where the professional got the info from. So you're right to question things, but as I said, that doesn't mean this isn't a good med for you.
778275 tn?1326913623 I can sort of answer your first question. Mycophenolate mofetil (MMF) or Cellcept has been extensively researched for its use in myasthenia gravis. Also, it carries a FDA black box warning that it may increase your chances of infection, lymphoma and congenital malformations (for pregnant women). Also, its optimal dose is yet undecided. Pyridostigmine (Mestinon) is the usual first line treatment for MG.
422425 tn?1307992990 Now, half the meds I take are off-label, so it may be no big deal that you‘re taking it for an autoimmune condition and not an organ transplant. My concern is that the drug is meant to lessen your immune system not increase mucous membrane production, which is what I would think a Sjogren‘s patient would be looking for. But I’m in do way a doc, so it’s not for me to question. But I am curious! How does that work for you? I'm really intrigued!!
Avatar f tn The doctor says he proposes to take my mother off CellCept altogether at some point in time and only PanGraaf will be needed for the whole life - in the meantime the doctor may prescribe CellCept in on / off basis.
Avatar f tn that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.
100019 tn?1335919717 For genotype 1 patients who cannot take interferon, the panel recommends sofosbuvir plus the HCV protease inhibitor simeprevir (Olysio), with or without ribavirin, again for 12 weeks. This off-label regimen has not been through full Phase 3 testing, but performed very well in the Phase 2 COSMOS trial.
Avatar f tn They all have reported feeling better daily - this off label approach is a God Send! Now I will finish out the 12 weeks - they will do the viral load test again at that time and then 12 weeks post treatment test again to declare me officially SVR!!! NO HORRIBLE INTERFERON OR RIBAVARIN THIS TIME FOR ME!!
1635208 tn?1300807160 Hi welcome to the Hepatitis C community Olysio per the prescribing information sheet is intended to be used with interferon and Ribavirin. The same applies to Sovaldi. Per prescription they are not used together. However there have been clinical trials using them together "off label" and they have been shown to be highly effective when used together. You can web search for Cosmos clinical trial cohort 1 and cohort 2 to see study results.
Avatar m tn I would be reluctant to be their guinea pig if I were the patient here. Cellcept is preferable to some other options but it can cause Lymphoma with extended use in some.
645800 tn?1466860955 Today I saw my MS Neuro and I asked about any news on new treatments for PPMS. He told me he is expecting a new treatment will be approved later this year by the FDA. It is a infusion every 6 months. Of course I cant remember the name for the drug and have not been able to find any more information about it on-line either. Does anyone here know any information about this treatment.
Avatar n tn I had a breakthrough with Avonex so my dr. recommended adding cellcept to the avonex shots. If so can you tell me how you have done with cellcept. Thanks!!!!
645800 tn?1466860955 I don't pretend to know a lot but I do know a little and I just have a few comments about your posts. Complicated is right! The VA does wonderful things (you are very similar to my father-has taken CellCept for 15 years) while they are not real good about communication with other facilities. They believe they are elite (and sometimes they might be) but communication is key. The glucose meter is of concern to me. Did they tell you they need to be calibrated every so often?
1611319 tn?1378618399 I hate to ask my doctors the question of this taking my life and how soon. I am on prednisone that we are weaning off and Cellcept 3000 mg per day. It was considered in the mild to moderate stages, but the docs are not sure how this should be treated. no studies have been done on this and am kinda in limbo....
960462 tn?1284991345 I just started cellcept yesterday, so having fears and questions, but my sarcoid has progressed into the heart and liver so hopefully yes it will slow it down, but ask your sarcoid doc tons of questions cause after reading all the what ifs I'm rather worried about this drug
Avatar m tn however, there is no documented increased cancer risk specifically with the use of long-term mycophenolate use. the less immunosuppression one takes over time, the better however.
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
Avatar m tn I am using Pegasys 180mug q/wk as an off label use to treat Polycythemia Vera and it works well.I will have to take this med the rest of my life. I am aware of the short term side effects, but what about long term side effects? What can I expect years from now?
1113735 tn?1273174430 I believe the trials in the US involve mostly G1. Members of this form have experimented with it off-label (not for the prescribed purposes) with mixed results. It may improve the efficacy of interferon. don't know about liver stages or alt, ast. personally if i were to start treatment tomorrow i would add it.
Avatar m tn If so, then the treatment is optimizing doses and levels of cellcept and prograf and trying to minimize the use of parenteral corticosteroids.