Cellcept ms

Common Questions and Answers about Cellcept ms

cellcept

Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar f tn I have MS and have an injection of Avonex once a week. I had a flare up in Oct. that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.
645800 tn?1466860955 Hi Dennis, Welcome back. Has spring sprung in TN yet? The deer here are very active and creating excitement in the area. I had to reread your message - it appears you are saying that the VA doctors are listening to you ? Huh? This is very good news. The 1.5T closed MRI should give them a pretty good look at what is going on if it was done to the MS protocol. Ufrustrated2 had his breakthrough with the VA recently, too.
Avatar n tn stiff person syndrome Me too, although I've had it for over 23 years ... dx'd w/MS at age 37. Dx' d w/stiff person syndrome few months ago , now 51yrs. Also suffering from severe joint pain, heart failure, atherosclerosis, brain plaques on brain from MS, affecting memory, cognitive ability, concentration, focusing, raynauds disease , walking, speech, and EXTREME PAIN....to name a few of about 13 diagnosis...
1781490 tn?1318651465 What is cellcept? How did your diagnosis for ms come about? What was was definitive for ms vs ss?
645800 tn?1466860955 It sounds like a simple machine which is good. Diabetis can be tricky. You have a lot going on-I am sorry you are having to go through all of this. Cellcept is a wonderful drug but with every wonderful drug there are some down sides sometimes. I hope you start seeing the upside very soon! Many thoughts coming to you from Kansas!
Avatar f tn s Hospital yesterday and was told by the doctor that I have Primary Progressive MS. She gave me 3 prescriptions - one for Cellcept to slow the progress, one for PT and the third for a scooter. That last one got me teary. I thought I was years away from that but now see that it is for the best. It will give me what I need to go out more. Also had to get the H1N1 vaccine and the pneumonia vaccine because she said Cellcept suppresses the immune system. Not sure there's much more to say.
Avatar n tn I'm a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.
645800 tn?1466860955 One more thing I have to worry about is infections due to being on CellCept of my MS. So it tends to freak me out a little bit when I get the chills as that could indicate I am running a fever. Me thinks that maybe I am having a flare? Thanks for listening.
645800 tn?1466860955 Probably my best appointment to date with my MS Neuro at Vanderbilt today. My walking has not deteriorated much in the last two years (slowed down slightly). Put me on two new medicines to see if I will tolerate them. He also want to try an course of IV Steroids to see if that will help me due to my NEW numb (r) face and other new symptoms. Have to wait on that until I get tested for Rheumatoid Arthritis first as they steroids would mess that test up.
Avatar f tn The doctor says he proposes to take my mother off CellCept altogether at some point in time and only PanGraaf will be needed for the whole life - in the meantime the doctor may prescribe CellCept in on / off basis.
778275 tn?1326913623 After a upper respiratory infection last month I have been having someone more weaknesses and even a slight breathing problem at times, so he wants to put me on Cellcept. The problem is Cellcept can cause Lymphoma and other side effects and infection risk,. I want to get off Prednisone due to weight gain and creeping up hypertension and the Mestinin digestive problems are a real pain.
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
1135761 tn?1260557094 my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?
645800 tn?1466860955 Today I saw my MS Neuro and I asked about any news on new treatments for PPMS. He told me he is expecting a new treatment will be approved later this year by the FDA. It is a infusion every 6 months. Of course I cant remember the name for the drug and have not been able to find any more information about it on-line either. Does anyone here know any information about this treatment.
Avatar f tn Okay hears the deal I was put on prednison when I was 17yrs old along with imuran, now i know the effects of prednison obviouly, it being a steroid there usually are some weight gain and moon face etc as common side effects. Now I'm 19yrs old and they have me on cellcept. I have always been extremely active even to due to my fatigue but I cannot loose a pound, I will work out 24-7 and change my diets often to see if anything changes and...nothing.
Avatar n tn when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Avatar m tn we have ruled out tumors...cancer and ms....he has 2 lesions on his brain and white matter also on the corpus callosum of his brain... what next??? am i wrong???? we have been told Conversion Disorder...but my hubby has been seeing a psych doc and she has evaluated him and states he does not have a psych disorder.......i think personally we need to seek a 2 opinion from a neuro that knows what he or she is talking about and does not label my hubby as crazy!!! frustrated beyond belief!!!
1511858 tn?1290477459 and yes the doctors and us get stuck on MS ....when I moved here I told my doctor I refuse to go down the ms road and he looked at me and said Im positive you have ms lol after he proved to himself I didnt he didnt leave my side and said we will find out whats going on and he did.....No the fires arent around us thank goodness so sad.....we do need rain...
Avatar f tn When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
645800 tn?1466860955 Just once I'd like to have something go right with the VA in Nashville. I really thought today was going to be that day...I got a letter from the VA telling me that they had set up my follow up appointment with my Vanderbilt MS Neuro. I didn't have to get on their case to get it done this time, not even initiate things at all. But no way was that going to be the case.
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?