cellcept in sle

It started with short time memory, difficulty repeating and remembering numbers, immediate memory loss, hitting the wrong letters on the keyboard, while thinking out something, there is a nano second when I know the memory is going to dissolve. Some fluctuated in degree of intensity oh and now a calcified mass in my right lower flank that is being repeated to see if there is a change in size.

I ask my Rhuemy if I could try Sevella, he said NO because it messes with your blood pressure and he refused to put me on it even with the knowlegde that we have tried everything else. I am on Cellcept 2000 mg a day for SLE. It has worked better than Plaquenil or Methotrexate. I have gotten to know the difference between Fibro pain and SLE pain and MCTD pain, Raynaulds and RA pain. Most of them are all the same but Fibro is different. I have had these awful diseases for 2.

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

I had a breakthrough with Avonex so my dr. recommended adding cellcept to the avonex shots. If so can you tell me how you have done with cellcept. Thanks!!!!

m a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.

i agree with the plan

I can sort of answer your first question. Mycophenolate mofetil (MMF) or Cellcept has been extensively researched for its use in myasthenia gravis. Also, it carries a FDA black box warning that it may increase your chances of infection, lymphoma and congenital malformations (for pregnant women). Also, its optimal dose is yet undecided. Pyridostigmine (Mestinon) is the usual first line treatment for MG.

I have MS and have an injection of Avonex once a week. I had a flare up in Oct. that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.

In addition, we found significantly increased IFN-α levels in SLE patients.The prevalence of HBV infection in SLE patients was lower than that in sex- and age-matched non-SLE controls in southern China. The characteristic IFN signatures in SLE may favor the subsequent clearance of HBV.

It was my decision to skip the toxicity of Cytoxan and go for ritux...in spite of the fact that it was being used only sporadically then for SLE and approved for nothing except lymphoma. That was Spring of 2005. Oops. I guess that is way more than how I did on steroids!

Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?

Okay hears the deal I was put on prednison when I was 17yrs old along with imuran, now i know the effects of prednison obviouly, it being a steroid there usually are some weight gain and moon face etc as common side effects. Now I'm 19yrs old and they have me on cellcept. I have always been extremely active even to due to my fatigue but I cannot loose a pound, I will work out 24-7 and change my diets often to see if anything changes and...nothing.

when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?

s side effects. In fact, I know very little about cellcept at all. I hope someone here can help. Have you talked to your neuro about these problems and asked about alternative drugs for you to try? I hope you come through again and chat more with us here.

is this disease going to take my life in the next few years or am I headed for a lung transplant. Was diagnosed in July with this from The Mayo Clinic in Scotsdale, AZ and fron St Luke's Medical Center in Houston TX..I have a great team of doctors. Pulmo, Rheumy, Cardio, Sleep Apnea, Infectious Disease, Etc. They are saying this form is extremely rare as it is connective tissue variety and may be related to Sjogren's.

The best advice I can give you based on if you were here in the U.S. is to see the most knowledgeable doctors in the fields of SLE and treatment of hepatitis C. Both doctor would need to collaborate in the decision to treat or not. And if you were to treatment to monitor you very closely to make sure the treatment is not doing more harm then good.

I am a 51 yr old female. During my annual check up in October, my Provider found my creatinin level elevated and a high sed rate. I have had controlled blood pressure for years. Since October, my GFR has dropped to 35 with a continued increasing of my creatinin to 1.57. ANA tests have been positive (1:320). I have seen a nephrologist twice . . which has only produced a "watch and wait" attitude. Multiple myloma has been ruled out.

I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better. Of course I don't have any kids running around so I'm not exposed to a lot of illnesses.

I was just diagnosed with it.

Who prescribes the CellCept for you? The prescribing physician HAS to make a way for you to be monitored aggressively & appropriately. Easy for me to say. Is the VA prescribing the CellCept? How do their transplant patients get access to a dr. who is on top of their game with this powerful medication?

I was diagnosed by open lung bx in 2001, I suffered ans was treated with plaquenil and methotrexate, after a while on steroids. seemed to get better, then the last year treated with a lot of respiratory problems, pneumonia and different types of flu. I am worried I feel worse than before, my labs show another onset after all this time. But also with raised lft's, and indicators do heart issues, my question is does cellcept work as well? does morbidity go up the second time around?

My husband had autoimmune hepatitis and had liver transplant in March of 2003, he is doing well however, he stopped taking his meds 3 months ago because the meds is very expensive as he say, now he went back to take his meds that is Cellcept and Prograf . He now is feeling pain on his left side of his belly and it is really like distended and hard.and very warm to touch. His belly like shifted to the left ever since he had the surgery.

Although metastasis and death from these cancers are uncommon in the general population, they can be fatal in the transplant population. All post transplant patients should be alert to the early detection of cancer. This can be helped by monthly breast, testicular and skin self examination and routine medical check-ups. PAP smears, breast exams, testicular exams, and skin cancer screening should be done by your physician every year. Other general measures should also be taken.

Had my latest appt with Dr. P at the MS clinic today and am feeling pretty good about how things went. But as usual there were questions I didn't thing to ask him about. Last week I had a MRI w/wo contrast, MRA, and VEP tests done. Of course it took forever to get them lined up due to the VA. The MRI & MRA were done at the VA while the VEP was done at Vanderbilt.

s Hospital yesterday and was told by the doctor that I have Primary Progressive MS. She gave me 3 prescriptions - one for Cellcept to slow the progress, one for PT and the third for a scooter. That last one got me teary. I thought I was years away from that but now see that it is for the best. It will give me what I need to go out more. Also had to get the H1N1 vaccine and the pneumonia vaccine because she said Cellcept suppresses the immune system. Not sure there's much more to say.

Cellcept in sle

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