cellcept in lupus

I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?

Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus. I do not, but It could be a consideration especially w/the joint issue. Haven't heard a thing about the vitamin d and AIH. Interesting!

I was diagnosed with Lupus Nephritus IV , my doctor had me do a 3 day IV treatment of 1g solu Medrol , each, that was a week ago. I was already on prednisone 60 mg a day and right before the treatment Cellcept was added. I am feeling like I got hit by bus ! I read elsewhere that most of my current issues are withdrawal from the Solu Medrol . I was wondering if anyone else has had this treatment and how long it took to feel" normal" ?

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

Did your docs do any lab work such as ANA or SSA or SSB blood test? What meds did she give you? I have SS,Lupus and Fibo, RA and I have gone through the gaunlet of meds and nothing has worked except pain medication. Right now my doc is tring Cellcept. The jury is still out. But I have been on steroids, Plaquenil, Arava, Methotrexate and now Cellcept.

My nephrologist did a biopsy on my kidney and found the lupus in my kidney. Had he not done this we would still be looking. He says that lupus is very hard to diagnose. I have had this for 5 yrs now. I am currently on Cellcept,best drug ever, which there is a generic one now. I was just told thatmy lupus has resolved. I still have lupus, but my kidney function is back to almost normal.

I did not do well on Cellcept but a woman I met online that lives in North Carolina claims that is the medication that put her into remission a few years ago. How have you done on Imuran so far? What dosage are you on? Has it caused your ANA to go down? Are your symptoms gone or at least under control? I would love to know since I am putting a lot of hope into this treatment right now.

I had a breakthrough with Avonex so my dr. recommended adding cellcept to the avonex shots. If so can you tell me how you have done with cellcept. Thanks!!!!

m a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.

i agree with the plan

I can sort of answer your first question. Mycophenolate mofetil (MMF) or Cellcept has been extensively researched for its use in myasthenia gravis. Also, it carries a FDA black box warning that it may increase your chances of infection, lymphoma and congenital malformations (for pregnant women). Also, its optimal dose is yet undecided. Pyridostigmine (Mestinon) is the usual first line treatment for MG.

I have MS and have an injection of Avonex once a week. I had a flare up in Oct. that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.

My mother also have high sugar level & Blood pressure & she is taking medicines for these, so all these drugs can change the LFT & KFT reports as her figures changed only in 10 days. 10 days before all the figures were normal in LFT & creatinine levl was 0.89 & now creatinine is 1.17 & urea level has been increased from 35 to 70, utric acid is 12.5. what we can do.please help.

In cases like yours (multiple dx involving lupus, thyroid, CNS, etc) we have found almost all patients had chronic, systemic infections. You need to look into this, especially Mycoplasma species and Chlamydia pn., infections that we often found in these complex cases.

Okay hears the deal I was put on prednison when I was 17yrs old along with imuran, now i know the effects of prednison obviouly, it being a steroid there usually are some weight gain and moon face etc as common side effects. Now I'm 19yrs old and they have me on cellcept. I have always been extremely active even to due to my fatigue but I cannot loose a pound, I will work out 24-7 and change my diets often to see if anything changes and...nothing.

when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?

I have been on IV infusions of sol u medrol in the past months to try to get my MS in some sort of remission. Do you have chronic pain also? He put me on medication for fatigue also. I feel like i take 100 pills a day! I'm interested in what your age is and what your symptoms are!

s side effects. In fact, I know very little about cellcept at all. I hope someone here can help. Have you talked to your neuro about these problems and asked about alternative drugs for you to try? I hope you come through again and chat more with us here.

is this disease going to take my life in the next few years or am I headed for a lung transplant. Was diagnosed in July with this from The Mayo Clinic in Scotsdale, AZ and fron St Luke's Medical Center in Houston TX..I have a great team of doctors. Pulmo, Rheumy, Cardio, Sleep Apnea, Infectious Disease, Etc. They are saying this form is extremely rare as it is connective tissue variety and may be related to Sjogren's.

Thanks, Wan68 I too hope some long time interferon users find this post, and respond. There are none on our forum currently that I'm aware of, but you never know who may see this one day. They discovering existing meds to treat disease and conditions all the time, the one that comes to mind regarding MS is Lemtrada (search for alemtuzumab too), recent news says it's done well in trial when compared to Rebif - maybe ask the doc about the cellcept in this context.

I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better. Of course I don't have any kids running around so I'm not exposed to a lot of illnesses.

Lupus Anticoagulant - POSITIV ANA - negative ( and I know that in people with Lupus ANA can go way up if are staing a lot in su exposure ) anti-dsDNA - negative VSH - 2 (normal <15) Serum urea - 35 ( normal <43) Serum Creatinin - 0.76 ( normal <1.2) C3 - 133 ( nromal 90 - 180 ) C4 - 20 ( 10 - 40 ) I visited the cardiologist as well, and my ejection fraction decreased from 63% in 2013 to 53% in sept 2015, and now I have mild regurgitation.

I was just diagnosed with it.

Who prescribes the CellCept for you? The prescribing physician HAS to make a way for you to be monitored aggressively & appropriately. Easy for me to say. Is the VA prescribing the CellCept? How do their transplant patients get access to a dr. who is on top of their game with this powerful medication?

Cellcept in lupus

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