Cellcept for vasculitis

Common Questions and Answers about Cellcept for vasculitis

cellcept

Avatar f tn They are going to wein me off of the Prednisone once I am up to the highest dosage of Cellcept which is 2000mg a day. I am starting at 500mg for 5 days, then 1000mg for 5 days, blood work, and then 2000mg. Most websites don't speak specifically about vasculitis of the eyes. All autoimmune disease tests came up negative. I want to know more about this disease. I also have several other issues with my eyes including Chronic Uveitis and Pars planitis, and a few more.
778275 tn?1326913623 I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.
Avatar f tn The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
312330 tn?1245176752 When my new doctor took blood for labs, my liver enzymes were again elevated, and a Hep panel in Oct 2006 still showed positive for Hep A, Ultrasound at that point looked good and all the enlargment I had in my liver and spleen had gone away. My asthma/allergy problems continued to worsen, and I was finally diagnosed with Churg Strauss Syndrome, I have never been off steroids since then. My liver is involved in the CSS, with areas of necrotizing granulomas found on biopsy.
Avatar n tn I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar n tn There are many medications out there that are not FDA approved for what they are being successfully used for. Cellcept is another one. I did not do well on Cellcept but a woman I met online that lives in North Carolina claims that is the medication that put her into remission a few years ago. How have you done on Imuran so far? What dosage are you on? Has it caused your ANA to go down? Are your symptoms gone or at least under control?
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
Avatar f tn I am taking 100mg/day of oral Cytoxan for Vasculitis and am really losing a lot of hair. I have been on it for 4 months and will probably be on it for another 4 months. This is the 2nd time I have been on a round of Cytoxan, but the 1st time (20 years ago) my hair just thinned a little. This time it is really coming out. I was under the impression that taking Cytoxan orally did not cause significant hair loss. Has anyone else had experience with oral Cytoxan and hair loss?
Avatar n tn My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
1135761 tn?1260557094 my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?
Avatar f tn don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
Avatar n tn when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Avatar f tn I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?
1611319 tn?1378618399 I am just now starting to get on my feet. Thank You for the article. We are still treating with Cellcept after finally being weaned off of high doses of prednisone. horrible side effects...
1113735 tn?1273174430 If your vasculitis is due to cryoglobulinemia, then a cure for hep C will likely make it go away. If you have hep C, I would not take any supplements as they are not quality controlled and it is difficult to know exactly what is in them. They may not be good for your liver.
645390 tn?1338555377 I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.
Avatar f tn She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?
645800 tn?1466860955 t high due to my taking of the CellCept as it suppress my immune system. She finally gave me an RX for Zithromax to see if that will clear things up. I also talked to her about getting hearing aids since I finally got service connection for my hearing. She put in a consult request for that. Hopefully I will get an appointment for that before the new year. I was first told I needed hearing aids about 10 years ago but could never afford to get them. There was some good new...
Avatar f tn I was informed that the small biopsy of the dark freckle on my forearm has come back as vasculitis. About a week prior to having this removed I had severe joint pain in every joint in my body and had a series of blodd tests done to test for lyme disease, rocky mt spotted fever, CMP, iron etc... The only thing that came back abnormal on my blood work was my AST/ALT because I have fatty liver disease (my numbers were 89 and 44 to be exact). As quickly as the pain came, it went away in 4 days.
960462 tn?1284991345 I just started cellcept yesterday, so having fears and questions, but my sarcoid has progressed into the heart and liver so hopefully yes it will slow it down, but ask your sarcoid doc tons of questions cause after reading all the what ifs I'm rather worried about this drug
1755602 tn?1312770466 It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor. I sincerely hope that helps. Take care and please do keep me posted on how you are doing.