Cellcept for sarcoidosis
Common Questions and Answers about Cellcept for sarcoidosis
cellcept
The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease.
Let me know if I can answer any questions.
Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down.
I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
My wife is 36 and diagnosed with Uveitis and on steroid eye-drops now. After lot of tests our doc suggested two reasons for it either TB or Sarcoidosis. She had no symptoms of TB so far but MT was 17mm and CT guided FNAC shows granulomatous inflammation and the chest X-ray indicated a possibility of sarcoidosis but later a board of doctors ruled out sarcoidosis. Having started the TB medication for a week we now wish to continue her treatment for UVEITIS .
My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also.
Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now.
What could be reason?
Do you think this could be sarcoidosis? and Can you have both lupus and Sarcoidosis? My father has some sx also seem to fit. Would either parent have to have it for me to have it? Seems like all females in my family have health issues. Aunt with sever Rheumatoid Arthritis. Is there any genetic testing that can be done to see if this could be my health issues? Both my parents are still living but are 79 and 80yo. Any suggestions??
Why can't we find a cure for SARCOIDOSIS? Why is there not more awareness for this terrible disease? It has affected my husbands liver. He now has cirrhosis and needs a liver transplant. He can't tolerate prednisone very well. What other drugs could be used? Are there any Sarcoidosis doctors in the Cleveland Ohio area?
I have allergies and also live in Louisville, KY which is notorious for pulmonary problems. Can allergies and/mold exacerbate the sarcoidosis effects?
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