cellcept for ms patients

PPMS stands for Primary Progressive MS which is what I was diagnosed with last Thursday. I haven't gotten my prescription yet so haven't read any of the literature. What I've read online has made me a little nervous. Also my doctor telling me I had to get both the regular AND H1N1 vaccines as well as the pneumonia vaccine before starting to take the Cellcept just adds to that.

The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.

I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.

t high due to my taking of the CellCept as it suppress my immune system. She finally gave me an RX for Zithromax to see if that will clear things up. I also talked to her about getting hearing aids since I finally got service connection for my hearing. She put in a consult request for that. Hopefully I will get an appointment for that before the new year. I was first told I needed hearing aids about 10 years ago but could never afford to get them. There was some good new...

I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?

Should the transplant team/doctor monitor liver transplant patients taking cellcept post liver transplant over time? Is there a significant threat of cellcept causing lymphoma?

Hi Dennis, Welcome back. Has spring sprung in TN yet? The deer here are very active and creating excitement in the area. I had to reread your message - it appears you are saying that the VA doctors are listening to you ? Huh? This is very good news. The 1.5T closed MRI should give them a pretty good look at what is going on if it was done to the MS protocol. Ufrustrated2 had his breakthrough with the VA recently, too.

What is cellcept? How did your diagnosis for ms come about? What was was definitive for ms vs ss?

I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.

s Hospital yesterday and was told by the doctor that I have Primary Progressive MS. She gave me 3 prescriptions - one for Cellcept to slow the progress, one for PT and the third for a scooter. That last one got me teary. I thought I was years away from that but now see that it is for the best. It will give me what I need to go out more. Also had to get the H1N1 vaccine and the pneumonia vaccine because she said Cellcept suppresses the immune system. Not sure there's much more to say.

Just once I'd like to have something go right with the VA in Nashville. I really thought today was going to be that day...I got a letter from the VA telling me that they had set up my follow up appointment with my Vanderbilt MS Neuro. I didn't have to get on their case to get it done this time, not even initiate things at all. But no way was that going to be the case.

I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?

Because this disease robbed me of my life, I am leaning towards cytoxan therapy because it seems to be more aggressive than the cellcept (which is used mainly for transplant rejection). I really don't care about the side effects IF THE END RESULT IS GETTING MY LIFE BACK. My question, therefore, is this: do most neurologists use cytoxan as a last resort for CIDP patients? Have the results been beneficial to the patient (remission of the disease process)?

One more thing I have to worry about is infections due to being on CellCept of my MS. So it tends to freak me out a little bit when I get the chills as that could indicate I am running a fever. Me thinks that maybe I am having a flare? Thanks for listening.

The name of the new oral drug for MS is Gilenya. Are you an MS patient? If so , welcome to our forum ! Let us know what we can do to help.

And for Brent and the others asking questions here is the story. My husband had a liver transplant March 2007. When we found out he had hepc he was too sick to treat. The Hep c starting attacking the new liver 4 months after the transplant. The doctors kept him on interferon shots 0.5mcg and 800 mg ribavarin for 18 months. Usually they say 12 months but since he is a transplant patient they will keep him 18 months on a lower dose. After the 18 months he is considered a nonresponder.

My Neurologist practically changes his mind about whether I am PPMS every time I go in. I am not on a DMD because I have had MS for 47 years, have PPMS, and it is very slow, The CRABS would not do me much good. I was set to go on the new ones but with cancer I can't be on a the new drugs. I was told progression happens with or with out symptoms. Nothing can guarantee to stop progression but I think it is important to try.

Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?

Today I saw my MS Neuro and I asked about any news on new treatments for PPMS. He told me he is expecting a new treatment will be approved later this year by the FDA. It is a infusion every 6 months. Of course I cant remember the name for the drug and have not been able to find any more information about it on-line either. Does anyone here know any information about this treatment.

My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

Cellcept for ms patients

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